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Project

Research: Intellectual and Developmental Disabilities (IDD) Institute Planning Grant Proposal

Center:
Fiscal Year:
2025
Contact Information:
Project Description:
Our proposal aims to establish an Intellectual Developmental Disabilities (IDD) Institute, with a vision to leverage the combined expertise and resources of diverse faculty, staff, and trainees at the University of Rochester (UR). This proposal focuses on integrating shared expertise in research innovation, clinical and community service, interdisciplinary training, and authentic community partnership to support outcomes and full inclusion of individuals with autism and IDD. The future UR IDD institute requires an interdisciplinary framework that fosters collaboration across several UR schools – thereby reflecting a life-course approach to our missions. It will embody a dynamic environment where faculty, staff, trainees and community members collaborate, and where research and clinical practice mutually inform one another to advance the understanding of IDD, ultimately developing solutions to address the challenges faced by the disability community. Self- and family advocates will be crucial partners to IDD specialists to ensure that person-centered approaches are tailored to the unique needs of the disability community in Rochester. The proposal outlines the development of a strategic vision, the establishment of key partnerships, and the formulation of a sustainable funding strategy. Additionally, the proposal supports URMC's strategic plan goals to explore potential avenues for collaboration with external entities, both regionally and nationally, in order to enhance the reach and impact of its initiatives. Our proposal is forward looking, envisioning a future where the UR IDD Institute is a beacon of excellence in IDD research, clinical care, and education; enriching the lives of individuals with IDD and contributing to scientific advancement. Amount Requested: $40,000 Planning Grant Co-Leads: John Foxe, Department of Neuroscience; Suzannah Iadarola, Department of Pediatrics, Developmental and Behavioral Pediatrics; Ania Majewska, Department of Neuroscience; Laura Silverman, Department of Pediatrics, Developmental and Behavioral Pediatrics
Keyword(s):
Adolescent Health, Mental/Behavioral Health – Autism, Clinical Care, Developmental Disabilities, Early Childhood – General, Health Care Transition, Health Equity, Life Course Approach, Maternal Health – General, Social Determinants of Health, Children, Adolescents, and Young Adults with Special Health Care Needs
Core Function(s):
Performing Research or Evaluation
Area of Emphasis
Quality Assurance
Target Audience:
Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, Children/Adolescents with Disabilities/SHCN, Legislators/Policy Makers, General Public
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas, Reservation, Rural/Remote, Urban, Territory
Primary Target Audience Geographic Descriptor:
Single-County, State
Funding Source:
COVID-19 Related Data:
N/A