Council on Community Advocacy (COCA)


About COCA

The AUCD Board of Directors has established a number of Councils and Committees that are made up of experts in the field to help the Board address emerging trends and issues, and to facilitate communication across and beyond the AUCD network. The Council on Community Advocacy, also known as COCA, is made up of individuals with disabilities and family members from each University Center across the AUCD network.

COCA assists AUCD to advance policy and practice for and with people with disabilities, their families and communities. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of local University Center Consumer Advisory Committees (CACs), including identifying needs for assistance, providing technical assistance, and disseminating information about exemplary and innovative practices.
  • Envision, actively advocate for, and disseminate information about the next generation of policy and practice that will help make the promise of full participation a reality.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in UCEDD education, research, and service programs and in AUCD functions.
  • Serve as a model and resource for others desiring to infuse the participation people with disabilities and family members into program planning, research, and evaluation.

The Council on Consumer Affairs first convened in the fall of 1994. The Council was formed as a result of AUCD's (formerly AAUAP) increasing recognition of the importance of receiving consistent and ongoing consumer feedback. Start-up activities were funded by the Administration on Developmental Disabilities, through a Project of National Significance entitled "Leadership and Choices." Principle support was provided by Bruce Eddy of AUCD and Carl Calkins of the University of Missouri/Kansas City, Missouri's UCEDD.

The Council leadership structure includes several internal committees and two co-chairs. 1998 By-Laws stipulate that one co-chair must be an individual with a disability, and the other be the family member of an individual with a disability. The three-year, staggered co-chair positions carry with them a slot on AUCD's Board of Directors.

Full Council membership consists of one representative of each UCEDD, designated by that UCEDD's director. The Council continues to strive to meet its long-term goal of full membership.

In 2003-2004, AUCD made a commitment to revitalize the role of COCA within the network. Past President of AUCD, David Johnson appointed an ad hoc COCA Workgroup. This workgroup, chaired by Carl Calkins, solicited feedback from the AUCD network and met several times to develop a renewed vision to strengthen the role of COCA. A final set of recommendations was produced and presented to the board and UCEDD Directors at the UCEDD Directors' retreat May 2-3, 2005 in Chicago, IL.


New on the COCA Web Pages



Voices of ASD Video Library Launched (CO UCEDD/LEND)

We are excited to announce the new Voices of ASD Video Library, a collection of videos that explore the lives of individuals with ASD, with a focus on first person accounts and an exploration of what it means to live with ASD. Our goal is to deepen understanding among individuals with ASD, their families, and communities through the sharing of personal stories. The first video in the series profiles four adults living with autism as they share their personal stories including their challenges, strengths, advice and hopes/beliefs about the future.



Healthy Community Living: Real People. Real Places. (MT UCEDD)

The Healthy Community Living (HCL) project is about all people having opportunities to live well and participate fully in their communities. We had an opportunity to present, via a short video and a variety of sponsored sessions, at the 2016 APRIL Conference in Reno, Nevada. We spoke to disability advocates from Centers for Independent Living and other organizations. Attendees learned how that they could help tell the story of their communities, through sharing photos, videos, and stories with the HCL team. The media we collect becomes public, and will also go to support two curriculums: Community Living Skills and Living Well in the Community. The goal of these curriculums is to improve people's health by providing support, health promotion, education and opportunities for people to succeed by reaching personal goals. These curriculums will encourage participants to explore skills for community living both online and in person with peers and allies.



New Partnership Formed to Prepare People with Intellectual and Developmental Disabilities for Training Law Enforcement Personnel (MD UCEDD/LEND)

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute (MCDD) has entered into an agreement with the Maryland Department of Disabilities to work with community partners in preparing and supporting people with intellectual and developmental disabilities (I/DD) to educate law enforcement personnel on ways to safely interact with citizens who may have disabilities. The MCDD is partnering with three leading disability advocacy groups People On the Go of Maryland, Pathfinders for Autism, and The Arc Maryland.