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AUCD - Concurrent Sessions Group 4

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Tuesday, November 16, 2021 3:30 PM - 4:45 PM

Location: Virtual

Session Description

Concurrent sessions will take place as live presentations during specific times on Monday and Tuesday of the virtual conference. Concurrent presentations will be live and there will be an option for attendees to "chat" with the presenters during the presentation. More information about how to access the concurrent presentations on the virtual platform and "chat" with presenters will be shared with registered, virtual conference attendees.


Working Together: Collaboration with Parents, Providers, and Police to Increase Safety of Black and Brown Autistic Youth


Lindsey DeVries, PhD, Assistant Professor, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND

An interdisciplinary taskf orce consisting of providers, parent advocates, and law enforcement officers was formed in the summer of 2020 to create resources to help support Black and Brown autistic children and their families in navigating interactions with law enforcement. A panel of task force members will discuss the collaborative process of developing and formalizing these resources. Links to the finalized product will be shared for distribution and use.

New Directions for Improving Data on the Health of People with ID/DD: Federal Agency Updates


Jennifer Johnson, Ed.D, Deputy Commissioner, ACL

The critical need for health data about persons with intellectual and developmental disabilities (ID/DD) is increasingly being recognized. Representatives from four Federal Health and Human Services agencies, ACL, NCHS, ASPE, and NCBDDD, will describe their activities and how this information could be used to inform programs to improve health equity. A discussant will demonstrate the collaborative efforts of a new Federal Interagency Workgroup to discuss why this matters.

Life After IPSE: Supporting individuals with IDD to lead IPSE research & evaluation initiatives


Susanna Miller-Raines, MSW, Georgia IPSE Consortium Coordinator, Center for Leadership in Disability at Georgia State University, UCEDD/LEND

This session will describe how an idea from an inclusive postsecondary education (IPSE) alumnus interning with the Center for Leadership in Disability led to a research project on the impact of IPSE programs in Georgia on their alumni and families. We will discuss the process for supporting the intern in leading a research study and share the preliminary finding from the study.

Community models for early diagnosis of Autism Spectrum Disorder in toddlers using the Rapid Interactive screening Test in Toddlers (RITA-T)


Roula Choueiri, MD, Neurodevelopmental Pediatrician, Eunice Kennedy Shriver Center, UCEDD/LEND

Early recognition of Autism Spectrum Disorder (ASD) is key to start intensive treatment but continues to be delayed especially in diverse and underserved communities. During this session, we will: 1) Provide an overview of the RITA-T and the new RITA-T tele-video, 2)Present current screening models with the RITA-T and partnerships with Early Intervention and Primary care in a culturally diverse community to improve access and identification of ASD.

Standardizing the Person with Disabilities (PWD)/self-advocate discipline through the creation of core competencies, learning objectives and activities


Shelly Baer, LCSW, Director, Leadership Training Initiatives, Mailman Center for Child Development, UCEDD/LEND

In response to national, programmatic changes and a need to unify the training experience of Self-Advocates across LEND programs, members of the LEND PWD/Self-Advocate workgroup developed a set of learning competencies for the Self-Advocacy discipline. In this session, attendees will learn the phases of developing the competencies, strategies employed in each phase, and lessons learned. The competencies are a tool for LENDs to improve the way they teach PWD/Self-Advocate trainees.

TeensNFitness4ALL: Improving access to health through adapting an evidenced-based nutrition curriculum for teens and young adults with developmental disabilities


Lina Rodas, LCSW, Psychotherapist, USC, Childrens Hospital, UCEDD/LEND

Individuals with intellectual and developmental disabilities are often excluded from community nutrition programs and research. We will share findings from our research pilot adapting a nutrition curriculum for supporting adolescents and young adults with intellectual and developmental disabilities, and their parents/caregivers. The pilot study includes data collection, 10-interactive virtual sessions for both clients and their caregivers, and program evaluation. Curriculum content and resource development and dissemination strategies will be described.

Redefining Family Resiliency Through Cultural Brokering


Dana Yarbrough, M.A., , Assistant Director, Partnership for People with Disabilities, UCEDD/LEND

This presentation features a panel of cultural brokers and researchers sharing their process for redefining family resilience through cultural brokerage support. Specifically, we are interested in how families learn to apply family strengths and resources in a way consistent with their beliefs so they think about life changes and changes more positively, feel more hopeful and confident that they can manage it, and respond or adapt to challenges together.

Virtual Interviewing Training within Pre-Employment Transition Services


Matthew Smith, PhD, Associate Professor, University of Michigan School of Social Work

Recently highlighted at the United Nations, we developed a computerized job interview simulator by soliciting input from 45 stakeholders with lived experience from the autism community. The simulator supports job-interview training for transition-age autistic youth. We evaluated the simulator's effectiveness in 71 autistic youth and 356 youth with disabilities across 37 schools. We present our methods to develop the simulator and our evaluation results, including a demonstration with the simulator.

Families Add Value to the Delivery and Education for Health Professionals: What the LEND Family Discipline Networks Research Shows


Kristin Mayleben-Flott, B.A., LEND Family Faculty & Outreach Coordinator, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND

Family Involvement is a long-standing part of LENDs. But little was known about its impact on the education of health professionals. The LEND Family Involvement Survey changed this. This session will highlight the impact/importance, as gained through nine years of data collected from the LEND Family Discipline Network�s (LFDN) Family Involvement Survey. The survey involved more than 25 LEND programs and more than 250 trainees per year.

WVU Country Roads: Putting the student on the road to success


Courtney Lanham, MSW, Training Specialist, Center for Excellence in Disabilities, UCEDD/LEND

This session will highlight the West Virginia University Country Roads program from an instructor and student perspective. The goal of the program is to prepare students with disabilities for independence by providing academic courses, social engagement and real-world work experiences. This presentation will put an emphasis on the student�s perceptions of their experiences before, during, and in reflection of this unique college experience.

Autism Diagnostic Teams: A community-based approach for early identification and intervention of ASD


Rene Jamison, PhD, , Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

A statewide initiative was developed to increase early identification and intervention for children at risk for or with ASD in rural communities. The initiative builds the capacity of rural Part B and Part C service providers to assess ASD and provide interventions for families in rural communities. The presentation will include an overview of the program and provide data on program impact.

Inclusion of women with disabilities in research: Creating an inclusive community needs assessment


Lindsey Mullis, MS, , Interdisciplinary Human Development Institute, UCEDD/LEND

The Kentucky Inclusive Health Collaborative (KIHC) applied Universally Design strategies to develop and facilitate a maximally inclusive community needs assessment. To increase accessibility, KIHC provided information in a bulleted cover letter with a supplemental video. Information was also made available in American Sign Language and Spanish. This presentation focuses on efforts to create an inclusive community needs assessment and highlights strategies to engage the broadest audience in research.

National Training Initiative: Implementation of the Project SCOPE - Site Experiences and Lived Perspectives


Canyon Hardesty, M.S., CHES, , Wyoming Institute for Disabilities, UCEDD

This session introduces the Project SCOPE ECHO model for building capacity of diverse providers to serve children prenatally exposed to substances and their families. Perspectives include AZ�s partnership with the Navajo Nation; MN�s early intervention participants, KY�s peer support specialists to facilitate discussion, OH meeting diverse needs, and WY�s development of the model. The session is appropriate for medical, educational, therapeutic, social work, special education, and psychology disciplines.