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Product

Researchers' Roadblocks to Including People with Intellectual and Developmental Disabilities (DD) in Research: Translational Science and/DD Program Leaders Insights

Center:

NY-Rose F. Kennedy Center, UCEDD/LEND

Fiscal Year:

2025

Contact Information:

Karen Bonuck
[email protected]
718-430-4085

Product Description:

We examines researchers' perceptions of barriers to including people with disabilities,especially intellectual and developmental disabilities (PWDDs) in research. Interviews with translational science and DD program leaders revealed key themes: attitudinal barriers (e.g., assumptions about consent capacity), logistical barriers (e.g., accommodation costs), health disparities, and generalizability concerns.

Keyword(s):

translational science, qualitative methods, UCEDDs

Product/Publication Type(s):

Peer-reviewed publications in scholarly journals submitted

Target Audience:

Professionals, Policymakers

Alternative Format:

To Obtain Copies (URL or Email):

COVID-19 Related Data:

N/A

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