A New Path: 2016 PCPID Report to the President Now Available

The report, Strengthening an Inclusive Pathway for People with Intellectual Disabilities and their Families, recognizes the "great strides" made since President John F. Kennedy established a blue-ribbon panel to address the needs of people with intellectual disabilities and their families and PCPID Chairman Jack Brandt notes that, "despite these advances, the trajectory for a person with an intellectual disability remains limited."



Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Programs SENSE Theatre, TennesseeWorks, and TRIAD Share Key Tools for Program Replication

Three project replication guides on the topics of community participation through the arts and transitioning practice to community-based employment are now available through the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities (TN UCEDD, IDDRC, LEND).



Routing a Path for Everyone (KY UCEDD)

A group of students and HDI employee, Darrell Mattingly, led by HDI Disability Program Specialist Anna Bard, set out on a mission last year to map accessibility on campus so that everyone - no matter how they're navigating - can have the information they need to get around campus efficiently. In the fall 2016 semester, UK Facilities Management's Facilities Information Services will unveil the new interactive campus map that includes accessibility attributes and can route an appropriate path depending on a user's needs.



Project SEARCH Southern Miss (MS UCEDD)

"We do not fear the future for we are the future," was the wording featured on the inaugural Project SEARCH Southern Miss Class of 2016 graduation invitation. Seven Hattiesburg High School students participated in an employment skills program at The University of Southern Mississippi (USM) Hattiesburg campus for the 2015-2016 high school year. These student became interns and participated in daily employment training and completed three work internships, all at USM.



A Collaborative Learning Community to Benefit Youth and Young People with Disabilities

By Jessica Queener, Communications and Outreach Manager, Youth Transitions Collaborative and the National Youth Transitions Center

The Youth Transitions Collaborative (YTC) is a community of organizations that share the goal of empowering youth and young people with disabilities to create a self-directed path to adulthood and employment, and to participate in and contribute to society. The National Youth Transitions Center (NYTC) provides a single location in the nation's capital for modeling cross-systems collaboration and improving the transition services available to youth and young people, their families and communities.



Think College Professional Development (MA UCEDD/LEND)

Nearly 100 directors and staff from TPSIDs, as well as Think College staff, came together for networking and professional development opportunities at the annual meeting from July 11 - 13th in Indianapolis, IN. There were updates from the coordinating center and organizational partners, presentations on critical topics, and small group discussions.



Transition of Young Adults with Developmental Disabilities to Adult-systems of Care

Transition of Young Adults with Developmental Disabilities to Adult-systems of Care  Copy to Calendar

Thursday, March 16, 2017
3:00 p.m. - 4:00 p.m. ET
Location: Webinar

Dr. Acharya will review the most recent data about health care transition for adolescents and young adults with intellectual and developmental disabilities (IDD). During the webinar, she will describe standard of care for health care transition and highlight strategies to support the transition to aDr. Acharya is a board certified developmental and behavioral pediatrician and internist at the University of Illinois at Chicago and the director of the Illinois Leadership Education in Neurodevelopmental Disabilities (LEND) Program. Dr. Acharya cares for individuals with developmental disabilities using a lifespan perspective from childhood to adulthood. She is particularly interested in supporting adolescents and young adults with developmental disabilities as they transition to adult-systems of care and beyond.dult-centered health care for this population.

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2017 AAIDD Conference

2017 AAIDD Conference  Copy to Calendar

Monday, June 26, 2017 - Thursday, June 29, 2017
Location: Hartford, CT

The AAIDD Annual Meeting is two full days of educational sessions, exhibits, poster presentations, and networking events. There are also optional half-day pre and post conference sessions. Our Annual Meeting provides researchers, clinicians, practitioners, educators, policymakers, local, state and federal agencies, and advocates with cutting edge research, effective practices, and valuable information on important policy initiatives.

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Got Transition Anticipates ACP Pediatric to Adult Care Transition Tools

In May this year, the American College of Physicians (ACP) will be releasing new transition readiness/self-care assessment and medical summary tools modeled after Got Transition's "Six Core Elements of Health Care Transition."



Got Transition Releases New Resources for Young Adults and Health Care Providers

Got Transition has partnered with the Office of Disability Employment (Department of Labor) and the Youth Transitions Collaborative to create a Transition QuickGuide for youth and young adults (ages 12-30), including those with disabilities and chronic health conditions. The QuickGuide includes information and resources about health insurance, self-care management, transition from pediatric to adult health care, decision-making, and career planning to help young people manage their health care needs in order to make their career goals a reality. A related joint letter from ODEP and HRSA�s Maternal and Child Health Bureau emphasizes the importance of expanding access to health care services and work-based experiences for youth with chronic health conditions and disabilities.



Healthcare Transition For Youth With I/DD

A Policy Brief from ASAN

This policy brief addresses the health care needs of autistic youth as they transition to adulthood. The brief, produced by the Autistic Self Advocacy Network (ASAN) and funded by the Special Hope Foundation, provides recommendations to ensure that young adults with Intellectual and Developmental Disabilities (I/DD) receive consistent access to quality health care, as well as support in taking on adult levels of autonomy with respect to their own health care needs. Please direct any inquiries on this resource to Samantha Crane at


Mentoring Youth with Disabilities

The Need for Mentoring Youth with Disabilities:Youth with physical or mental disabilities represent special populations at risk for juvenile delinquency, victimization, educational failure, and poor employment outcomes and often have multiple, overlapping risk factors. Such youth can and do benefit from mentoring relationships.

The Need for Inclusive Mentoring Programs:Youth with disabilities typically to receive mentoring within disability-specific programs rather than in inclusive, community-based programs that have a diversity of resources that promote education, job readiness, development of employment skills, and/or training in and exposure to entrepreneurial activities.

The Benefits:

  • Youth with disabilities can participate with their typically developing peers in mentoring programs,
  • The community capacity to serve people with disabilities would be enhanced with training, technical assistance, and programmatic supports,
  • There is a social value to providing inclusive supports and services, and
  • Through building the capacity of community-based mentoring programs to serve all youth well-including those with special physical or mental challenges-is more cost-effective than supporting multiple specialty services.


AUCD has developed a factsheet that provides an overview of mentoring youth with disabilities, and gives examples of promising practices from the AUCD network. Click here: factsheet in PDF