Self-Advocate Healthcare Video Project
Project Description:
Project Intent: The project team will develop an educational program, including resources, in collaboration with people with I/DD about self-advocacy in health care. The program materials will be available in English and Spanish.
Population(s) of interest: English- and Spanish-speaking people with I/DD and their supporters in the state of Arizona. We will work with partners to investigate in-kind interpretation into American and Mexican Sign Language to be inclusive of the deaf communities in the state.
Impact on DD community: This project aligns with the Inclusion with Engagement and System Access & Navigation goals of the Council as it is promoting active engagement in health care decision making among individuals with I/DD, including those from underrepresented communities. The project specifically aligns with Objective 3 within the Inclusion goal which focuses on decreasing barriers to community life for people with DD through education to promote inclusion.
Data collected to indicate a need to address the problem: In the 2020 ADDPC Arizona Priorities Survey Report, individuals with I/DD identified as a top priority "for medical care providers to talk with me in a way I can understand." More than 75% of these respondents indicated they "want" or "really want" help in stopping others from ignoring their needs. This project builds on Drs. Armin, Bassford, and Williamson's current project to develop and evaluate a Continuing Medical Education (CME) program for primary health care providers about working with patients with I/DD in health care decision making. In this work, Drs. Armin, Bassford, and Williamson developed videos for primary care providers about creating inclusive health care spaces and engaging in supported decision-making. This new project is an extension of the CME program specifically intended for adults with I/DD as its primary audience learning about effectively advocating for the health care they want.
Keyword(s):
self-advocacy
Core Function(s):
Developing & Disseminating Information
Area of Emphasis
Health-Related Activities, Other
Target Audience:
Students/Trainees (long or intermediate trainees), Community Trainees / Short term trainees, Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities, General Public
Unserved or Under-served Populations:
Specific Groups
Primary Target Audience Geographic Descriptor:
Single-County, Mulit-County, State
COVID-19 Related Data:
N/A
