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AUCD - Concurrent Sessions: Group 2

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Monday, November 18, 2019 2:00 PM - 3:15 PM

Session Description

AUCD Concurrent sessions are small group discussions, presentations, or panels. They last 75 minutes and are hosted in small meeting rooms throughout the event space.



Featured Presenter(s)

 



Presenters

Sharing Lessons from a Citywide "Women's Disability Leadership, Inclusion & Advocacy Training Series": A Best Practice Primed for Implementation

Presenter(s)

Debbie Fink, M.A., Director, Community Outreach & Impact, RespectAbility

Respectability launched an unprecedented, six-part empowerment training series designed for women with disabilities and their allies in New York City, called Women's Disability Leadership, Inclusion & Advocacy Series. In this AUCD training, learn about this groundbreaking trainings' framework, curricular content, structure, and how to replicate such trainings in your community. This inaugural training was funded by New York Women�s Foundation and Coca-Cola Foundation.

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The Role of Psychological Flexibility in Supporting Individuals with Disabilities

Presenter(s)

Ashley Greenwald, PhD, BCBA-D, LBA, Director, Nevada PBIS, Nevada Center for Excellence in Disabilities, UCEDD/LEND

Psychological flexibility will be explored in this fully interactive and inclusive presentation using Acceptance and Commitment Therapy (ACT) to lead participants through values clarification activities and a host of mindfulness exercises. Small and large group discussions will focus on potential benefits of using ACT to support individuals with disabilities in achieving desired outcomes and discuss how ACT might be incorporated into person-centered planning in behavior support initiatives.

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The Future of Accessible Travel: A Conversation About the Changing Realities of the Travel Landscape

Presenter(s)

Rylin Rodgers,

Public policy and corporate efforts impact access to travel for people with disabilities. During this time of change, people with disabilities are advocating for a leveling of the environment and enhanced access. Hear from our panelists as they provide a look into the promise of change and how best to influence it.


The university experience: Improving accessibility and inclusion for students with disabilities

Presenter(s)

Winston Kennedy, Doctor of Physical Therapy, , Eunice Kennedy Shriver Center, UCEDD/LEND

This session is geared towards improving the college experience of students with disabilities. Broadly, the presenters will guide participants through the definition of disability, delve into the attitudes of university students towards disability, factors that may be associated with disability attitudes, and facilitate discussions about inclusion on campus surrounding accessible curriculum and physical activity engagement. Activities during the session will be grounded in the social-ecological model.


Collaborating to Enhance Training and Tools to Drive Better Outcomes

Presenter(s)

Jodi Fenner, Director Program Management, Anthem, Inc.

This panel includes representatives from a healthcare education, advocacy, IDD provider and managed care organizations. They will describe how they individually enhance outcomes for individuals through innovative training and tools for providers, direct support professionals and other individuals providing support, as well as how they collaborate to address common challenges within their shared mission of supporting people with intellectual and developmental disabilities to lead meaningful lives in their home communities.


Building PROMISE with American Indian Tribes: Increasing Educational and Employment Outcomes for Tribal Youth and Families

Presenter(s)

Carol Ruddell, M.S., Project Director, ASPIRE

American Indian communities are underrepresented in research, federal and state initiatives. Tribes in six states participated in the PROMISE Model Demonstration Project, a joint project of SSA, DOE, DOL, and HHS. ASPIRE, one MDP, partnered with tribal IRBs/Councils to culturally and creatively support tribal youth and families receiving SSI, to pursue education and employment. This session leverages lessons learned as tools for developing future initiatives in partnership with Tribes.

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The Challenge of FASD: Will UCEDDs, LENDs, and IDDRCs Become Leaders for Change?

Presenter(s)

DAVID DEERE, MSW, MTh, , Partners for Inclusive Communities, UCEDD/LEND

Fetal alcohol spectrum disorders (FASD) are a leading cause of developmental disabilities worldwide, yet it is diagnosed in less than 1% of cases in the U.S. Learn about the lived experience of a birth mother and hear from a representative of the National Organization on Fetal Alcohol Syndrome (NOFAS). Participants will discuss ways our network can become a national leader in diagnosing, treating, and supporting those with FASD.


The National Center on Advancing Person Centered Practices and Systems (NCAPPS): Collaborations to support truly person-centered approaches.

