Key Facts at a Glance
- What dwarfism is: A broad umbrella term that includes hundreds of different genetic and medical conditions that result in short stature (usually an adult height of 4’10” or less due to medical condition). (Mayo Clinic)
- Most common form: Achondroplasia, which is one of many types of dwarfism. Achondroplasia involves disproportionately short stature and limbs, but many other forms do not. (MedlinePlus)
- A diverse community: People with dwarfism have a rich, vibrant history of culture, advocacy, and community-building, including long-standing leadership through organizations like Little People of America (LPA) and international disability rights efforts.
- Typical health considerations: Depending on the specific type, a person might work with specialists in orthopedics, genetics, neurology, physical therapy, or mobility aids. However, not all people with dwarfism have the same medical needs, and many have typical cognitive development. (Mayo Clinic)
- Lived experience: People with dwarfism lead full, self-directed lives across all aspects of society. Like any disability community, their experiences are shaped not only by medical factors but also by social attitudes, accessibility, and inclusion.
Words Matter: Respectful and Accurate Language about Dwarfism
Recommended/Acceptable Terms
- “Little person” / “Little people” (or “LP”) — commonly used and widely accepted among people with dwarfism. (UNDERSTANDING DWARFISM)
- Person-first phrasing — e.g., “person with dwarfism,” “person of short stature.” (ADA)
- “Dwarf” — medically accurate when referring to the condition (“dwarfism”); Some people accept this term. (Univ PA Arts and Sciences)
- Most importantly: use a person’s name when you know it. Many people prefer not to be labeled by a condition or physical characteristic at all. (LPA Online)
Terms & Phrasing to Avoid
- Avoid the word “midget.” This term is widely considered derogatory and offensive by the community. (LPA Online)
- Avoid condescending, pity-based, or “victimizing” language. For example: “suffers from dwarfism,” “afflicted by dwarfism,” “confined to a wheelchair/short stature,” or implying diminished quality of life simply because of height or condition. (ADA)
- Avoid euphemisms or flowery terms meant to “soften” or “glorify” the condition (e.g., “differently-abled,” “vertically-challenged,” etc.) — these can feel patronizing or stigmatizing. (ADA). “Big/Little” comparisons in titles of stories in the media about dwarfism are overused. Focus on the content of the story or program instead.
- Avoid describing dwarfism as a tragedy or tragedy-based narrative (e.g. “poor little person,” “brave for living with such a condition,” “inspiring for overcoming height”) — unless you’re quoting someone’s personal experience. Overemphasizing hardship can reinforce stigma. (ADA)
Resources to Learn More
Little People of America (LPA) – National support & advocacy organization. (LPA)
Don’t Look Down on Me – 2014 Documentary of Johnathan Novik’s experiences in New York City as a little person.
