Tuesday Leading Change Sessions
Choose from two Leading Change Sessions on Tuesday, November 15.
Leading Change Session: Ensuring Access to High-Quality Healthcare
Many people don’t get access to the health services they need. In this interactive session, a panel of leaders will take a deeper dive into the social determinant of health, “health care access and quality," and what it means to have true, quality care. Led by Ilka Riddle, Director of the University of Cincinnati UCEDD, panelists will share tips, research, and experiences in getting timely, high-quality care for all people with disabilities and their families who want and need to live healthy and dignified lives in their communities.
Moderator
Ilka Riddle, PhD is an Associate Professor in the University of Cincinnati (UC) Department of Pediatrics/Cincinnati Children’s Hospital Medical Center (CCHMC) and the Director of the University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) in the Division of Developmental and Behavioral Pediatrics at CCHMC. She received her PhD in Human Development and Family Studies at the University of Delaware, with a focus on disability and illness and its impact on families. Throughout the last twenty years, she has addressed issues such as system improvements for children and youth with developmental disabilities and special health care needs; health disparities, health promotion and disease prevention for individuals with disabilities; healthcare transition, and inclusion of individuals with disabilities across the lifespan in health care settings. She has a particular interest in system change activities to reduce/eliminate healthcare inequities experienced by people with disabilities.
Panelists
Julia Bascom serves as Executive Director at the Autistic Self Advocacy Network. In this role, Julia has worked to build the political power of the self-advocacy movement, deepen ASAN’s connections to other movements for social justice, and lead advocacy efforts to expand home and community-based services, access to health care, and self-determination for people with developmental disabilities. Previously, she did state-level work in her home state of New Hampshire, where she served on the DD council and co-led an inter-agency team to revitalize self-advocacy within the state. Julia edited Loud Hands: Autistic People, Speaking, an anthology of writings by autistic people. She has served on the boards of numerous disability rights organizations over the years, and currently sits on the boards of the Institute for Exceptional Care and Allies For Independence.
Alice Kuo, MD, PhD is the Principal Investigator of the AIR-P and at UCLA. Her research interests include access to and delivery of developmental services, cognitive and language development in young minority children, and services for children and adults with autism and other neurodevelopmental disabilities. In addition to her research, she has been involved in educational programs at several levels, from undergraduate students to post-graduate fellows. From 2014 to 2018, Dr. Kuo was the Director of the Maternal and Child Health Bureau (MCHB)-funded Health Care Transitions Research Network (HCT-RN) for Autism. In 2016, she became the Director of the University of California Leadership Education in Neurodevelopmental Disabilities (UC-LEND) program, and in 2020, she became the Director of the Autism Intervention Research Network on Physical Health (AIR-P). Her clinical practice consists of primary care for patients of all ages with neurodevelopmental conditions. Dr. Kuo received a BA in Biology from Harvard University, her MD from UCLA, her PhD in Educational Psychology with a focus on Early Childhood and Special Education from the Graduate School of Education and Information Studies at UCLA, and her MBA in Healthcare Administration from the University of Massachusetts Isenberg School of Management.
Marc J. Tassé, PhD is a Professor in the Department of Psychology and Department of Psychiatry and Behavioral Health at The Ohio State University. He is also the Director of the Ohio State Nisonger Center, a University Center for Excellence in Developmental Disabilities. Marc has more than 30 years of experience in conducting research and providing clinical services in the field of intellectual disability (ID), autism spectrum disorder (ASD), and related neurodevelopmental disorders (ND). He has significant clinical and research experience working with people with ID/ASD/ND, including people with co-occurring mental/behavioral health concerns. Tassé has been involved in the development of several standardized tests including Diagnostic Adaptive Behavior Scale, Supports Intensity Scale for Children, Supports Intensity Scale for Adults, Nisonger Child Behavior Rating Form, and Quebec Adaptive Behavior Scale. His publications include more than 170 articles in peer-reviewed journals, book chapters, and books. He has given 300+ scientific and professional presentations and invited addresses. Tassé is a Fellow of the American Association on Intellectual and Developmental Disabilities, American Psychological Association, and International Association for the Scientific Study of Intellectual and Developmental Disabilities.
Jim Warne, MS is an Educator-Advocate-Filmmaker and a member of the Oglala Lakota (Sioux) Nation. His mom, Beverly, grew up on Pine Ridge Reservation and is an administrator for South Dakota State University College of Nursing, his dad, Jim Sr., worked in international business finance where the family lived in Thailand and Mexico. His brother, Don is Associate Dean, INMED University of North Dakota. Jim’s wife, Jill, is from the Hoopa Tribe and Ryan is Jim’s son. Jim earned a BS from Arizona State University and a MS from San Diego State University (SDSU). He created and administered continuing Education programs at SDSU Interwork Institute from 1993-2015. He has written over 50 million in grants/contracts for various Universities and Tribal Nations. Currently, Jim is the Community Engagement & Diversity Director at University of South Dakota (USD) Center for Disabilities, Oyate` Circle, Sanford School of Medicine and an Instructor for USD Pediatrics. Jim wrote several grants for University of South Dakota to establish the Oyate` Circle that include partnerships with various state/federal agencies, universities and organizations.
