Center Focuses on a Vulnerable Population (MD UCEDD/LEND)

How can pro bono attorneys make a difference in the lives of young patients with neurodevelopmental and other disorders of the brain? For Jennifer Brennan, it was by helping an 11-year-old girl with a major brain injury hospitalized at Kennedy Krieger Institute. Her stepmother, who only spoke Spanish, was at her bedside daily but didn't have legal authority to make critical medical decisions.



UCONN UCEDD Hosts Self-Determination Event for Connecticut Practitioners

UCONN UCEDD hosted an all-day training event on Self-Determination and its importance in the education of students with disabilities." Invited presenters were Drs. Michael Weymeyer and Karrie Shogren from the University of Kansas. Over 100 individuals representing school districts across the state of Connecticut, along with advocates, family members, graduate students, and state agencies staff attended the training.



AUCD Celebrates the 17th Anniversary of the Olmstead Decision

Urges Congress to Support States in Implementation of Olmstead

AUCD and its self-advocates, family members, and allies, joins with the greater disability community in celebrating the 17th Anniversary of the U.S. Supreme Court Olmstead vs. L.C. decision (1999), a landmark decision that has afforded hundreds of thousands of people with disabilities the opportunity to move from institutions to their own homes and communities. Seventeen years ago today the Supreme Court ruled that, under the Americans with Disabilities Act, people with disabilities cannot be unnecessarily segregated and must receive services in the most integrated setting possible.



The Center on Disability and Development at Texas A&M University Announces the 2016 PATHS Graduates (TX UCEDD)

The Postsecondary Access and Training in Human Services (PATHS) program at Texas A&M University is honored to announce the 2016 graduates. This year, 21 young men and women successfully graduated from the PATHS certificate program. Family and friends attended the fifth graduating PATHS class. The PATHS certificate program was developed in 2010 by Dr. Cheryl Grenwelge, Director of Transition Service Programs, Associate Professor, Texas A&M AgriLife Extension while working with the Center on Disability and Development (CDD) at Texas A&M University.



First Annual USC UCEDD Community Education Conference

The USC UCEDD hosted it's first annual community education conference at The California Endowment in Downtown Los Angeles. This one-of-a-kind conference offered 18 sessions focusing on the needs of transitional age youth (ages 14-25) with co-occurring developmental disabilities and mental health issues. Over 180 participants from across the state of California attended the event.



First Annual USC UCEDD Community Education Conference

The USC UCEDD hosted it's first annual community education conference at The California Endowment in Downtown Los Angeles. This one-of-a-kind conference offered 18 sessions focusing on the needs of transitional age youth (ages 14-25) with co-occurring developmental disabilities and mental health issues. Over 180 participants from across the state of California attended the event.



Kentucky Peer Support Network Project Fosters Friendship and Inclusion for Students with Disabilities (KY UCEDD)

For students with disabilities, it can sometimes be difficult to engage with their peers, both socially as well as academically. The Kentucky Peer Support Network Project aims to assist in connecting these students with their peers through two initiatives: Peer Support Arrangements and Peer Networks. Both efforts are being piloted in Kentucky schools today, and work in tandem to lay the groundwork for genuine friendships among all students who participate.



ThinkWork! Projects Appear in NPR and PBS Series (MA UCEDD/LEND)

Two projects run by the Institute for Community Inclusion's ThinkWork! recently received national media coverage. ThinkWork! is the hub for the ICI's projects that promote integrated employment for individuals with intellectual/developmental disabilities.



Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Member Erik Carter Serves as Expert Speaker at Congressional Briefing

Changing post-school pathways of youth and young adults with severe disabilities was the focus of Erik Carter's presentation at a Congressional briefing, March 4, 2016, sponsored by the Friends of the Institute of Education Sciences (FIES). Carter, Ph.D., is professor of Special Education and Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) member.



