Inclusive Practices

 

AUCD has undertaken activities related to including people with disabilities in UCEDD operations, activities, information gathering, and setting the direction of the UCEDD. On this page you will find resources related to the consumer advisory committee (CAC), UCEDD needs assessment and other information gathering, and information for people with disabilities to use when becoming involved in research and training.

 
 

UCEDD Program Operations and Practices Checklist for the CAC

Prior to the development of QRS, the Monitoring and Technical Assistance Review System (MTARS) was a monitoring tool that was used by AIDD to evaluate its grant programs. MTARS is no longer in use by AIDD, but this checklist for the Consumer Advisory Committee continues to serve as a helpful tool to assist you with program compliance.

 

CAC Orientation Curriculum

The curriculum is meant for use by a CAC leader and/or UCEDD staff/Director to employ with potential, new, or existing CAC members as a way to introduce them to their role in advising the UCEDD. The curriculum consists of 5 modules, each containing slides and an instructor's manual, along with a number of useful appendices. The curriculum has been deliberately designed to be customizable by each UCEDD.

 

Archived Webinar: Enhancing the Effectiveness of Consumer Advisory Committees (CACs)

This webinar provides an opportunity for UCEDDs and CAC members to share some innovative practices and strategies that have been found useful in enhancing the effectiveness of CACs.

Continue the discussion: Share additional strategies and resources by contributing to the Enhancing CACs Open Network Share.

 

CACs: Recommendations for Meaningful Participation of Individuals with Disabilities and Families

The Association of University Centers on Disabilities (AUCD) and its Council on Community Advocacy (COCA) collaborated on a participatory action research project exploring meaningful participation and effectiveness of Consumer Advisory Committees (CACs) at University Centers for Excellence in Developmental Disabilities (UCEDDs). This report includes examples of supports that enhance the meaningful participation and effectiveness of CACs, provides case studies of innovative or best practices in CACs, and gives recommendations concerning the assessment of CACs.

 

Including People with the Most Significant Disabilities

The full title of this report is "Strategies to Incorporate the Voice of People with Significant Disabilities in UCEDD Information-Gathering and Operations". This report gathered information from experts across the network on how UCEDDs can better hear the viewpoints and address the needs of people with the most significant disabilities who may have been traditionally challenging to involve in UCEDD activities requiring community engagement.

 

Involvement of People with Developmental Disabilities in the Operation of UCEDD Programs

This webinar addressed the involvement of people with disabilities in the operations of the UCEDD through their own experiences and stories. Topics of the presentation will include: the perspectives of people with disabilities on their work in the UCEDD, some examples of successful family involvement, and experiences working with the Consumer Advisory Council (CAC) and Council on Community Advocacy (COCA).

 

Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities

"Getting Involved in Research and Training: A Guide for Persons with Intellectual Disabilities" explains to people with disabilities how they can participate in research and training projects. This guide describes what research and training are and what a participant can do. It also provides examples of projects and of ways to address problems others have had when working on research and training. It was developed by the Rehabilitation Research and Training Center at the IL UCEDD/LEND on Aging with Developmental Disabilities and the National Gateway to Self-Determination. It is also on the website of the National Gateway to Self-Determination.

 

Engaging people with disabilities as co-applicants on funding proposals

The paper addresses implementation of an approach becoming more common in England: requiring co-applicants on funding application who have the lived experience of the population the research is intended to serve. This pushes beyond what we are familiar with as Participatory Action Research or Community Based Research by not just involving the target population in the research activities, but requiring their involvement in the leadership and management of the overall effort. 

 

UCEDD Self-Determination Self-Assessment Checklist

The UCEDD Self-Determination Self-Assessment Checklist provides the UCEDD with a straightforward tool and process to determine the degree to which its policies, practices, and personnel, at a given point in time, are promoting self-determination for people with intellectual and developmental disabilities (I/DD) and their families. The result will be a profile of the organization's performance that can be used to identify areas to strengthen, and to suggest resources and strategies for desired improvements.

 

Grant Writing and Grant Management Toolkit For Self-Advocates

AUCD created this toolkit based on feedback from self-advocates who participated in these Self-Advocacy Organizational Development Grants, who expressed interest in writing grant applications. This toolkit is designed to help more self-advocacy organizations apply for grant in the future.

 

Accessiblity Toolkit For Funders Who Support Self-Advocacy Organizations

This toolkit is designed to help funders who are interested in funding self-advocates and self-advocacy organizations to have a better understanding of how to work best with people with disabilities, and make sure their needs are met throughout the grant process. This toolkit is the result of needs that were identified by the Association of University Centers on Disabilities (AUCD) while providing technical assistance for a self-advocacy pilot grant project that was funded by the Administration on Intellectual and Developmental Disabilities (AIDD).

 

Elements of Effective Testimony

This brief guide, adapted from the American Academy of Pediatrics, highlights the 3 "P"s: Preparation, Practice, and Performance when giving public testimony to educate legislators.

 

Self-Advocacy Online

Self-Advocacy Online is a project of the Research and Training Center on Community Living at The University of Minnesota and The Arc. It provides links to self-advocacy groups, includes stories from self-advocates and provides self-advocacy news and resources.

 

Envisioning the Future Allies in Self-Advocacy

Envisioning the Future: Allies in Self-Advocacy is a website that provides information on self-advocacy programs, tools and resources for the community. This project is funded by the Administration on Intellectual and Developmental Disabilities (AIDD).