Project Description:
Fifty percent of the families who have children and youth (birth to 17 years of age) who have special health care needs (CYSHCN) in Kansas stated that they received the services necessary for transition to adulthood; 66 % felt they were partners in decision making at all levels and were satisfied with the services they received; and slightly over 55% said they received coordinated, ongoing, comprehensive care within a medical home. (2005/2006 NSCSHCN). The project proposes to address these needs through the implmentation of the following goals: to 1) strengthen patient/family/professional partnerships through education, mentoring, technology, and financial investment to support culturally diverse family/youth involvement at all levels of decision making support, 2) enhance access and services received in a Medical Home, 3) address transition to adulthood by incorporating into practices and policies transition supports for youth/young adults with disabilities, and 4) build system capacity and sustainability. Activities include establishing a Stakeholder?s Advisory Committee, including families and youth with special health care needs. The project will provide consumer and professional training, support, and mentoring; conduct video teleconference training and technical assistance for medical and agency personnel; set up information tables and offer technical assistance support at professional conferences and family outreach programs; develop a computerized curriculum for self-directed transition planning, and a technology-oriented portable medical summary and needed transition services; coordinate individualized interagency team meetings; use a RFP process to award seed money for innovative practices; disseminating information and resource development.
Core Function(s):
Performing Technical Assistance and/or Training, Performing Research or Evaluation, Developing & Disseminating Information
Area of Emphasis
Health-Related Activities, Other - Cultural Diversity
Target Audience:
Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Children/Adolescents with Disabilities/SHCN
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas, Rural/Remote, Specific Groups
Primary Target Audience Geographic Descriptor:
State, Regional
COVID-19 Related Data:
N/A
