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AUCD - Concurrent Sessions Group 3

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Tuesday, December 8, 2020 1:45 PM - 3:00 PM

Location: Virtual

Session Description

Concurrent sessions will take place as pre-recorded presentations during specific times on Monday and Tuesday of the virtual conference. Concurrent presentations will be a pre-recorded, captioned video but will have an option for attendees to "chat" with the presenters during the presentation. More information about how to access the concurrent presentations on the virtual platform and "chat" with presenters will be shared with registered, virtual conference attendees


Puerto Rico UCEDD and Iowa LEND Training Collaboration: Building leaders and capacity in behavior analysis and challenging behavior


Dianne McBrien, MD, Medical Director, CDD and LEND Director, Center for Disabilities and Development, UCEDD/LEND

Presenters from Iowa's LEND and Puerto Rico's UCEDD will outline the components and implementation of their 5-year training collaboration. They will describe the needs in Puerto Rico for training in behavior analysis, the development and progression of the collaboration, the clinical training program and outcomes, the steps taken to build sustainable capacity for training in Puerto Rico, and the cultural immersion component of the project to train Iowa trainees.

Leading System Transformation to Consider All People: How UCEDDs are Leveraging National Initiatives to Influence Change


Jennifer "Jenny" Turner, LCSW, Senior Research Associate, University of Missouri, UCEDD/LEND

UCEDDs play a dynamic role in driving and supporting system transformation. This presentation will highlight the role and strategies of five UCEDDS in integrating the Charting the LifeCourse framework to enhance policies and practices and effectively engage stakeholders to drive policy and practice change. NASDDDS will explore the intersection with key national initiatives, including how UCEDDS can effectively partner with cross system agencies for maximum impact.

Universal Design in Worship: Perspectives of Individuals with Disabilities and Congregational Leaders


Erik Carter, Professor, Vanderbilt University, UCEDD/LEND

What does "accessible worship" really mean? What are the barriers and tensions that keep faith communities from reflecting on and refining worship practices? What are promising approaches for widening congregational welcome? Through interviews with people with disabilities and church leaders, this study identifies (a) essential dimensions of accessible worship and (b) promising pathways for spurring renewal of worship practices. Implications for individuals, congregations, and service systems will be addressed.

Accessibility: Teaching about Accessibility and Inclusion within LENDTraining Program.


Pamela Viggiani, PHD, LMSW, Discipline Coordinator, Strong Center for Developmental Disabilities, UCEDD/LEND

This proposal illustrates the importance of accessible and inclusive environments by describing an activity that is part of UR LEND's curriculum called Accessibility. This activity provides space for LEND trainees from various disciplines to gain insights into issues of accessibility and how these issues impact the lives of peers and colleagues with disabilities as well as individuals with disabilities who they may interact with in a variety of practice settings.

Promoting Equity for Young Adults with IDD-MH and their Families in Research


Jessica Kramer, PhD, Associate Professor, University of Florida

Research historically harmed and/or excluded people with IDD and mental health service experiences (IDD-MH) as a consequence of erroneous assumptions regarding the abilities and needs of people with IDD-MH. This marginalization is further exacerbated by discrimination associated with race, ethnicity, and gender. This panel will provide information to address barriers, understand historical harms, and promote equity for diverse people with IDD-MH and their families in research.

Building Capacity to Improve Adult Healthcare for Patients with Intellectual and Developmental Disabilities: Developing Curricular Modules for Medical Professionals


Deborah Spitalnik, PhD, Professor; Executive Director, The Boggs Center on Developmental Disabilities, UCEDD/LEND

This presentation will share a tiered curriculum for educating adult healthcare providers about issues unique to patients with intellectual and developmental disabilities and strategies for providing appropriate care. The curriculum consists of two modules with three components each: a Grand Rounds presentation, a case-conference presentation, and a panel discussion. The curricular resources, their development, and dissemination strategies will be described in this session.

The role of culture in person-centered practices


Alixe Bonardi, MHA, OTR, Senior Policy Specialist, Eunice Kennedy Shriver Center, UCEDD/LEND

What does culturally competent person-centered practice look like? In this session, a panel of presenters who bring a diverse array of personal and professional experiences will discuss various elements of cultural competence and how to incorporate them in person-centered practices.

