Journal: Comprehensive, multidisciplinary care for fragile X-associated tremor/ataxia syndrome
Product Description:
A holistic, person-centered approach coordinated by the primary care clinician with multispecialty and multidisciplinary collaboration is recommended to address the complex needs of FXTAS patients and their support networks. This highlights the importance of integrated support for patients and caregivers, including addressing end-of-life/palliative care considerations.
Keyword(s):
FXAND; FXPOI; FXTAS; fragile X syndrome, fronto-subcortical dementia/major neurocognitive disorder, fragile X-associated tremor/ataxia syndrome
Product/Publication Type(s):
Peer-reviewed publications in scholarly journals Published/In Press
Target Audience:
Professionals
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COVID-19 Related Data:
N/A