Improving Shared Decision Making about Cancer Screening for Native American Women with IDD
Project Description:
Our long-term goal is to decrease breast and cervical cancer screening disparities among Native American women with IDD through a culturally responsive and tailored cancer screening and service navigation intervention. In partnership with Native American-serving organizations, and using social cognitive theory (Bandura, 1989), we have culturally adapted a breast and cervical cancer screening intervention for Native American women with IDD, called My Health My Choice (MHMC). Patient navigation is an evidence-based cancer intervention to address barriers to cancer care for many minoritized populations, including screening, diagnosis, and treatment barriers (Krok-Schoen et al., 2016), and has been shown to increase patient self-advocacy (Schaffer et al., 2019). Our current objectives are to implement a new navigation component with the MHMC intervention, conduct feasibility and acceptability tests of the new component, and examine the influence of the new MHMC program (education + navigation) on screening adherence. We have the following aims for this work:
Aim 1: Develop a new peer community navigation component to MHMC. We will train 4 community health educators in peer navigation, create data collection/case management tools, and establish fidelity processes for the new MHMC navigation component.
Aim 2: Pilot test the new MHMC (education + navigation) program among Native American women with IDD (N=30 dyads - woman + support person) Aim 2.a. Following the National Cancer Institute's Patient Navigation Research Program's recommendations (Freund et al., 2008), we will measure outcomes related to participant satisfaction, participant retention, and cancer screening barrier resolution. Aim 2.b. Measure adherence to guideline concordant screening within 3 months following completion of the enhanced MHMC program. We will also measure changes in self-efficacy and knowledge among the women with IDD and their support persons' gains in knowledge, self-efficacy and intent to screen, caregiver involvement, and level of engagement.
Keyword(s):
Native Americans; cancer; health research; community-based research
Core Function(s):
Training Trainees, Performing Research or Evaluation, Developing & Disseminating Information, Continuing Education/Community Training, Other Direct/Model Services
Area of Emphasis
Health-Related Activities, Other - Cultural Diversity
Target Audience:
Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities
Unserved or Under-served Populations:
Racial or Ethnic Minorities, Disadvantaged Circumstances, Limited English, Geographic Areas, Reservation, Urban, Specific Groups
Primary Target Audience Geographic Descriptor:
State
COVID-19 Related Data:
N/A
