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Project

A Phase 2 Randomized, Double Blind Placebo-Controlled, Parallel Group Study to Evaluate the Dose and Pharmacodynamic Efficacy of Sialic Acid Extended

Center:

CA-Tarjan Center UCLA, UCEDD

Fiscal Year:

2014

Contact Information:

Eileen Fowler
[email protected]
310-825-4028

Project Description:

The effect of this medication on strength, walking ability and activities of daily living is being evaluated for this fairly rare progressive adult neuromuscular disorder. A label aspect has begun (beginning 6/2013) as patients complete the initial study they are invited to continue in this new phase.

Keyword(s):

Double blind, Individuals with Muscular Dystrophy, Placebo, Research

Core Function(s):

Performing Direct and/or Demonstration Services, Performing Research or Evaluation

Area of Emphasis

Quality Assurance, Health-Related Activities

Target Audience:

Professionals and Para-Professionals, Family Members/Caregivers, Adults with Disabilities

Unserved or Under-served Populations:

Specific Groups

Primary Target Audience Geographic Descriptor:

State