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9/1/2015

AAP Policy on Telemedicine and Workforce Shortages

The AAP Committee on Pediatric Workforce developed a policy statement regarding the workforce implications of telemedicine. The statement, "The Use of Telemedicine to Address Access and Physician Workforce Shortages," published in Pediatrics this month, reviews issues including pediatric patient access, barriers, incentives, research, funding and payment. It can be used as a tool to advocate on behalf of telehealth technologies in the pediatric health care arena.

9/1/2015

ADA 25th Anniversary

By Nicloe LeBlanc, Green Mountain Self Advocates

As we celebrate the 25th Anniversary of the Americans with Disabilities Act, I would like to share some thoughts on what the ADA means to me as a person with autism. I want to say first off that I feel very lucky and privileged to have grown up with the ADA. I was only 5 years old when the ADA passed in 1990 and I was attending the Easter Seals preschool program in Manchester, New Hampshire. Being part of the ADA generation has allowed people like myself to access the supports and accommodations needed to be successful in this world.

9/1/2015

Doctoral Student Receives Fellowship to Measure Impact of Center for START Services at the Institute on Disability (NH UCEDD/LEND)

Luke Kalb, a Ph.D. student from Johns Hopkins University�s Bloomberg School of Public Health, recently received the National Institute of Health�s Ruth L. Kirschstein National Research Service Award (NRSA) Individual Predoctoral Fellowship. He will be using the award to measure the impact of Center for START Services� crisis prevention and intervention services on the lives of people with intellectual and developmental disabilities (IDD) and behavioral health needs.

9/1/2015

Mailman Center for Child Development Director Receives American Cancer Society's St. George National Award (FL UCEDD/LEND)

For his longtime devotion to improving the lives of children with cancer and his work to advance science, health policy and education, F. Daniel Armstrong, Ph.D., Director of the Mailman Center, a longtime researcher with the Sylvester Comprehensive Cancer Center, and professor and Executive Vice Chair of Pediatrics at the University of Miami Miller School of Medicine, was recently honored with the American Cancer Society's 2015 St. George National Award.

9/1/2015

National Award Goes to Institute Staff Members (MN UCEDD/LEND)

Derek Nord and Kelly Nye-Lengerman of the Institute's Research and Training Center on Community Living were part of a Minnesota team from the Employment First Coalition who received APSE�s Public Policy Advocate of the Year Award during the 2015 APSE National Conference in Philadelphia, June 23-25.

9/1/2015

RISE-UP (SD UCEDD)

The University of South Dakota (USD) Sanford School of Medicine's Center for Disabilities is partnered with a select and distinguished group of institutions from across the country aiming to solve a vexing, vital and ongoing problem facing health care: the pressing need to reduce health disparities, inequalities and gain greater health care equity among all Americans. That is the objective and mission of a program formally called Maternal and Child Health Careers: Research Initiatives for Student Enhancement Undergraduate Program (MCHC/RISE-UP), more commonlycalled the RISE-UP program.

9/1/2015

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Hosts Positive Development and Parent Stress Reduction Conference

The Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) held its first Parent Stress Intervention Program (PSIP) Conference this summer. Instructors delved into each of the two intervention manuals created by Vanderbilt Kennedy Center researchers to teach parents of children with disabilities how to manage stress. The PSIP manuals "Positive Adult Development (PAD) and Mindfulness-Based Stress Reduction (MBSR)" were developed as part of an intervention research study for stress reduction in parents of children with intellectual and developmental disabilities at the Vanderbilt Kennedy Center. Adapted by principal investigator and VKC director Elisabeth Dykens, Ph.D., and a group of dedicated parent mentors, the curricula is intended to provide tools for learning and practicing these techniques, and for teaching them to parent groups.

8/31/2015

Angela Martin, LMSW from Wayne State University's Developmental Disabilities Institute Works with Disability Rights International in Ukraine (MI UCEDD)

In July 2015 Angela Martin, LMSW from the Developmental Disabilities Institute at Wayne State University was invited by Disability Rights International (DRI) to travel to Ukraine and prepare individuals with disabilities, family members, and service providers to advocate for community-based, person-centered supports. DRI is working to organize individuals with disabilities and family members following its three-year long examination of the inhumane conditions that children with disabilities experience in Ukraine's orphanages.

8/31/2015

Comment on the USPSTF draft recommendation statement on screening for ASD in young children

8/31/2015

Six OHSU UCEDD Interns Explore Careers in Health Care and Disability

This August, the OHSU UCEDD in Portland, OR graduated six interns from our Summer Internship Program. The program, which has been graduating interns every summer for more than a decade, offers a unique career exploration opportunity for high-school or early college students with a demonstrated interest in careers in the disability field. Many of the students experience a disability or have close family members who experience disability. The internship provides hands-on work experience opportunities and also allows students to explore the vast world of health care careers in a clinical setting.

8/27/2015

2015 Autism CARES Meeting Materials Now Available

Presentation slides, discussion group notes, and resources for grantees from the 2015 Autism CARES Meeting are now available for download and printing at the ITAC website.

8/24/2015

AUCD signed onto a CCD letter to Secretary Arne Duncan

thanking him for issuing the final Rule to end the use of the Alternate Assessment on Modified Academic Achievement Standards (AA-MAS)

8/24/2015

Statement on Final Rule to Improve the Academic Achievement of Students with Disabilities

AUCD applauds the Department of Education for eliminating the use of the Alternate Assessment based on Modified Academic Achievement Standards (AA-MAS), or the so-called "2% Rule," opening the door to many more students graduating from high school prepared for college and careers.

8/19/2015

Difficulties of Disability Disclosure

By Emily Ladau

My wheelchair likes to make a grand entrance when I go into a room. It's there, it's large, and it's up to me to show that I'm in charge. Having a visible mobility aid means that when I go to a job interview, I simply can't avoid indirect disclosure about being disabled. My body takes care of disclosing for me, loud and clear.

8/18/2015

National Disability Organization States that Climate Change is a Public Health Issue; Urges Congress to Support EPA Carbon Pollution Rule

The EPA recently released a final Rule that, when fully implemented, will cut carbon pollution from power plants by 32% (below 2005 levels) by 2030. AUCD supports this Rule that will help prevent serious, long-term health consequences for the over 53 million Americans living with disabilities, including increased illnesses; secondary disabilities; and death due to respiratory illness, heat-related stress, insect-borne diseases and increase environmental disasters.

8/17/2015

StateData: The National Report on Employment Services and Outcomes, 2014 (UCEDD MA)

The National Report on Employment Services and Outcomes, 2014. StateData is a product of the Access to Integrated Employment project at the ICI. Funded by the Administration on Intellectual and Developmental Disabilities, the project has described employment and day services and outcomes for individuals with intellectual and developmental disabilities (IDD) for over 25 years. The report provides longitudinal national- and state-level statistics that address the status of employment and economic self-sufficiency for individuals with IDD across the United States. We are proud of this long-standing and reliable data set.