On Thursday, April 23rd, 2015, Congressmen Chris Smith (R-NJ) and Mike Doyle (D-PA), Co-Chairs of the Coalition for Autism Research and Education, hosted a congressional Hill briefing on "Autism and the Aging Out Crisis." The briefing was held to shine a spotlight on the need for increased federal support for improved transition services for the youth and young adults with autism and their families.
The latest edition in the bi-annual LEND Brief series provides information about how diverse communities view, understand, and experience Autism Spectrum Disorder (ASD) and other neurodevelopmental disabilities. It showcases projects and programs that recognize dimensions of culture, socioeconomics, and language through the services and supports they deliver to children with neurodevelopmental disabilities and families.
Autism NOW created a toolkit and designed it for employers to hire, train, and retain employees with an ASD as well as other disabilities.
The annual meeting of the MCHB-funded Leadership Education in Developmental Behavioral Pediatrics (DBP) Training Programs was hosted by the Children's Hospital of Philadelphia DBP program on March 18-20, 2015. Approximately 35 faculty and 40 fellows from the 10 funded DBP training programs were in attendance at the meeting.
The Utah Regional LEND program is tackling the problem of low identification rates for autism in children under 3 years. Within our five-state LEND, one state, Utah, has been part of the CDC/ADDM autism prevalence studies for several years. Although Utah's prevalence rate is always one of the highest, only 33% of children with autism are identified in medical or educational records before age 3. To change this statistic, URLEND trainees worked across organizational and agency boundaries to create a statewide Network for Early Autism Response.
The intent of this project is to evaluate the effectiveness and efficiency of conducting behavioral treatment for autism through telehealth to reach underserved areas of a rural state. The study is testing whether functional analysis and functional communication training, conducted through telehealth, are effective in reducing disruptive behavior and increasing positive social behaviors in young children with autism spectrum disorders.
Problem-solving Skills Training for Mothers of Children Recently Diagnosed with Autism Spectrum Disorder: A pilot feasibility study
The objective of this study was to see whether mothers of children recently diagnosed with autism spectrum disorder would be receptive to receiving problem-solving skills training (feasibility trial).
ME UCEDD, NH LEND Faculty and Trainees, and Maine DD Council Collaborate on Research Report on Healthcare Access for Individuals with ASD in Maine
The University of Maine Center for Community Inclusion and Disability Studies, Maine's University Center for Excellence in Developmental Disabilities (UCEDD) and also a NH LEND program partner; recently collaborated with the Maine Developmental Disabilities Council on a research report, Accessing Healthcare: The Experience of Individuals with Autism Spectrum Disorders in Maine (2014).
This HRSA R40 Secondary Data Analysis Study examined population-based differences in need for and access to therapy services in children with ASD as compared to CSHCN across two cross-sectional waves of the National Survey for Children with Special Health Care Needs (NS-CSHCN; Centers for Disease Control & Prevention, National Center for Health Statistics).
During the 2015 AMCHP Annual Conference, Massachusetts state team leads presented a skills-based training session on its Considering Culture in Autism Screening curriculum. This interactive, case-based training session focused on about culturally competent screening, evaluation, and referral to intervention services for children with autism spectrum disorder (ASD)/developmental disabilities (DD).
The Autism Society is providing you with this toolkit to complement your National Autism Awareness Month programming and hope you will share it with your partners, collaborators, supporters and constituents. The digital guide contains a wealth of promotional resources and collateral to enhance your National Autism Awareness Month campaign.
2:00pm - 3:00pm EST
The Autism SIG will host a webinar which focuses on autism and co-morbid mental health conditions in children. We will focus on the challenges families face in accessing comprehensive services, as well as community and school based interventions.
3:00pm ET - 4:00pm ET
Location: Virtual Event using Adobe Connect
Celebrate Autism Awareness Month with the Act Early Network and attend the Act Early Network Virtual Networking Event on Thursday, April 23 at 3pm-4pm ET to gain knowledge on effective program methods and strategies that improve early identification.
Act Early Forum Webinar: Text4Baby Mobile Information Service and Act Early Collaboration OpportunitiesThursday, April 16, 2015
2:00pm ET - 3:00pm ET
The Act Early Forum Webinar: Text4Baby Mobile Information Service and Act Early Collaboration Opportunities is scheduled for Thursday, April 16 at 2pm-3pmET.
3:00 p.m. - 4:00 p.m ET
March's AARC Webinar will feature Julie Lounds Taylor, PhD, Assistant Professor of Pediatrics and Special Education at Vanderbilt University and Vanderbilt Kennedy Center Investigator, discussing transition. CME credit is available for all AARC Webinars.
MCHB Update - DMCHWD
From Lauren Raskin Ramos
Autism Awareness Month provides a chance for us to acknowledge the collective accomplishments of MCHB's Autism CARES investments and to reflect on where we can continue to move forward to achieve our shared goals. As programs, we have a lot to celebrate!
National Disability Navigator Autism Spectrum Disorder Fact Sheet
This fact sheet is intended to help Navigators identify what issues are unique to consumers with autism spectrum disorder so that they can assist them as they make decisions related to their healthcare coverage.