Wesley Witherspoon serves as a representative with self-advocates and their networks and the programs and activities of the USC UCEDDD. He represents the USC UCEDD at local meetings as requested by the Director. He currently serves on the State Council of Developmental Disabilities. With the State Council, Wesley is the chair of the Employment First Committee. He also involved with other committees. In addition, he is the representative for the USC UCEDD for the Self-Advocacy Statewide Network. He also serves on the Community Voter Outreach Committee for the Los Angeles County Registrar-Recorder/County Clerk for voting. He also serves on the Voter Accessibility Advisory Committee for the voting in Los Angeles County. Wesley is committed for the full inclusion of people with intellectual/developmental disabilities. Wesley volunteers with the City of Culver City in August, Special Olympics Summer Games in June, and with the Festival of Books at USC in April.
Leading Change Session: To Live, Move, and Have Fun in the World
Where people live, access to transportation, and recreational opportunities are critical factors in living a full life in the community. Led by Sally Gould-Taylor, Executive Director of the Institute on Disabilities at Temple University, this panel takes a closer look at the social determinant of health, “social and community context,” and the importance of ensuring that people with disabilities receive support in all places where they live, work, learn, and play. Throughout the discussion, government and network leaders from across different sectors will address the vital role of social supports for people with disabilities and offer tangible recommendations for more civic and community participation.
Moderator
Sally Gould-Taylor, PhD (she/her), is the Executive Director of the Institute on Disabilities (PA UCEDD) at Temple University. She is an Associate Professor of Research in the College of Education and Human Development, Department of Teaching and Learning. Sally holds a PhD in Urban Education with a focus on Anthropology of Education and has taught at Temple since 2012. During her time at the Institute, Sally has led a wide range of projects designed to authentically include people with disabilities as partners and co-researchers. Her work builds on Community-based participatory research (CBPR) in diverse fields of human services, disability, and education. Her research examines phenomena associated with identity and power to address the legacy of racism and ableism that exists within the U.S. education system and disproportionately impacts students living at the intersections of marginalized racial and ethnic identity and disability. Currently, Sally serves as the Principal Investigator for multiple interdisciplinary research, evaluation, and community service projects utilizing a social justice lens.
Panelists
Kelly Buckland is a person with a disability who has been actively involved in disability issues since 1979. Kelly graduated from Boise State University with a B.A. in Social Work and Summa Cum Laude from Drake University with a Masters in Rehabilitation Counseling. Kelly has been honored with numerous state and national awards, including the University of Idaho President’s Medallion, the United Vision for Idaho Lifetime Achievement Award, the Hewlett-Packard Distinguished Achievement in Human Rights Award, and induction into the National Spinal Cord Injury Hall of Fame. Additionally, Kelly has a long history with the National Council on Independent Living (NCIL). He has served on numerous NCIL Legislative and Advocacy Subcommittees and other standing NCIL committees, the NCIL Governing Board since 1998, as NCIL Vice-President from 2001-2005, and as NCIL President from 2005 to 2009. Kelly retired as the Executive Director of NCIL in July 2021.
Jeremy Buzzell began his career as a Presidential Management Fellow and later a Legislative Fellow to Senator Ted Kennedy, with whom he worked on disability policy. In 2004, he was appointed to the DOE Office for Special Education and Rehabilitation Services where he oversaw implementation of the department’s assistive technology program. He later served as the Branch Manager for Disability for the Transportation Security Administration (TSA) within the U.S. Department of Homeland Security. There he was responsible for outreach to the disability community, policy development, training, and civil rights complaints regarding accessibility of TSA checkpoints at airports across the United States. Most recently, Buzzell served as a Program Specialist to the Chief of Support Operations at the Library of Congress. Buzzell believes his experience with TSA and the Library of Congress will serve him well at the Park Service when it comes to adapting Section 504 and the accessibility standards in the very diverse context of outdoor recreation and preservation.
Jeiri (“Jaydee”) Flores is a disability rights advocate who shares her unique perspectives as a person with a disability to Strong Center for Developmental Disabilities training, community service, research and policy efforts. She provides insights regarding inclusion, citizenship, disability intersectionality, and challenges that remain unaddressed by society.
Ethan Handelman is the Deputy Assistant Secretary for the Office of Multifamily Housing Programs at the U.S. Department of Housing and Urban Development. He was appointed in February 2021 by the Biden-Harris Administration. The Office of Multifamily Housing Programs administers the Federal Housing Administration mortgage insurance program for multifamily properties and oversees more than 23,000 assisted properties, including affordable housing for the elderly and persons with disabilities. Approximately 2.6 million families find housing in the Multifamily’ s portfolio of 30,400 properties, which are found in every state and some U.S. territories―urban, suburban, and rural areas. Prior to joining HUD, Ethan was a Senior Policy Analyst at the Federal Housing Finance Agency in the Office of Housing and Community Investment, which oversees the affordable housing mission activities of Fannie Mae, Freddie Mac, and the Federal Home Loan Banks. There he wrote the amendments to the housing goals for the Federal Home Loan Banks, worked on the Duty to Serve program, and other affordable housing policies.
Ashley Ogbonna-Salmon, MPH serves as a Research Associate at the Center for Leadership in Disability at Georgia State University. In this role, she supports the Center’s research and dissemination efforts. She has experience in project management, and specifically in the management and analysis of data collected from robust, multi-site projects. Ashley has expertise in database design and management within Excel, SAS, and R Studio; non-parametric and quality control analyses, and the development and dissemination of statistical graphics and accessible data visualizations.
%20(1).png)
