Genetics

AUCD 2013: You're Invited

Promoting Inclusion in an Increasingly Diverse World

This Conference theme promotes our network values of inclusion of all persons with developmental and other disabilities in community life and engages the network in conversation and practices to ensure our work reflects the changing cultural and linguistic landscape in our Centers and States.

Genetics Online Learning Modules

Each module incorporates three cases in which the learner reaches different outcomes based on their decision path. They have been field tested and evaluated by a variety of health care providers and graduate students. These modules may be integrated as part of a lecture or course, given as a learning activity, or provided as a resource. LEND programs are encouraged to consider incorporating the modules to further incorporate genetic counseling into LEND training.

Pediatrician Alert: When Developmental Milestones are Misssed. Rett Syndrome Needs Your Attention, by Alan Percy, MD (AL UCEDD/LEND/DDRC)

Genetics Websites from the March of Dimes Office of the Medical Director

LEND Genetics Meeting

The goal of this December 13, 2006 meeting was to begin a dialogue around how to continue to expand the role of the geneticist and genetic counselor in LEND Training Programs.

Newborn Screening ACTion Sheets

Core Competencies in Genetics Essential for All Health Care Professionals

NCHPEG's publication of the second edition of the Core Competencies (January 2005) continues to provide basic guidance to a broad range of individuals and groups as they plan educational initiatives in genetics and genetically based health care, and includes information about how the competencies have been used by diverse groups since their original publication in January 2001.

Core Principles of Genetics for Health Professionals

Created by NCHPEG, the principles focus on basic biology related to genetics. This document is a companion piece to the Core Competencies that provides additional guidance about the content that should constitute basic instruction in genetics for those in health care.

Family Health History Tool

To help focus attention on the importance of family history, the U.S. Surgeon General in cooperation with other agencies with the U.S. Department of Health and Human Services has launched a national public health campaign, called the U.S. Surgeon General's Family History Initiative, to encourage all American families to learn more about their family health history.

Genetics in the Practice of Speech Language Pathology and Audiology

An interactive learning module focusing on the genetic contributions to speech, language, and hearing disorders. The purpose of the site is to help increase the genetics literacy of speech language pathology and audiology professionals, which will improve the overall quality of service to their clients.

Genetic Awarness Checklist

Created by the Virginia LEND under their LEND Genetics grant from AUCD, this checklist is designed to help individuals and programs facilitate the development of genetically aware policies, practices, and research.