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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Product

Lives Worth Saving IDD Organ Transplant Regstry

Center:

OH-The Nisonger Center, UCEDD/LEND

Fiscal Year:

2009

Contact Information:

Linda Jones
[email protected]
614-292-5482

Product Description:

IDD organ transplant registry to caputre those people with IDD who were either on the list for an organ transplant or who have been transplanted prior to March 2008. Despite federal regulation requiring all potenital and organ transplant patients be monitored and their outcome data maitained, this community has never been tracked. Transplant outcome data for people with IDD is limited to only those cases whom healthcare professionals have published. Awaiting IRB approval.

Keyword(s):

Product/Publication Type(s):

Electronic Products

Target Audience:

Consumers/Families

Alternative Format:

Electronic (disc, CD, 508 compliant web posting)

To Obtain Copies (URL or Email):

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910