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Product

Data Report: Service Provision for Children Affected by Cornelia de Lange Syndrome

Center:

CT-A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND

Fiscal Year:

2012

Contact Information:

Product Description:

This study focuses on families that are affected by Cornelia de Lange Syndrome (CdLS). In an effort to increase the amount of knowledge we have about children affected by CdLS and develop guidelines for educators and families, an online survey asking parents about their experiences in the education system and coordination with the medical system will establish a baseline of knowledge.

Keyword(s):

Cornelia de Lange Syndrome, CdLS, children, education, medical

Product/Publication Type(s):

Reports and monographs

Target Audience:

Consumers/Families, Professionals, Students

Alternative Format:

Electronic (disc, CD, 508 compliant web posting)

To Obtain Copies (URL or Email):

http://www.uconnucedd.org/pdfs/projects/cornelia/cdls_data_report.pdf

COVID-19 Related Data:

N/A