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AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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Project

Sickle Cell Genetics Project

Center:

AR-University of Arkansas Partners, UCEDD/LEND

Fiscal Year:

2011

Contact Information:

Renee Holmes
[email protected]
479-871-2836

Project Description:

Establish a follow-up component of Arkansas' sickle cell disease screening program, including community-based hemoglobinopathy counseling, education and support services. Goals and Objectives: The project goal is to improve the lives of children and families affect by sickle cell disorders through newborn screening follow-up and referrals, education, and family support. The objectives are to improve the lives of children with sickle cell and their families by: a) expanding the newborn screening follow-up to include education about sickle cell trait and hemoglobinopathy testing to 500 families of children born with sickle cell trait each year; b) training 70 health care professionals each year; c) providing sickle cell disease education to 500 persons annually; and d) offering family support to 100 families annually

Keyword(s):

sickle cell, genetics, education, infants, counselors

Core Function(s):

Performing Technical Assistance and/or Training, Developing & Disseminating Information

Area of Emphasis

Health-Related Activities

Target Audience:

Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, Legislators/Policy Makers, General Public

Unserved or Under-served Populations:

Racial or Ethnic Minorities, Disadvantaged Circumstances, Geographic Areas, Rural/Remote, Specific Groups

Primary Target Audience Geographic Descriptor:

State

Funding Source:

Federal

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910

Mailing address:
PO Box 8787
Silver Spring, MD 20907-8787