Presenter(s)

Alixe Bonardi, MHA, Senior Policy Specialist, Eunice Kennedy Shriver Center, UCEDD/LEND

The National Center on Advancing Person Centered Practices and Systems (NCAPPS) assists states, tribes, and territories to transform their service and support systems and implement policy on person-centered thinking, planning, and practices. This presentation will include perspectives on NCAPPS work from stakeholders including participants with disability and state teams who work to make person-centered principles a reality in the lives of people who require services and supports across the lifespan.


Leading Change Through Learning Together: The National Community of Practice for Supporting Families of Individuals with Intellectual and Developmental Disabilities

Presenter(s)

Jennifer Turner, LCSW, Senior Research Associate, University of Missouri, UCEDD/LEND

The National Community of Practice for Supporting Families of Individuals with Intellectual and Developmental Disabilities (Supporting Families CoP) was formed to build capacity across and within states to create policies, practices, and systems to better assist and support families that include a member with IDD across the lifespan. This presentation will highlight the impacts and lessons learned throughout six years of transformational change efforts in sixteen states.

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Trauma Assessment in Diagnostic Evaluations of Children with Autism & Transforming Bullying Trauma via the Expressive Arts

Presenter(s)

Maryam Mermey, PhD, Doctor, Autism Society of Maine
Kaitlyn Ahlers, PhD, Postdoctoral Fellow, Center on Human Development & Disability, UCEDD/LEND
Given research that children with autism are at a heightened risk for trauma exposure and related sequelae, study results exploring factors that affect the use of trauma assessment during diagnostic evaluations will be presented. This is followed by an experiential presentation focused on transforming the trauma of the bullying cycle through the inclusive power of the arts. Integrating multiple art forms gives participants transformative tools to help lead change together.

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The Wild Ride: Experiences and Interventions around Service Navigation in ASD

Presenter(s)

Suzannah Iadarola, Strong Center for Developmental Disabilities, UCEDD/LEND
Peter Herrick, MSEd, MPH, LEND Faculty, The Maine LEND Program
Through sharing their experiences, lessons learned, and successes, a self-advocate and parent will describe the process of navigating the healthcare, education, social service and financial support systems around autism spectrum disorder (ASD). To address service navigation difficulties, we will present emerging research and associated findings on Mind the Gap, a caregiver-focused intervention for families whose children have a new autism spectrum disorder diagnosis and are living in a low-income household.

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Collecting and Integrating Data to Drive Information Dissemination, Service Delivery, and Policy in the Disability Space

Presenter(s)

Shannon Giffin-Blake, PhD, Chief Disability Officer, CDC
Marcia Moriarta, Psy.D, Executive Director, Center for Development & Disability, UCEDD/LEND
Tara Lutz, PhD, MPH, CHES, TLutz introduction, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Three presentations highlight innovative ways in which data drives service delivery and policy. They are: Tara Lutz, Disability in health surveillance: A secondary analysis of Connecticut Youth Risk Behavior Surveillance System data by IEP status; Shannon Griffin-Blake, Reaching People with Disabilities through Healthy Communities: Sharing Successes and Lessons Learned; Marcia Moriarta, Adverse Childhood Experiences and Disability in New Mexico: An Analysis of Data From the National Survey of Children's Health

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Inclusive Medical Education at the Medical Residency Level

Presenter(s)

Priya Chandan, MD, MPH, PhD Candidate, Assistant Professor, University of Louisville
Tamsen Bassford, MD, Sonoran UCEDD
Lack of provider training contributes to the health care disparities experienced by people with intellectual/developmental disabilities. Representatives from two institutions will describe their efforts to develop curriculum for residents based on the National Curriculum in Developmental Medicine objectives. Presenters will engage in a panel discussion on residency education on IDD. Attendees will have the opportunity to discuss the barriers and successes they have encountered at their own institutions.

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Using Social Media as a Platform to Educate Communities about Disabilities and Services

Presenter(s)

Raquel quezada, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Joseph La Belle, Bechlors in Criminology , Director of Programs, Family Network on Disabilities
Naomi Brickel, MS.ED, Director, community Support Network, Westchester Institute for Human Development, UCEDD/LEND
This session will focus on how important is to use various forms of social media as a platform to educate parents and community members about services for people with disabilities. Radio shows, blogs, and other information platforms can be effective vehicles to educate families whose first language is not English. These alternatives to written materials are powerful tools to disseminate information.