Client, Parent, Professional Partnership Project
Project Description:
NEED: How to better serve an increasingly aging DD
population
GOALS:1. Enhance Provider Capacity to Deliver Medical Servicesto Adults with DD;2.Disseminate Information to Consumers, Parents, and Providers About Special Health Services Available;3.Enhance Knowledge of Family Members and Consumers,Where Appropriate, about Health and LegalIssues Related to Health Care for Individuals with DD
OBJECTIVESA. Promote Family-centered Physician Training Via:1. Conducted a Needs Assessment Survey of Bronxphysicians regarding adults with DD
2. Seminars for family medicine residents conducted byparents and consumers
3. CME (12 credit) course for Bronx PCP physicians,
including self-study and 3 hour seminar/dinner
4. Produced and Distributed to Bronx physicians the Award-Winning Directory of Health Services for Bronx Residents with Developmental Disabilities, now in 3rd Edition (wildly popular with parents and consumers)5. Parent-run core lectures for multidisciplinary trainees: “Breaking the News.â€
6. Hunter Lecture at MMC to Pediatrics Department
Residents and Attending Physicians
B. Educating Family Members through City-wide and BronxConferences
1. Co-sponsored city-wide conferences on aging and
developmental disabilities and NYOMRDD, including the self-advocates 2. Medicaid Managed Care, including videotapes from New Hampshire UCEDD on advocacy
3. Women’s health-care management issues
4. Seizures: Causes, Latest Medicaitons and Treatment Modalities, including Vagus Nerve Stimulation
5. Asthma and developmental disabilities
6. End of Life Care: DNR, Health-care Proxy, Living
Wills
7. Organizing, Planning, and Participating at Bronx
MR/DD Council Family Support Conferences
Core Function(s):
Training Trainees, Performing Technical Assistance and/or Training, Developing & Disseminating Information
Area of Emphasis
Quality Assurance, Health-Related Activities, Employment-Related Activities, Transportation-Related Activities
Target Audience:
Family Members/Caregivers
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas, Urban
Primary Target Audience Geographic Descriptor:
Mulit-County
COVID-19 Related Data:
N/A
