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Product

Caregivers' Perspective on Disclosing the Diagnosis of Autism Spectrum Disorder to their Children

Center:

AR-University of Arkansas Partners, UCEDD/LEND

Fiscal Year:

2026

Contact Information:

Elizabeth Pulliam
[email protected]
501-364-1021

Product Description:

This qualitative study examined how U.S. caregivers disclose autism diagnosis to their children. Sixteen female caregivers participated in semi-structured interviews analyzed using thematic analysis. Four themes emerged: language of disclosure, disclosure as a journey, purpose of disclosure, and process of disclosure. Findings support early, tailored disclosure and highlight how parents use language and metaphors to shape children's understanding of autism.

Keyword(s):

autism spectrum disorder, caregivers, diagnosis disclosure, parents

Product/Publication Type(s):

Conference presentations and posters presented

Target Audience:

Consumers/Families, Professionals, Policymakers, Students

Alternative Format:

To Obtain Copies (URL or Email):

[email protected]

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910

Mailing address:
PO Box 8787
Silver Spring, MD 20907-8787