Dysmorphology Assessment Instrument Development Study
Project Description:
The Dysmorphology Assessment Instrument (DAI) development project is being carried out through the Pacific Northwest Center for the National ChildrenÂs Study. The National ChildrenÂs Study (NCS) is a large multi-site longitudinal study which will examine the effects of multiple aspects of the environment on the growth, development, and health of children across the nation. Families who participate in the NCS will come from 105 Study Locations (counties or groups of counties) across the United States. Study Centers are research teams that will carry out the research at these study locations. There will be up to 40 study centers and most centers will manage more than one study location. The Pacific Northwest Center is one of the study centers.
The Fetal Alcohol Syndrome Diagnostic and Prevention Network (FAS DPN), at the CHDD, will work in collaboration with the University of Utah, Orange County Vanguard Center, South Dakota State University, University of California at San Diego and the University of Mississippi to develop the DAI. The DAI will be used to examine and categorize major and minor physical anomalies in NCS study participants. The FAS DPN is contributing to the DAIÂs digital photography and direct measurement capabilities through the development and the validation of photography protocols, photograph and web-based training modules.
Core Function(s):
Performing Research or Evaluation
Area of Emphasis
Health-Related Activities
Target Audience:
Professionals and Para-Professionals, Family Members/Caregivers, Children/Adolescents with Disabilities/SHCN
Unserved or Under-served Populations:
None
Primary Target Audience Geographic Descriptor:
National
COVID-19 Related Data:
N/A
