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AUCD: Concurrent Sessions: Working through the Intellectual and Developmental Disability Data Conundrum: Strategies for Collecting Better Data to Inform Program and Policy


pdf File Data Conundrum ACL panel 11.13.2018 [download]


Andrew Morris, MPH, Policy Analyst
Administration for Community Living

Other Presenter(s)

Jennifer Johnson, PhD, Administration for Community Living, Washington, DC, United States;
Susan Havercamp, PhD, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;
Gloria Krahn, PhD, MPH, Former UCEDD Director and Oregon State University, Corvallis, OR, United States;
Alixe Bonardi, MPH, Former Trainee and Human Services Research Institute, Boston, MA, United States;
Sheryl Larson, PhD, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;


The Administration on Intellectual and Developmental Disabilities (AIDD) along with external experts have been exploring how to get better data and an updated picture of health status and prevalence of individuals with I/DD across the States. This session will provide an update on efforts which have focused on developing survey questions for use on national studies and the use of state administrative data sets for better understanding this population.

Back to Session: Concurrent Sessions