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AUCD - Concurrent Sessions: Group 5

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Tuesday, November 19, 2019 1:30 PM - 2:45 PM

Session Description

AUCD Concurrent sessions are small group discussions, presentations, or panels. They last 75 minutes and are hosted in small meeting rooms throughout the event space.

Featured Presenter(s)



Successes and Challenges for the Self-Advocate Experience in LEND: Voices from the Pacific-West LEND Leadership Consortium
Kathleen Lehman, PhD, Associate LEND Director, Center on Human Development & Disability, UCEDD/LEND

In 2010, the first self-advocate trainee was recruited by a LEND Training Program. Since then, several LEND programs have provided LEND training to self-advocates. Nearly 10 years later, a panel of Pacific-West LEND Leadership Consortium members and self-advocates who have completed LEND training will share their experiences of successes and challenges. Topics include recruitment, eligibility criteria, support and mentorship, integration with clinical trainees, curriculum adjustments, distance learning, and long-term outcomes.

One UCEDD's Journey to Lead Change for Supports and Inclusion of LGBTQ+ Individuals
Martha Walter, PhD, Psychologist, Waisman Center, UCEDD/LEND

We will provide an overview of a quality improvement initiative designed to improve the knowledge and comfort of staff related to LGTBQ+ individuals. Over a 12-month period staff developed trainings and implemented improvements to the work space to be reflective of inclusive practices. We will discuss the process of developing the workgroup and the outcomes of trainings that were provided to increase knowledge and comfort with LGTBQ+ individuals.

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Respite Employer Engagement Initiative and Building the Trained Provider Base and Direct Care Workforce with Respite Service Learning Certificate Programs.
Kim Falk, BSBA, Respite Employer Engagement Coordinator, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND

Respite support for working family caregivers is vital over the next 30 years. The aging of the baby boomer population will impact the availability and increase the need of respite providers. The Respite Employer Engagement Initiative demonstrates how to connect with working caregivers at their workplace, while the Respite Service Learning Certificate Program provides needed training for respite providers and builds the respite direct care work force.

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Leading Change Together to Prevent Abuse and Promote Sexual Health for People with Intellectual and Developmental Disabilities
Julie Atkinson, MS, Research Professional, Center for Human Development, UCEDD/LEND

In this innovative session, the Abuse and Neglect SIG and the Sexual Health SIG will convene to address abuse prevention and sexual health promotion for people with intellectual and developmental disabilities. Leaders from six UCEDDs, community practitioners, and disability community advocates will describe promising programs that balance safety and aspects of sexual health. Panelists will discuss program frameworks, strategies, partnerships, and implementation. Interested conference attendees are invited to join us.

Building Cross-Cultural Collaboration across LENDs: Leading Change Together
Christine Vining, PhD., CCC-SLP, NM LEND Faculty, Vermont Leadership Education in Neurodevelopmental Disabilities, LEND

As a distance accessible program, VT LEND has not only accessed trainees from states and territories beyond Vermont, but has added two American Indian faculty from LEND programs in Kansas and New Mexico. This presentation will describe the collaboration, strategies to diversify the program and impact of the experience, including more engagement with local American Indian communities.

Taking Charge of My Health Care Toolkit: For people with Intellectual and Developmental Disabilities and those who support them
Erin Taylor, B.S. Communication Studies, Health Promotion and Outreach Coordinator, Oregon Institute on Development & Disability, UCEDD/LEND

The "Taking Charge of My Health Care Toolkit" aims to increase the skills of people with intellectual and developmental disabilities (IDD) to manage and advocate for their health and health care. It can also be utilized by families, caregivers, support workers, teachers, health care providers, etc. The toolkit is comprised of 9 modules and includes corresponding worksheets, PowerPoints, and videos, as well as a Leader?s Guide and Fact Sheets.

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Cultural Perspectives on Disability: Implications for Health and Human Rights
Mirian Ofonedu, Ph.D., LCSW-C, Training Director , Kennedy Krieger Institute, UCEDD/LEND

Understanding disability across culture and how different cultural aspects inform the disability experience is necessary for providing leadership that advances inclusion of people with disabilities at all systems level.

Training and technical assistance impact childcare readiness to identify development delays: Findings from a study of training and implementation support
Gail Chodron, PhD, , Waisman Center, UCEDD/LEND

Early identification of autism and other developmental disabilities is an important step for ensuring equitable and timely access to health and educational pathways. This session reports on a study of developmental monitoring training and implementation for childcare providers. Findings on pre-post training impact and outcome predictors, retention/loss of training impact over time, and implementation enablers/barriers are presented. Implications for community training and technical assistance to improve early identification are discussed.

Florida Family Leaders' Network (FFLN), Early Childhood Personnel Center (ECPC), and Division for Early Childhood (DEC) - Family Engagement Models
Angela Miney, BA, Family Partner, University of Florida Pediatric Pulmonary Center

Learn about the FFLN, a Family Leader/Self-Advocate-led, state-supported initiative. The FFLN supports collaboration and advocacy among Florida Family Leaders/Self-Advocates and key stakeholders involved in the care of CYSHCN. An FFLN Family Leader participated in the ECPC/DEC Family Cohort 1 to develop and implement an action plan, which supports the work of Family Resource Specialists. Together, we are building a model for family engagement.

Including People with Disabilities in Research
Christine Brown, Clinical research assistant, The Nisonger Center, UCEDD/LEND

This panel will consider the challenges and prospects for the inclusion of people with disabilities in health-related research. We will share findings from two projects: 1) a participatory action research aimed at improving the health and function of people with intellectual and developmental disabilities; and 2) a study that explored the views of people with disabilities about participation in precision medicine research, a newly emerging model for healthcare.

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Innovations in Interprofessional Training
Toby Long, PhD, Professor, Georgetown University Center for Child & Human Development, UCEDD

Two innovative programs promoting interprofessional learning will be presented. GEORGE, an inter-professional, inter-university program trains professional students in an early-intervention curriculum meeting a variety of standards and competencies through on-line, face-to-face, and team-based practicum programming. The Interprofessional Event in Disabilities is a required interprofessional exercise for health sciences students that provides opportunities for collaboration with self-advocates. Following program descriptions, discussion will take place on program benefits and sustainability challenges.

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Leading Change Together:  Improving Healthcare for People with I/DD through Accessible Measurement and Improved Access to Data and Education
Rosemary B. Hughes, Ph.D., Senior Research Scientist, University of Montana Rural Institute, UCEDD

People with intellectual and developmental disabilities (IDD), including those with dual diagnosis or rare genetic conditions, face challenges accessing healthcare and participating in research. This session will identify factors associated with access to healthcare and discuss how to adapt standardized health measures. Because primary care physicians and specialists are often the gatekeepers of healthcare, the session will also share an innovative approach to the education of providers using online tools.

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Supporting Social Inclusion, Self-Determination, and Inclusive Living on College Campuses
Carol Laws, PhD, Clinical Associate Professor, Institute on Human Development and Disability, UCEDD

Panelists will share: how social work values can support social inclusion; the value and benefits of friendships and community engagement; how peer circles of support can facilitate self-determination; and, fostering inclusive living for students with I/DD in post-secondary education. Participants will leave with enhanced knowledge on the importance of the full inclusion of these students in campus life and ideas to lead change within their own institutes of higher education.