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AUCD - Concurrent Sessions

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Tuesday, November 13, 2018 10:30 AM - 11:45 AM

Session Description

Concurrent Sessions 28-36




Presenters

Relationships as an Outcome in Managed Care Programs
Patricia Nobbie, PhD, Director Disability Policy Engagement, Anthem, Inc
Kim Opsahl, JD, ANCOR, Washington, DC, United States;
Donna Elbrecht, CEO, Easterseals Arc, Fort Wayne, IN, United States;

Identifying outcomes for MLTSS is an active process within the disability community. A key theme is identifying outcomes that incorporate health and quality of life. The panel will review current understanding of the connection between relationships and health; describe some results from a collaboration between a CBO and Anthem supporting individuals with autism, and describe how the business acumen initiative is trying to capture these connections and build on them.

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Go For The Gold: A Way To Make It Happen
Howard Zlamal, M.Ed., Mr. , The University of Arizona, LEND
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This presentation describes the presenter's journey through the autism spectrum, obstacles that he faced, as well as how he overcame those obstacles. The topics of elementary, middle, and high school will be covered, along with university and professional experiences. Join us to learn how many challenges of the autism spectrum can be overcome and conquered for improving the quality of life for those with disabilities.


How to grow a leadership training pipeline that leads to career paths and leadership opportunities for Self-Advocates
Rochelle Baer, MSW, Director, Leadership Training Initiaitves, Mailman Center for Child Development, UCEDD/LEND
Jairo Arana, BS, Miami, FL, United States, FL - Mailman Center for Child Development, UCEDD/LEND;
Jennifer Chavez, BS, Miami, FL, United States, FL - Mailman Center for Child Development, UCEDD/LEND;
Michaela Larson, BS, Miami, FL, United States, FL - Mailman Center for Child Development, UCEDD/LEND;

In the self-advocate community, there is a shortage of effective leaders due to various reasons such as aging, lack of awareness in leadership training and career opportunities. To address this gap, we created a leadership training pipeline for emerging self-advocate leaders. This session will describe an innovative leadership model that includes an explicit leadership pathway for Self-Advocates. Outcomes of this leadership pipeline will be discussed.

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What is Community Living? A dialogue and listening session about various models of residential services (both big and individualized)
Amy Hewitt, PhD, Director, Institute on Community Integration, UCEDD/LEND
Tia Nelis, SABE, Washington DC, DC;
Sheryl Grassie, EdD, parent, Minneapolis, MN;

There is growing discussion across states about what constitutes community living. The HCBS Setting Rule addresses this specifically and provides a framework. Across states emerging advocacy efforts exist to create new campus models, gated communities and farmstead models. These models are usually large and do not meet the Settings Rule definition. This session will provide an opportunity to listen to varied perspectives and evolve a better understanding.


Analyzing Individualized Education Programs for Students with Significant Support Needs
Kathryn Burke, M.Ed., , Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
Jennifer Kurth, Ph.D., Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Andrea Ruppar, Ph.D., University of Wisconsin-Madison, Madison, WI, United States;
Karrie Shogren, Ph.D., Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;

This program will highlight and describe findings from multiple analyses of a sample of Individualized Education Programs (IEPs) with the common goal of understanding current special education programming and services and enhancing inclusive educational practices and outcomes for K-12 students with significant support needs. These analyses included examinations of the least restrictive environment statements, supplementary aids and services, and annual goals. Researchers will share methods, findings, and implications with attendees.

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Achieving Diversity and Inclusion at work: The important role of staff self advocates within UCEDDs.
Kecia Weller, Self-Advocacy Community Liaison, Tarjan Center UCLA, UCEDD
Robert Levy, Sacramento, CA, United States, CA - UC Davis at the MIND Institute, UCEDD/LEND;
Wesley Witherspoon, Los Angeles, CA, United States, CA - USC, Childrens Hospital, UCEDD/LEND;
Liz Weintraub, AUCD, Washington, DC, United States;

All three California UCEDDs have individuals with developmental disabilities as paid staff. Each of them plays an important role helping their UCEDD to achieve their core mission. Liz Weintraub, AUCD Advocacy Specialist, will moderate a panel with the staff about their responsibilities and experiences working with faculty, staff and community members. The presenters encourage all UCEDDs to hire people with developmental disabilities in meaningful paid roles.