The Center for Dignity in Healthcare: Reducing Health Inequities and Addressing Medical Discrimination Experienced by People with Developmental Disabilities


Chithra Adams, PhD, Director of Evaluation, Interdisciplinary Human Development Institute, UCEDD

The Center for Dignity in Healthcare seeks to reduce health inequities and medical discrimination experienced by people with disabilities. Attendees will gain an understanding of a theoretical framework and methodological strategies that were applied by the team with eight collaborative partners to summarize current research and policy to guide the development of equity materials for use in healthcare settings. Findings from our gap analysis will also be shared.

Creating Infrastructure in the U.S. Virgin Islands for Children with Special Medical and Developmental Needs: Lessons Learned


Robert Fifer, Ph.D., Director of Audiology/Speech Pathology, Mailman Center for Child Development, UCEDD/LEND

In 2017, the University of Miami was awarded a HRSA grant that focused on provision of Zika-related health care in the U.S. Virgin Islands where resources for children with special health care needs, medical and developmental, were essentially non-existent. This presentation will detail how health care infrastructure could be established with limited or no appropriate resources. We will address critical components, critical partners, and sustainability of the infrastructure.

A State Mobilizing to Provide Equitable Healthcare for People with ID/DD and Complex Medical Conditions During a Pandemic


Ashley Falcon, LCSW, , Mailman Center for Child Development, UCEDD/LEND

The COVID19 pandemic created a national healthcare crisis, especially for the disability community. State policies to distribute limited resources such as ventilators led to discrimination against people with disabilities. In many states, disability rights leaders filed lawsuits and fought to have their voices heard. In contrast, Florida's statewide disability organizations helped develop the crisis standards of care policy and related training for healthcare providers.

Community College Pathways to Careers Demonstration Sites: Promising Approaches to Integrating Academic and Career Development for Students with Disabilities


Janet Brown, Policy Advisor, Office of Disability Employment Policy

The Office of Disability Employment Policy (ODEP) and staff from the Community College Pathways to Careers grants share strategies for improving education and employment outcomes for students with disabilities. Onondaga Pathways to Career (OPC) at Onondaga Community College and Universal Pathways to Careers (UPEP) at Pellissippi State Community College will share new approaches to UDL training/certification; student learning contracts, college bridge programming and work-based learning.

Capacity Building to Foster Equitable Access to Healthcare


Catherine Kanter, MS, CCC-SLP, Speech-Language Pathologist, Waisman Center, UCEDD/LEND
Danielle Reed, Director of Community Services, Center for Human Development, UCEDD/LEND
Learn about collaborative, interdisciplinary programs in Wisconsin and Alaska that build workforce capacity for improving and increasing access to care for individuals with disabilities. The Waisman Center has conducted training, developed the Augmentative and Alternative Communication (AAC) Partnership Program, and developed ECHO AAC. The UAA Center for Human Development has implemented the ECHO model with a variety of topics as a way to increase workforce capacity in an interdisciplinary environment.

Cultural Competency to Promote Diversity "Equity" and Inclusion: Examples from the Field


Jenean Castillo, PhD, LEND Program Director, Westchester Institute for Human Development, UCEDD/LEND
Lindsey Mullis, MS, Inclusive Health & Wellness Director , Interdisciplinary Human Development Institute, UCEDD
There is increased attention on health disparities in the disabilities field. The New York Community of Practice in Cultural and Linguistic Competency in Developmental Disabilities will highlight examples of cultural competency in action pre/post COVID.The Kentucky Inclusive Health Collaborative will highlight strong partnerships with Kentucky's Department of Public Health to support professionals on inclusion, universally designed programs and resources, and cultural competency to positively include disability and its intersections.

Employment Access and Equity


John Andresen, MEd, Mr., Indiana Institute on Disability and Community, UCEDD
Amanda Buncher, PhD, Research Fellow, University of Cincinnati UCE, UCEDD/LEND
Nicole LeBlanc, Disability Rights Activist, Vermont Leadership Education in Neurodevelopmental Disabilities, LEND
This combined concurrent presentation will introduce attendees to the basics of employment advocacy, outcomes and future directions of Project SEARCH, and a discussion of how policy impacts employment equity for individuals with IDD across the lifespan.