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Project

Improving Access to Care for Children/Youth with Epilepsy and Their Families in Rural and Frontier Communities

Center:

WY-Wyoming Institute for Disabilities, UCEDD

Fiscal Year:

2009

Contact Information:

Lilly Zuniga
[email protected]
307-766-2765

Project Description:

Families living in rural and frontier communities lack an integrated system of care to deliver services and supports that assure the best quality of life for their children who have epilepsy. They face geographic isolation. Travel outside their communities can be hindered by weather and road conditions, while others are faced with extensive travel, often out of state, to access specialty services. Parents and health care providers have limited opportunities for training and education related to this condition. Project Access is a multi-state collaborative (AK,CA, NV, WY) working to improve access to health care and related services for these children.

Keyword(s):

Epilespy, Access to Care, Education. Support

Core Function(s):

Training Trainees, Performing Technical Assistance and/or Training, Performing Research or Evaluation, Developing & Disseminating Information

Area of Emphasis

Health-Related Activities

Target Audience:

Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, Legislators/Policy Makers, General Public

Unserved or Under-served Populations:

Geographic Areas, Specific Groups

Primary Target Audience Geographic Descriptor:

State

Funding Source:

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910

Mailing address:
PO Box 8787
Silver Spring, MD 20907-8787