OH LEND Students Present Research Outcomes in Joint Poster Symposium

On April 7, the Leadership Education in Neurodevelopmental and related Disabilities (LEND) Program at Cincinnati Children's Hospital Medical Center and the University of Cincinnati (UC) joined with the Ohio State University (OSU) Nisonger Center LEND to host a joint poster symposium for graduating trainees. This 5th annual event offered trainees, faculty, staff and community members - including Jonathan Dever (R), State Representative for the 28th district of the Ohio House of Representatives - the opportunity to explore a wide range of topics impacting Ohioans with disabilities including health insurance coverage, transition to adult healthcare, and community inclusion. Representative Dever cosponsored The Ohio ABLE (Achieving a Better Life Experience) Act in the House of Representatives.



MIND Institute's Summer Institute on Neurodevelopmental Disorders

MIND Institute's Summer Institute on Neurodevelopmental Disorders  Copy to Calendar

Friday, August 5, 2016
Location: UC Davis Conference Center, Davis California

The annual MIND Summer Institute on Neurodevelopmental Disorders is a one-day conference intended for a wide range of professionals. The focus of the Institute is to help participants keep pace with the latest advances in neurodevelopmental research and the most current standards for best practices in prevention, assessment, treatment, and support services, and increase their knowledge and skills in the areas of developmental disabilities, early identification, service provision, inclusion, transition to adulthood, and other medical, legal, social and policy issues related to disabilities.

Read More >





Got Transition Anticipates ACP Pediatric to Adult Care Transition Tools

In May this year, the American College of Physicians (ACP) will be releasing new transition readiness/self-care assessment and medical summary tools modeled after Got Transition's "Six Core Elements of Health Care Transition."



Got Transition Releases New Resources for Young Adults and Health Care Providers

Got Transition has partnered with the Office of Disability Employment (Department of Labor) and the Youth Transitions Collaborative to create a Transition QuickGuide for youth and young adults (ages 12-30), including those with disabilities and chronic health conditions. The QuickGuide includes information and resources about health insurance, self-care management, transition from pediatric to adult health care, decision-making, and career planning to help young people manage their health care needs in order to make their career goals a reality. A related joint letter from ODEP and HRSA�s Maternal and Child Health Bureau emphasizes the importance of expanding access to health care services and work-based experiences for youth with chronic health conditions and disabilities.



Healthcare Transition For Youth With I/DD

A Policy Brief from ASAN

This policy brief addresses the health care needs of autistic youth as they transition to adulthood. The brief, produced by the Autistic Self Advocacy Network (ASAN) and funded by the Special Hope Foundation, provides recommendations to ensure that young adults with Intellectual and Developmental Disabilities (I/DD) receive consistent access to quality health care, as well as support in taking on adult levels of autonomy with respect to their own health care needs. Please direct any inquiries on this resource to Samantha Crane at


Mentoring Youth with Disabilities

The Need for Mentoring Youth with Disabilities:Youth with physical or mental disabilities represent special populations at risk for juvenile delinquency, victimization, educational failure, and poor employment outcomes and often have multiple, overlapping risk factors. Such youth can and do benefit from mentoring relationships.

The Need for Inclusive Mentoring Programs:Youth with disabilities typically to receive mentoring within disability-specific programs rather than in inclusive, community-based programs that have a diversity of resources that promote education, job readiness, development of employment skills, and/or training in and exposure to entrepreneurial activities.

The Benefits:

  • Youth with disabilities can participate with their typically developing peers in mentoring programs,
  • The community capacity to serve people with disabilities would be enhanced with training, technical assistance, and programmatic supports,
  • There is a social value to providing inclusive supports and services, and
  • Through building the capacity of community-based mentoring programs to serve all youth well-including those with special physical or mental challenges-is more cost-effective than supporting multiple specialty services.


AUCD has developed a factsheet that provides an overview of mentoring youth with disabilities, and gives examples of promising practices from the AUCD network. Click here: factsheet in PDF