Supporting Community-based Sytems Change for Children with Special Health Care Needs
Project Description:
Need: Title V CSHCN programs are being asked to move from a direct serve model for a few to an assurance, infrastructure model for all CYSHCN. However, there are no mechanisms to guide states in this effort, allowing them to learn from one another.
Goals: The goal of this study is to develop and pilot a model for assisting stae Title V CSHCN programs in their desire to implement systems change that will:
1. Serve the borad ppulaitoin of CYSHCN rather than narrowly-defined, disease-specific populations;
2. Employ community-based sytesms building strategies such as creating local/regional CSHCN offices, care coordination, coalition building, braided funding, and regional family support structures.
3. Unusual features: A "learning community" model is being applied, whereby state teams learn from one another as they apply a participatory action research method.
Expected benefits: States will design their CSHCN program infrastructure to meet the needs of the broadly-defined CYSHCN population, assuring enhanced comprehensive, coordinated services.
Core Function(s):
Performing Technical Assistance and/or Training, Performing Research or Evaluation, Developing & Disseminating Information
Area of Emphasis
Health-Related Activities, Other - Leadership
Target Audience:
Professionals and Para-Professionals, Family Members/Caregivers, Legislators/Policy Makers
Unserved or Under-served Populations:
Geographic Areas, Rural/Remote, Other
Primary Target Audience Geographic Descriptor:
State, Regional
COVID-19 Related Data:
N/A
