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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Project

IEDAT-CUP (IEDAT-03-2018)

Center:

TX-LoneStar, LEND

Fiscal Year:

2024

Contact Information:

Mary Kay Koenig
[email protected]
713-500-7164

Project Description:

Title: IEDAT-CUP (IEDAT-03-2018): Expanded access use of Intra-Erythrocyte Dexamethasone Sodium Phosphate for patients diagnosed with Ataxia-Telangiectasia (AT) who completed the Phase III IEDAT-02-2015 (ATTeST) study and its open label extension Role: Site PI Funding: EryDel S.p.A. July 2022-present Summary: This is an expanded access program developed to provide treatment with DSP using the EryDex system for patients with AT who completed the Phase III ATTeST study and its open label extension.

Keyword(s):

Core Function(s):

Performing Direct and/or Demonstration Services, Performing Research or Evaluation, Continuing Education/Community Training, Other Direct/Model Services

Area of Emphasis

Education & Early Intervention, Health-Related Activities

Target Audience:

Children/Adolescents with Disabilities/SHCN

Unserved or Under-served Populations:

Other

Primary Target Audience Geographic Descriptor:

National

Funding Source:

COVID-19 Related Data:

N/A

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