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AUCD - Concurrent Sessions Group 4

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Tuesday, November 15, 2022 10:15 am - 11:30 am

Session Description

Concurrent sessions are 75-minute small group discussions or panel presentations.



Presenters

Climate Health on Children with Neurodevelopmental disabilities

Presenter(s)

Francis Gregory Samonte, , Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND

Our goal is to present new level of discussion in children with neurodevelopmental disabilities based on the effects of climate change. Presently there are no discussions and very little research being done to discuss the potential effects of climate change to children with neurodevelopmental disabilities. Climate health is an important discipline that looks to bridge the potential knowledge gap in these children.


Using statistics to understand the impact of COVID-19 on people with disabilities

Presenter(s)

Shreya Paul, MPA, , INACTIVE-Institute on Disability, UCEDD

The presentation will start by describing the use of the Disability Statistics Curriculum, a curriculum designed to provide information on disability statistics. The second part will discuss employment trends during covid-19 and then describe the reasons for unemployment for both people with and without disabilities during this period. The third part of this presentation will describe the covid-19 vaccination status and reasons for vaccine hesitancy for people with disabilities.


Promoting Health Equity for Adults with IDD: Integrated Mental Health Treatment Guidelines for Prescribers in Intellectual and Developmental Disabilities

Presenter(s)

Micah Peace Urquilla, PhD, , Institute on Disability, UCEDD/LEND

The Integrated Mental Health Treatment Guidelines for Prescribers in Intellectual and Developmental Disabilities was developed to address the need to improve prescribing practices and overcome disparities for people with IDD and mental health needs. This presentation will provide an overview of the Guidelines, its origins, and development. Through the dissemination and presentation of this resource, we hope to promote greater equity for people with IDD and shift toward multisystem interventions.


Health and Equity: what is it like to serve the whole person in the territories

Presenter(s)

Dr. Carol Salas, DR, PR UCEDD Director , Institute on Developmental Disabilities, UCEDD

The social conditions in which a territory resident with disabilities lives greatly influence their chances of being healthy. Join the territories and learn about the magnitude, scope, characteristics, and consequences of the disparities and to examine what it means to be a citizen with a disability in the territories.


Discussion on How People with Intellectual and Developmental Disabilities (IDD) are Defined and Represented by Federal Agencies

Presenter(s)

Catherine Rice, Health Scientist and Branch Chief, Disability and Health Promotion Branch, CDC

Efforts to evaluate the status, support needs and use, and outcomes experienced by people with intellectual and developmental disabilities (IDD) are hindered by variation in the identification of people with IDD across Federal agencies. This session will facilitate discussion among members of the Federal Interagency Workgroup on IDD Administrative Data to better characterize commonalities and differences in the way people with IDD are identified by different agency data collection efforts.


Paths to Equity: Parents in partnership with UCEDDs fostering Black family advocacy for children on the autism spectrum

Presenter(s)

Elizabeth Morgan, PhD, Program Coordinator/Faculty, UC Davis at the MIND Institute, UCEDD/LEND

In this session, we describe how two UCEDDs partnered with Black parents to support advocacy and peer networking for Black families. Three co-authors who are Black parents describe our negative experiences with schools and health care. We also talk about our lived experience partnering with UCEDDs. Participants will leave with several steps to partners with Black families and make change happen.


Equitably Supporting Children of the Opioid Epidemic: Breaking Down Barriers by Training the "Whole" Nation

Presenter(s)

Tai Baker, MS, Program Manager , Wyoming Institute for Disabilities, UCEDD

This panel will highlight the pivotal work of Project SCOPE: Supporting Children of the OPioid Epidemic National Training Initiative (NTI). Team leaders from the NTI and cohort members from five states will discuss curriculum modifications they made in meeting their states?/communities? unique needs and promote health equity for children and families impacted by substance use disorders. Recommendations for future work to support families and communities will also be discussed.


Wrapping up the Center for Dignity in Healthcare: Reducing Healthcare Inequities for People with Disabilities

Presenter(s)

Leah Smith, MPA, Associate Director, University of Cincinnati UCE, UCEDD/LEND

The Center for Dignity in Healthcare for People with Disabilities (The Center) was established from a three-year grant awarded by the Administration for Community Living. The goal of the Center was to identify and reduce life-limiting healthcare inequities for people with disabilities. The Center focused on: prenatal diagnosis, mental health/suicidality, organ transplantation, aging and end-of-life care, and COVID-19. This presentation serves as a wrap-up of the project's tangibles.


Nexus Framework: Core Concepts and Principles for Disability Economic Justice

Presenter(s)

Sumithra Murthy, PhD, MPH, MBBS, Visiting Clinical Assistant Professor, Institute on Disability & Human Development, UCEDD/LEND

This presentation will discuss a disability economic justice conceptual framework, developed within contemporary disability justice philosophies and by linking racial justice, social justice, and intersectionality. The presentation will also discuss how the conceptual framework will help advance transformative action in the realm of disability employment by providing a deeper understanding on what is meant by ?economic justice? in a disability studies context.


In the quest for health equity, is the information on services your UCEDD provides a barrier or a bridge?

Presenter(s)

Elise McMillan, JD, UCEDD Co-Director, Vanderbilt University, UCEDD/LEND

Panelists will share perspectives and experience in creating a collaborative program to address enduring needs related to accessing information and services that enable people with disabilities of all ages and abilities to flourish. This session offers practical ideas to consider from gathering data, developing partnerships, implementing a platform that supports everyone's right and ability to choose options best for them, and how to measure and report progress to stakeholders.


The Revolution of Disability in Higher Education

Presenter(s)

Cassaundra Miller, EdD, CCC/SLP, LEND, PM / Feeding and Swallowing Clinician, Center for Excellence in Disabilities, UCEDD/LEND

Our panel will outline the delivery and content progression of disability in higher education from a ?fix-it? medical model, through the current inclusion movement, to the future of disability being succinctly woven into curriculum and programming using innovative collaborations. Additionally, we will describe the development and purpose of the CED?s micro-credential badges for students and staff. Our provost-accredited badges are designed to integrate disability awareness, inclusion, and advocacy across campus.


Now everybody's equal (just don't measure it!): Quantitative Foundations for Identifying Inequity in Commonly Available Data

Presenter(s)

Brian Barger, , Center for Leadership in Disability at Georgia State University, UCEDD/LEND

Equity conversations are frequently framed at a high "systems" level often leading to unclear or abstract next steps or what community is responsible for changes. This session will provide examples of simple quantitative questions that can lead to small, though discomforting, answers regarding inequities in one's field of study (as opposed to nameless/faceless systems). While technically "quantitative," all information will stay at an accessible descriptive level.


The Power of Sharing Your Story

Presenter(s)

Zoya Awan, Director of Public Affairs, Walmart

Today's discussions of representation are shifting beyond storytelling to story living ,sharing and listening to the unique lived experiences and circumstances of those around us. Understanding your personal story, and how to communicate it, can be a powerful tool to advocate and empower others in our communities. This session will share pointers on better understanding your personal story and explore the importance of effectively crafting and communicating your story.