Combined Session: Disability and law enforcement safety
Shaquinta Richardson, Doctor of Philosophy, Human Dev. & Family Science, , Institute on Human Development and Disability, UCEDD
Shannon Benaitis, MS, Albatross Training Solutions, Darien, IL, United States;
Katie Bentley, BS, Commonwealth Council on Developmental Disabilitites, Frankfort, KY, United States;
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Presenters will create a new summary.

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Adapting Screening Tools and Curricula to Meet the Health Literacy Needs of Youth with Autism and Other Developmental Disabilities
Julie Christensen, PhD, Director, Center for Disabilities and Development, UCEDD/LEND
Melissa Pennise, MPH, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Erica Coleman, MS, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Caroline Coffield, PhD, New Brunswick, NJ, United States, NJ - The Boggs Center on Developmental Disabilities, UCEDD/LEND;
Therese (Terry) Welch, PhD, Webster, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
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Youth with autism and other developmental disabilities often face significant health disparities, which could be mitigated by adapting the approach to interventions. This presentation will share three innovative initiatives, from screening to teaching health literacy skills, that aim to accommodate the varying learning styles and literacy skills of these youth.


Cultural Conversations
Hamida Jinnah, PhD, Assistant Research Faculty, Institute on Human Development and Disability, UCEDD
Debra C. Vigil, PhD, Reno, NV, NV - Nevada Center for Excellence in Disabilities, UCEDD/LEND;
Daphne Arnold, LICSW, PIP, Birmingham, AL, United States, AL - Civitan International Research Center, UCEDD/LEND;
Dawn Rudolph, MSEd, AUCD, Silver Spring, MD, United States;
Jim Warne, MS, & Wayne Weston, MS, Sioux Falls, SD, United States, SD - Center for Disabilities, UCEDD/LEND;
Derrick Willis (Iowa), Jack Brandt (Virginia), , Silver Spring, MD, United States;
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Common themes across three different cultural challenges will be presented. Topics include creating �brave� spaces for honest conversation about social/cultural identity, power, and privilege; concepts in curriculum development on cultural disparities and competency in disability practice; Oyate� (people�s) Circle creating partnerships and trainings on American Indian reservations in South Dakota.


Federal Partnerships for Employment: UCEDD Collaborations with ODEP and PROMISE
Richard Davis, MSW, Policy Advisor, ODEP
Kathy Sheppard-Jones, PhD, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Julie Christensen, PhD, Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
Michael Murray, Office of Disability Employment Policy (ODEP), Washington, DC, United States;
Kelly Nye-Lengerman, PhD, University of Minnesota, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
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This session will feature presenters on two topics: UCEDD collaborations with the Office of Disability Employment Policy (ODEP) in advancing Employment First systems change in the states of Kentucky and Iowa; and UCEDD/AUCD involvement in addressing the intersections of poverty, employment, and disability through the Promoting Readiness of Minors in SSI (PROMISE) model demonstration projects.

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Here We Can All Be Leaders: An Overview of Three Leadership Academies
Tawara Goode, MA, Director, Georgetown University Center for Excellence in Developmental Disabilities , Georgetown University Center for Child & Human Development, UCEDD
Emily Graybill, PhD, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Daniel Crimmins, PhD, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Dana Yarbrough, M.A., M.S., Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
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Three leadership academies offered by network programs are designed to promote equity in leadership development. While each program has unique features, all focus on enhancing the capacity of people with disabilities, family members, and individuals from underrepresented cultural groups to assume leadership roles in their organizations and communities.

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Combined Session: Opioids
Andrea Witwer, PhD, Director of Training, The Nisonger Center, UCEDD/LEND
Hanein Edrees, M.D., Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND;
Felicia Foci, MSOT, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND;
Jennifer Walton, M.D. MPH, Columbus, OH, OH - The Nisonger Center, UCEDD/LEND;
Stephanie Weber, PsyD, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND;
Michelle Roley-Roberts, PhD, Columbus, OH, OH - The Nisonger Center, UCEDD/LEND;
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