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AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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Project

Topical Rapamycin Therapy to Alleviate Cutaneous Manifestations of Tuberous Sclerosis Complex, A Multi-center Randomized Control Trial

Center:

TX-LoneStar, LEND

Fiscal Year:

2015

Contact Information:

Mary Kay Koenig
[email protected]
713-500-7164

Project Description:

This study is a multi-center, prospective, randomized, double-blind, placebo controlled evaluation of the efficacy and safety of a topically applied formulation of rapamycin to cutaneous angiofibromas in subjects with TSC. The primary goal of this study is to evaluate the efficacy of the topical product in patients with TSC. The secondary goal of this study is to evaluate the safety of the topical product for treatment of angiofribromatous cutaneous lesions.

Keyword(s):

tuberous sclerosis, laser therapy, nasolabial fold, facial angiofibroma

Core Function(s):

Performing Direct and/or Demonstration Services, Performing Research or Evaluation

Area of Emphasis

Health-Related Activities

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers, Legislators/Policy Makers, General Public

Unserved or Under-served Populations:

None

Primary Target Audience Geographic Descriptor:

Mulit-County