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AUCD - Poster Symposium: Person-Family-Professional Partnerships

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Monday, November 6, 2017 2:00 PM - 3:00 PM

Location: Congressional Ballroom A


Using Stakeholder Engagement to Effectively Implement a New Early Intervention Family Assessment Tool
Katherine Herron, PhD, Research Associate, Indiana Institute on Disability and Community, UCEDD
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Early intervention is most effective when services are tailored to meet individual families' diverse needs. Indiana's early intervention system is attempting to re-center system services by promoting and improving family engagement practices.One strategy involves implementing a new family assessment tool. This presentation focuses on the implementation of this tool through the use of extensive stakeholder engagement as well as principles of implementation science.

Striving for Structure and Stability: The Family Point of View
Pamela Williams-Arya, M.D. , , University of Cincinnati UCE, UCEDD/LEND
This project focuses on families experiencing homelessness, specifically eliciting their perspective on their most pressing needs using group level assessment.

Plan to Succeed in Transition to Adulthood: An Organizational Toolkit for Individuals with Trisomy 21 and Their Families
Sandhyaa Iyengar, M.D., Fellow Physician, Children's Seashore House/ Children's Hospital of Philadelphia, LEND
Transition to Adulthood is a crucial time period for individuals with neurodevelopmental disabilities. One key to successful transition is planning for the switch from a pediatric to adult healthcare provider. This toolkit focuses on self-advocacy, health literacy, and building independence, all of which prepare for medical transition. Much of the information in the toolkit is generalizable to individuals with intellectual disability and complex conditions other than Trisomy 21.

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Empowering Families to Educate Future Physicians in the Context of a Home Visit
Carrie Coffield, PhD, Training Director, The Boggs Center on Developmental Disabilities, UCEDD/LEND
Deborah Spitalnik, PhD, New Brunswick, NJ, United States, NJ - The Boggs Center on Developmental Disabilities, UCEDD/LEND;
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The Seminar on Family Centered Care and Developmental Disabilities, a required component of the pediatric clerkship at Rutgers Robert Wood Johnson Medical School, utilizes a family-faculty partnership approach to educating medical students. The seminar features a home visit with families of children with disabilities. Utilizing qualitative research methods, this presentation explores student reflections of the home-visit experience and provides insight about how it influences students' attitudes toward disability.

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Promoting Individuals with Intellectual and Developmental Disabilities and Families in the Va-LEND Program
Jack Brandt, M.S. Rehabilitation Counselling, Disability Policy Specialist, Partnership for People with Disabilities, UCEDD/LEND
Zipporah Levi-Shackleford, M.Ed., Richmond, VA, United States;

This poster is going to discuss how the medium-term trainee track was developed for the Virginia Leadership Education in Neurodevelopmental Disabilities Program (Va-LEND) to increase the involvement of individuals with IDD and their families. The poster will describe the process of developing the medium-term trainee track for the Va-LEND program, along with the successes and barriers amongst administration and faculty throughout this effort.

Oklahoma LEND's Innovative Approach to Family-Professional Partnerships
Megan Peters, DSc, Training Director, Center for Learning and Leadership, UCEDD/LEND
Wanda Felty, Oklahoma City, OK, OK - Center for Learning and Leadership, UCEDD/LEND;

Oklahoma LEND (OKLEND) uses an innovative three-pronged approach to instill the value of family-professional partnerships in trainees. Family voices are lifted through a focus on family perspectives throughout the learning process. The expertise of families is highlighted through input from family faculty, personal stories from family trainees, and structured family mentor experiences. Our retrospective analysis describes the impact of the OKLEND approach on how trainees view family-professional partnerships.

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Person-Centered Planning for Youth with IDD Transitioning out of Foster Care: Through the Lens of Foster Youth and Facilitators
Clare Emmert, Trainee, Sonoran UCEDD
Lynne Tomasa, PhD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Jacy Farkas, MA, Tucson, AZ, United States;

Person-centered planning (PCP) can guide and support the transition to adulthood for foster youth with disabilities. To better understand the planning process and the impact on foster youth and facilitators, the Sonoran UCEDD conducted interviews as part of the preliminary data collection of the Picture of a Life project. The data highlights important processes, relationships, and perceptions about PCP that can inform future research with diverse and vulnerable populations.

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Family Voices - Creating Opportunities and Ensuring the Inclusion of Youth and Families to Improve Programs and Policy
Glenn Gabbard, Ed.D., , Family Voices, Inc.
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Family Voices, a national grassroots network of families of children and youth with special health care needs and disabilities working to keep families at the center of children's health care, will provide an overview of their research and system-levels activities that help promote effective engagement of individuals and families of all backgrounds and abilities to work with a range of partners towards creating a family-centered system of care.

Parents and Guardians Who Raise Their Voice Through Effective Legal Representation in Special Education Matters
Maureen van Stone, JD, Director, Maryland Center for Developmental Disabilities
Mallory Finn, JD, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Moyosore Koya, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Genevieve Hornik, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;

The authors surveyed the parents or legal guardians of children with disabilities who obtained legal representation in special education matters. The purpose of the survey was to determine how effective legal representation impacted a parent's journey through the special education process.

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