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AUCD - Concurrent Sessions: Group 1

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Monday, November 18, 2019 10:15 AM - 11:30 AM

Session Description

AUCD Concurrent sessions are small group discussions, presentations, or panels. They last 75 minutes and are hosted in small meeting rooms throughout the event space.

Featured Presenter(s)



Supporting Culturally and Linguistically Competent Care: Barriers and Strategies
Suzannah Iadarola, , Strong Center for Developmental Disabilities, UCEDD/LEND

This panel discusses themes related to cultural and linguistic competence in organizational settings. Existing disparities and gaps in engagement will be reviewed, along with barriers to full engagement of those with disabilities and other marginalized identities. Ideas, resources, and specific examples will be provided about existing efforts to promote CLC in various settings (e.g., service providers, state agencies, academic centers). Experiences from self and family advocates will also be shared.

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AUCD International Outbound Fellows: Inclusive Education Leads to Inclusive Employment
Jerry Alliston, PhD , Associate Director, Institute for Disability Studies, UCEDD

In this session, AUCD International Outbound Fellows will share their experiences in hosting and mentoring International Fellows and participating in the outbound program. They will describe approaches to promoting inclusive education and inclusive employment in international settings. Participants will learn about ongoing efforts to sustain partnerships to impact the lives of individuals with disabilities internationally and how they can get involved in promoting AUCD�s international efforts.

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Let's Get Connected: The National Self Advocacy Resource and Technical Assistance Center
Max Barrows, , Green Mountain Self-Advocates Technical Assistance Center

Want to know more about the Self Advocacy Resource and Technical Assistance Center (SARTAC)? Learn how to access hundreds of resources created by, and for, self-advocates. Explore ways to host a self-advocate fellow who will complete a paid, 1-year leadership or policy project of their own design. We will share examples of how SARTAC is collaborating with University Centers and LEND programs across the country to support the self-advocacy movement

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What Does It Take: Coordinating Supports for a Life Lived in the Community
Lindsey Robertson, , Center for Disabilities and Development, UCEDD/LEND

Iowa has participated in the Money Follows the Person Rebalancing Demonstration to assist people currently residing in facilities to transition to home and community-based long-term care services. Session participants will learn the six themes Iowa's MFP program has identified as key to supporting people to successfully make this transition. Participants will then engage in a mock planning transition process, working from case studies and navigating roadblocks along the way.

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Expanding Apprenticeship Opportunities for People with Disabilities, including Intellectual and Developmental Disabilities: the Apprenticeship Inclusion Models (AIM) Initiative
Scott Robertson, PhD, MHCI, Policy Advisor, U.S. Department of Labor

This panel session discusses how inclusive apprenticeship can enhance career pathways for youth and adults with disabilities, including intellectual and developmental disabilities (I/DD). The presenters spotlight the Apprenticeship Inclusion Models initiative supported by the U.S. Department of Labor�s Office of Disability Employment Policy (ODEP). They also describe efforts to improve national policy on inclusive apprenticeship, and support best and promising practices, including accessible technology and Universal Design.

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Increasing Access to ASD/DD Diagnosis and Intervention Among Medically Underserved Populations: Lessons Learned from Family Navigation, Tele-health/education, and Shared Resources
Shanel Tage, MPH, Program Analyst, AMCHP

This panel will provide attendees the opportunity to hear reflections from four distinct HRSA Autism State Implementation grantees on their work to implement innovative and evidence-informed models of family support and navigation, shared resources, and tele-health/education technologies to achieve improved access to a coordinated, comprehensive state system of services that leads to early diagnosis and entry into services for children with ASD/DD, emphasizing medically underserved and rural populations.

Peer based user groups for supports�inclusive engagement as leadership
George McKinlay, MS, , Nevada Center for Excellence in Disabilities, UCEDD/LEND

Bringing together individuals with disabilities to present their experiences in developing independent living based peer-user groups around issues of professional development, assistive technologies, electronic information access, parenting and education. Existing services and supports too often deny individuals with disabilities the shared peer-only discourse space from which they may critically direct the creation, development, implementation and evaluation of the goods and services provided in their name.

Statistics and Data Visualizations for Impact
Sarah Boege, MPP, Policy Analyst, Institute on Disability, UCEDD

This session will explore both the availability of disability statistics and the need for accessible data visualizations. Learn about the University of New Hampshire's StatsRRTC that advances the use and efficacy of disability data to improve the lives of people with disabilities. Followed by an interactive presentation exploring accessible data visualization including resources for best practice. Audience members are encouraged to bring data visualizations to discuss during the session.

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Supporting the Special Needs of High-Risk Youth and Families
Trupti Rao, Psy.D., , Westchester Institute for Human Development, UCEDD/LEND

This session will examine ways that three organizations are meeting the needs of vulnerable youth and families. Two presentations focus on the intersectionality between developmental disabilities and child welfare, through demonstration of an online training program and through chart review of children referred for ASD evaluations. The third will describe the use of PCIT with a vulnerable population.

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Enhancing Developmental Screening to Address Language and Literacy, Childcare, and Emerging Research
Kathleen Lehman, Ph.D., Associate LEND Director, Center on Human Development & Disability, UCEDD/LEND

As developmental screening has become more established in daily practice, researchers and practitioners have begun to extend its traditional uses and approaches. We present studies that integrate additional research and support into developmental monitoring with a focus on language and literacy, that extend monitoring efforts into WIC and childcare settings, that promote early literacy in NICU follow-up clinics, and that tailor recommendations from ASD screening research to specific community needs.

Changing Expectations, Changing Systems: Lessons Learned from PROMISE Youth and Families on SSI
Kelly Nye-Lengerman, PhD, Research Associate, Institute on Community Integration, UCEDD/LEND

PROMISE was a national research and demonstration effort focused on improving the self-sufficiency of transition youth receiving SSI with disabilities and their families. The lessons learned from PROMISE and implications for culture and systems change will be explored. Discussions will focus on organizational culture, parent and professional expectations, and the limitations imposed by system-centered vs. person/family-centered paradigms. Presenters will provide both a state-specific perspective and a national perspective.

Increasing Capacity for the Most Underserved: The ECHO Model to flexibly address the missions of all UCEDDs and LENDs
Skylar Bellinger, PhD, Psychologist/ Assistant Professor, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Presenters from Kansas, Maryland, Missouri, and Wyoming will explore how the ECHO model has been adapted to meet the goals of all UCEDDs and LENDs. The diversity of applications will be highlighted including use with primary care pediatricians, tele-health, education, self-advocates, families and specific conditions (autism, neonatal abstinence syndrome, etc.). The flexibility of the model and its novel approach to reducing disparities and building capacity will be discussed.

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