Utah Newborn Screening Clinical Health Information Exchange
Project Description:
Project Context:
Current Utah health data exchange systems are not optimally designed to support timely access to the results of newborn heel-stick and hearing screening for primary care and specialty clinicians. To assure high quality short- and long-term follow-up, clinicians also need up-to-date knowledge about the numerous conditions for which newborns are screened and information about services and other community resources available to help in optimizing outcomes for affected children.
Assuring optimal care and follow-up requires effective and sustainable systems and processes within and across public health and healthcare delivery systems and medical practices.
The UNS-cHIE project, through collaborating programs, will improve the electronic exchange of health data in Utah. The Center for Persons with Disabilities will provide the evaluation for this project.
Project Focus:
The UNS-cHIE Project will accomplish the following five goals:
1. Confidentiality, privacy and security policies and procedures for sharing newborn screening information through the cHIE in Utah will be approved and fully implemented.
2. Secured electronic exchange of the EDHI data with the medical homes through CHARM, cHIE, and HELP2 will be developed and implemented.
3. Secured electronic exchange of the Newborn Screening test results through CHARM and cHIE will be developed and implemented.
4. Decision-support at the point of care through the Medical Home Portal to improve short- and long-term follow-up will be provided to all health care providers in Utah.
5. Targeted Medical Homes will improve short- and long-term follow-up with the help of UPIQ.
The CPD will provide the evaluation data for these project goals.
FY 2010 Focus:
Within the first 12 months of the grant period, the UNS-cHIE will be able to electronically deliver at least 60% of initial newborn hearing screening results to primary care physicians. In Year 2 (or sooner if relevant components of Goal 1 are accomplished early) it will be able to connect selected pilot medical homes with the NLIMS system in the state of Utah.
Keyword(s):
newborn screening, electronic healthcare data exchange
Core Function(s):
Performing Research or Evaluation
Area of Emphasis
Health-Related Activities
Target Audience:
Professionals and Para-Professionals, Children/Adolescents with Disabilities/SHCN
Unserved or Under-served Populations:
Specific Groups
Primary Target Audience Geographic Descriptor:
State
COVID-19 Related Data:
N/A
