Minority Recruitment Grant
Project Description:
Researchers know that it is important to study all groups who are affected by autism if we are to better understand what causes autism. There may be things that are different about Latino, Asian, and African American families, which will help us understand all the causes of autism. The goal of this project is to better understand why Latino families of children with autism do not participate in bio-medical and genetic research studies of autism. This project is a partnership between USC Center for Phenomic and Genomic Studies of Autism, the USC University Center for Excellence in Developmental Disabilities, and Fiesta Educativa. Eighty (80) Latino families (40 bilingual (English/Spanish); 40 monolingual Spanish) will participate in focus groups, which will help us to understand what they think research is, what their experience with research has been, what kind of research they are most comfortable with, why they are uncomfortable with some types of research, and what would make it easier for them to volunteer for research in the future. This research will help us begin to identify effective ways to build strong partnerships between research scientists and the Latino community and to come up with ideas for more research studies that will help us get more Latino families involved in research. Participants will be asked to be in a focus group, complete surveys and attend educational events.
Keyword(s):
Autism Spectrum Disorder, Biomedical Research, Disparities
Core Function(s):
Performing Research or Evaluation
Target Audience:
Professionals and Para-Professionals, Family Members/Caregivers
Unserved or Under-served Populations:
Racial or Ethnic Minorities
Primary Target Audience Geographic Descriptor:
Single-County
COVID-19 Related Data:
N/A
