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AUCD - Concurrent Sessions: Group 4

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Tuesday, November 19, 2019 10:30 AM - 11:45 AM

Session Description

AUCD Concurrent sessions are small group discussions, presentations, or panels. They last 75 minutes and are hosted in small meeting rooms throughout the event space.

Featured Presenter(s)



Improving Health Outcomes for People with Disabilities through National and State-level Programs
Jasmine Owens, MPH, Health Scientist, CDC

The Centers for Disease Control and Prevention�s (CDC) Disability and Health Branch seeks to characterize the impact of select programs on the health of people with disabilities. This panel presentation will highlight how CDC leverages the capacity of its partners to evaluate interventions, using examples from national and state-based disability and health programs.

Life After LEND: Family and Self Advocacy Fellows Go from Lived Experience to Leaders to Agents for Change
Fran Goldfarb, MA, MCHES, CPSP, Director, Community Education, USC, Childrens Hospital, UCEDD/LEND

Family and Self-Advocacy fellows face unique challenges leveraging their LEND experiences in post-training advancement. Since their perspectives may not align neatly with a professional leadership track, they may require specialized mentorship. This interactive session, presented by the LEND Family Discipline Network and the Persons With Disabilities Workgroup, will highlight accomplishments of LEND Family/Self-Advocacy graduates and provide opportunities to share accomplishments and strategies for supporting trainees during LEND and beyond.

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Updates and Recent Developments on the Oyate' Circle (USD Center for Disabilities): Addressing American Indian Disability Needs and Issues
Jim W, M.S., Community Engagement Director, Partners for Inclusive Communities, UCEDD/LEND

The USD Center for Disabilities (SD UCEDD) is experiencing great success with the Oyate' Circle, providing training and technical assistance for Tribal members with disabilities and the partners that work with our people. This effort has produced new partnerships on Tribal lands throughout South Dakota. Oglala Lakota Tribal member, Wayne Weston is the Oyate� Circle Coordinator and has had great impact in our Tribal communities.

Leading Change Together: Partnering with Communities of Diversity to Improve Health Outcomes at the Intersection between Diversity and Disability.
Danny Armstrong, PhD, Director, Mailman Center for Child Development, UCEDD/LEND

This panel will describe the structure and progress of a Mailman Center for Child Development initiative with two communities with high levels of ethnic, racial, and socioeconomic diversity to improve health outcomes and reduce health disparities associated with disability and diversity. The presentation will include (a) an overview of the initiative, (b) description of the community engagement process, and (c) description of specific initiatives/outcomes in each community.

Authentic Person-Centered Services: A Grass-Roots Effort to Extend Inclusion into Adulthood
Kelly Wilson, Director & Owner of 4Abilities, LLC., JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND

This session provides shared experiences of a grass-roots effort to provide authentic person-centered services to adults on waiver programs in Colorado. This family-owned Program Approved Service Agency is dedicated to providing services designed to discover each client�s interests and pursue opportunities specific to those interests. In this session, presenters will share successes and lessons learned from the perspective of the person receiving services, a provider and the agency director.

Value Assessments and their potential for discrimination
Sara van Geertruyden, BA, JD, Executive Director, Partnership to Improve Patient Care

Metrics for measuring ?cost effectiveness? or value of treatments often relies on discriminatory methods, like the quality-adjusted-life-year (QALY), which values the lives of people with disabilities as worth less than non-disabled people. Value assessment is increasingly at the center of state and federal discussions about drug pricing. This panel gives an overview of value assessments, their potential for discrimination, and related public policy threats at the federal and state level.

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How Agencies, UCEDDs, and Families are Leading Change Together in Texas Transition
Meagan Orsag, PhD, Associate Director, Center on Disability and Development, UCEDD

Learn how the UCEDDs, Workforce Commission, Family Groups, Educators and Self Advocates are partnering together to instill deeper-level change in the way transition in Texas benefits transitioning youth with disabilities. The presentation will demonstrate how we share the goal of empowering youth and young adults with disabilities to create a self-directed path to adulthood and employment, and to participate in and contribute to the community.

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Tackling Taboo Topics: Reproductive Health for Women with Disabilities
Kara Ayers, PhD, Associate Director, University of Cincinnati UCE, UCEDD/LEND

Society has stigmatized many topics surrounding reproductive health, which stifles the opportunity for all, but especially individuals with disabilities, to talk openly about these issues. While reproductive freedom is a broad spectrum of choices, options, and access, choices are often limited, options are foretold, and access is blocked for people with disabilities. In this session, attendees will learn about issues and potential strategies to increase access to reproductive health.

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Addressing Health and Well-being for Individuals with IDD Transitioning to Adulthood
Laura Hiruma, PhD, Psychologist, Carolina Institute for Developmental Disabilities, UCEDD/LEND

This panel seeks to highlight important aspects of health and well-being among individuals with IDD entering into adulthood addressing both evidence-based information and real-world scenarios. Particular topics that will be covered by our panelists relate to healthcare transitions, social and emotional supports for transition-aged individuals, sexual violence prevention, and sexuality education.

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Integration and Community Inclusion - HCBS
Jennifer Robins, J.D., Trial Attorney, U.S. Department of Justice, Civil Rights Division, Disability Rights Section

In 1999, the Supreme Court held that public entities must provide community-based services to individuals with disabilities in the most integrated setting when 1-appropriate; 2-not opposed, and 3-services can be reasonably accommodated. The Justice Department works to fulfill the promise of the ADA. Olmstead efforts incorporate issues key to the full participation of people with disabilities in all aspects of community life, including living in the community and integrated employment.

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Promising Practices for Engaging Families and Stakeholders
Beth Dworetzky, M.S., , Family Voices

AAP and Family Voices will highlight program evaluation tools and strategies for engaging families/stakeholders in policy and QI projects. The AAP will discuss its National Resource Center for Patient/Family-Centered Medical Home's Promising Practices Initiative for implementing medical home and multi-stakeholder evaluation of its EHDI Chapter Champion's Program. Family Voices will preview its Family Engagement in Systems Assessment Tool for assessing and improving family engagement in systems-level initiatives.

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Encouraging Professional Careers in Disability Practice and Policy: Expanding the Scope and Impact of LEND Training Programs
Hilory Liccini, M.S, Assistant Director for Program Management, North Dakota Center for Persons with Disabilities, UCEDD

TBDAlthough developed for graduate-level training, the individualized training experiences of LEND programs allow for the unique opportunity to involve undergraduates and promote engagement in professional careers in disability policy and practice. This presentation describes the efforts of two programs to integrate undergraduates in LEND programs. The methods and modifications utilized to involve undergraduates in the LEND training activities will be discussed. Lessons learned and future directions will be shared.

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Developing Leaders
Katie Arnold, MS, Director of Community Education, Institute on Disability & Human Development, UCEDD/LEND

Developing leaders is critical to preparing the next generation of professionals, advocates, and change-makers. This session will share information about ways to develop leadership skills and build leaders within UCEDDs, through the AUCD Leadership Academy and through the Sibling Leadership Network. Insight will be shared about leadership strategies, skills, and application into practice.

Strategies for Inclusion in Health and Fitness Services and Programs
Lindsey Mullis, MS, Inclusive Health & Wellness Director, Interdisciplinary Human Development Institute, UCEDD

An array of programs implementing strategies for inclusion in a variety of community-based health promotion settings, from nutrition and fitness to primary care, will be presented. Presenters and attendees will engage in a discussion of approaches to such collaborations, as well as opportunities, barriers and successes.

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