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AUCD - Poster Symposium 6B: Family Involvement, Disability Studies

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Tuesday, November 19, 2019 3:00 PM - 4:45 PM

Location: Congressional B

Session Description

All posters for the AUCD Conference will be presented throughout Monday and Tuesday in a series of Poster Symposia that run at the same time as concurrent sessions. During these 75 minute poster symposia, 12-15 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator, poster authors will be asked to provide a very brief introduction of their poster, and then attendees will be free to move about the room to speak with poster presenters directly for the remainder of the session. Attendees are also welcome to move between symposia rooms and view posters on other topics. Conference posters submitted ahead of time are also available electronically in the conference app and linked below.


Sexuality and Healthy Relationship Education for Parents and Caregivers
Elizabeth Walling, BA, , Center for Excellence in Disabilities, UCEDD/LEND

The purpose of this training is to provide parents and caregivers of children with developmental and intellectual disabilities comprehensive sexuality education. The training consists of a base module and supplemental modules designed to meet the varying and specific needs of participants� children. The goal of the training is to provide current, evidence-informed sexuality education, developmentally appropriate talking tips, resource materials, and information and support as their child grows.

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Family Engagement in Development of the Individualized Family Support Plan (IFSP)
Meaghan Foster, B.S. Diagnostic Genetic Sciences, Family Trainee, Institute on Disability, UCEDD

New Hampshire Family Voices and Special Medical Services initiated this research project to understand what�s going well with the current IFSP process and how it might be improved to increase family engagement.

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Factors influencing low prevalence of neurodevelopmental disabilities among Hispanic/Latino children
Jennifer Hall-Lande, PhD, Researcher/Psychologist, Institute on Community Integration, UCEDD/LEND

This original research examines reasons for lower prevalence of neurodevelopmental disabilities (NDD) among Hispanic/Latino (H/L) children as compared to white children using a large nationally representative data set. Findings reveal that while H/Ls born in the U.S. have lower rates of NDD than whites, H/Ls who were not born in the U.S. have even lower probability of NDD than H/Ls who were born in the U.S.

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The Relationship Between Self-Reported Social Responsiveness and Social Anxiety in Young Adults with Autism Spectrum Disorder
Danielle Mund, , Tarjan Center UCLA, UCEDD

This study examines the relationship between levels of social anxiety and ability to perceive (social awareness) and interpret social cues (social cognition) among young adults with ASD. Understanding the connection between young adults� social anxiety and difficulty decoding and deconstructing their social world, will inform clinicians and researchers about the importance of focusing on these social deficits during interventions intending to reduce social anxiety.

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Fostering Resilience and Empowerment through Family-Centered Care in the Diagnosis of Autism Spectrum Disorders: A Guide for Professionals
Kathleen Becker, LEND Trainee, Center for Disabilities Studies, UCEDD/LEND

This presentation details an executive summary covering the psychosocial and situational factors that affect parents, caregivers, and siblings during the diagnosis of Autism Spectrum Disorder (ASD). Findings led to the creation of a guide for professionals on supporting resilience, empowering, and providing family-centered care to families of young children recently diagnosed with ASD.

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Responding to Two-Generational Approaches for Children Diagnosed with Neonatal Abstinence Syndrome and their Families in Rural Settings
Lesley Cottrell, PhD, Professor, Center for Excellence in Disabilities, UCEDD/LEND

Maternal Opioid Use and Neonatal Abstinence Syndrome (NAS) incidence rates have significantly increased, particularly in rural areas, over the past five years. Health care and follow up community care services are highly varied among providers and somewhat reactive. The Rural IMPACT collaborative was originally developed to establish communities of practice in rural settings. This presentation will provide information about the first communities of practice focused on NAS and family needs.

Access:Ability Scholars -- An Undergraduate Disability Studies Co-Curricular Enrichment Program
Laura Eisenman, , Center for Disabilities Studies, UCEDD/LEND

This poster describes the design, implementation, and evaluation of a new undergraduate enrichment program. The program aims to engage students, from their first semester through graduation, in exploring disability from multiple perspectives. Students are encouraged to integrate academic learning and real-world experiences, build connections with a diverse group of disability scholars and advocates, and consider how they can �embrace disability and possibility.�

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The Relationship between Social Anxiety and Empathy in Young Adults with Autism Spectrum Disorder
Leila Solouki, , Tarjan Center UCLA, UCEDD

This study examines the relationship between social anxiety and empathy among young adults with ASD from a sample presenting for an evidence-based social skills intervention (PEERS�). Results suggest that young adults with ASD who report greater social anxiety demonstrate lower levels of empathy.

The psychosocial well-being of middle-aged and older family caregivers of sons/daughters with developmental disabilities
Jen Wong, Ph.D., Assistant Professor of Human Sciences, The Nisonger Center, UCEDD/LEND

Using National Survey of Midlife in the United States (MIDUS-II), this study investigates the effects of caregiver types on psychosocial well-being. Regression analyses revealed that caregivers of sons/daughters with developmental disabilities exhibited the lowest levels of environmental mastery and perception of generativity, highest level of negative affect, and older subjective age as compared to other family caregivers. Study findings can help inform outreach programs and services aimed at family caregivers.

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A New Resource - Fabric Not Fringe: Weaving Family Involvement Strategies into Professional Disability-Related Training Programs
Fran Goldfarb, MA, MCHES, CPSP, Family Support Discipline Director, USC, Childrens Hospital, UCEDD/LEND

LENDs have pioneered family involvement in professional training. The LEND Family Discipline Network has aggregated the collective knowledge and experience of the LEND network in eight types of family involvement in a new resource. This poster shares the background and value of the Family Involvement White Paper. The audience will learn and develop new ways to enhance or increase family voice and leverage family leadership in their work.

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Community Education Workshops: A Program to Bridge Gaps in Care for Families with Autism Spectrum Disorder in Alabama
Christian Clesi, MA, , Civitan International Research Center, UCEDD/LEND

The UAB Regional Autism Network hosts Community Education Workshops to provide information and resources associated with care for an individual with Autism Spectrum Disorder. The Workshop format aims to decrease socioeconomic and psychosocial barriers to care, by connecting medically underserved populations to evidence-based intervention strategies and providers, which allows caregivers to implement interventions at home while waiting to connect to the system of care.

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Lessons learned by listening, engaging, including, measuring, and responding to the Family Voice in LEND; Leading collaborative change together
Kathryn Loukas, OTD, MS, OTR/L, FAOTA, Maine LEND Training Director, The Maine LEND Program

The Maine LEND program intentionally involves families as leaders in three major components of the curriculum; The Family-led program; The Family Interprofessional Team (FIT); and the Parent Group associated with the Transdisciplinary Toddler Playgroup. This poster will describe the planning, methods of inclusion, implementation, and outcomes associated with these programs. Six themes of collaborative family professional partnerships will be integrated with family survey results elucidating lessons learned.

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