|

AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

Learn More
|

AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

Learn More
|

AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

Learn More
|

AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

Learn More

Donate

Project

Quantitative Clinical Measures of Muscle Strength, Gait and Function in Boys with Duchenne Muscular Dystrophy: Comparison to Assessments of Lean Body

Center:

CA-Tarjan Center UCLA, UCEDD

Fiscal Year:

2011

Contact Information:

Eileen Fowler
[email protected]
310-825-4028

Project Description:

Longitudinal clinical measures of function in boys with Duchenne Muscular Dystrophy using current quantitative assessment tools are important to establish normalized profiles of disease progression and to accurately assess effects of interventions. Success of clinical trials of emerging therapies is highly dependent on outcome measures which accurately measure change across the life span. The use of corticosteroids in patient management has altered the rate of progression and new normative data needed.

Keyword(s):

Muscular Dystrophy, clinical, boys

Core Function(s):

Performing Research or Evaluation

Area of Emphasis

Quality Assurance, Health-Related Activities

Target Audience:

Professionals and Para-Professionals, Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Specific Groups

Primary Target Audience Geographic Descriptor:

Single-County