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AUCD - Concurrent Sessions

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Monday, December 5, 2016 10:15 AM - 11:30 AM

Session Description

The AUCD Conference features over 55 concurrent sessions over four time slots for attendees to learn, share, and network on a variety of topics around disability. Concurrent sessions all last 75 minutes; a session might be one or more presenters leading an interactive discussion or exertise or a panel of several thematically linked presentations with a moderator. Concurrent session presentations will be listed below once the lineup has been determined.


Advanced Directives Are Important for My Future, But What Do I Do?


Marisa Brown, MSN, RN, Project Director, Georgetown University Center for Child & Human Development, UCEDD/LEND
Bill Gaventa, M. Div, Texas Faith Inclusion Network on Disability, Austin, TX, United States;
Liz Weintraub, AUCD, Silver Spring, MD, United States;

Living life to the fullest includes adequate planning for advanced directives. As the community of people with developmental disabilities, their families, and advocates become increasingly aware of the importance of end of life planning, there continues to be a need to raise the awareness of appropriate palliative care needs. Best practices need to be explored and shared, and supports need to be in place to enhance collaboration among stakeholders.

Fabric Not Fringe: Weaving Family Involvement Strategies into LENDs and other Professional Disability Related Training Programs


Amy Carlsen, RN, LEND Family Discipline Faculty, Center on Human Development & Disability, UCEDD/LEND
Fran Golfarb, MA, MCHES, CPSP, Los Angeles, CA, United States, CA - USC, Childrens Hospital, UCEDD/LEND;
Barbara Levitz, MS Ed, Vahalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;

LENDs are pioneers in involving family members in professional training. The LEND Family Involvement Assessment, a national survey conducted since 2013, details the benefits of family involvement. This interactive session is an opportunity for LENDs and other disability- related training programs to share successful strategies, and develop new systematic ways to enhance or increase family voice in their programs, while contributing to a white paper on Family Involvement.

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Changing the Conversation: Engaging Local Communities in New Ways to Identify Assets and Improve Outcomes for Individuals with IDD


Erik Carter, Ph.D., Professor, Vanderbilt University, UCEDD/LEND
Olivia Raynor, Ph.D., Los Angeles, CA, United States, CA - Tarjan Center UCLA, UCEDD;
Jenny Neugart, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Harold Kleinert, Ph.D., Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Jenn Bumble, M.Ed., Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Elise McMillan, Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;

"Community conversations" are an asset-based approach for increasing the capacity and commitment of professionals, families, and community allies to support access to inclusive school, work, and community experiences. We will address how this approach is used to engage local communities in new conversations involving a broader range of stakeholders. We will share lessons learned and research from four states using this approach to inform systems change and improve outcomes.

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What Does Employment First Really Mean? Perspectives From the Research, Policy, and Self-advocacy Communities.


allison hall, PhD, Senior Research Associate, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Rie Kennedy-Lizotte, NASDDDS, Washington, DC;
John Britton, SABE, Washington, DC, United States;

The Institute for Community Inclusion (ICI)-University of Massachusetts, Boston, Self-Advocates Becoming Empowered (SABE) and the National Association of State Directors of Developmental Disabilities Services (NASDDDS) will discuss national trends in implementation of Employment First policy. The session will focus on: background and context for the Employment First movement; state strategies that promote Employment First; and what Employment First really means in the self-advocacy community.

Leadership for Cultural Diversity and Cultural and Linguistic Competence: The Key to Building Our Future Together


Tawara Gooode, MA, Director , Georgetown University Center for Child & Human Development, UCEDD/LEND
Deborah Perry , PhD, Washington , DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Mat McCullogh , MPA, DC Developmental Disabilities Council , Washington , DC, United States;
Chaqueta Stuckey , Self Advocates Becoming Empowered, Florence , SC, United States;
Christine Grosso, MS, Association of University Centers on Disabilities, Washington , DC, United States;

Responding to cultural diversity and achieving cultural and linguistic competence (CLC) require strong and informed leadership to spur the necessary changes within our network. This presentation: offers an overview of a Leadership Institute for Cultural Diversity and CLC; provides compelling data about the network from Leadership Institute activities; and highlight personal narratives of Leadership Academy participants in their roles as self-advocates and staff in our network.

Preparing for the Future: UCEDDs Assisting States with Transition and Compliance to CMS's Rule on Home and Community Based Waivers


Angela Martin, LMSW, Senior Associate Director, Developmental Disabilities Institute, UCEDD/LEND
Lynette Henderson, Ph.D., Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Christine Grosso, MS, Silver Spring, MD, MD - The Association of University Centers on Disabilities -;

In January 2014, the Centers for Medicare and Medicaid Services published new rules on Home and Community Based Services. As States prepare for transition to compliance, several UCEDDs have been engaged in the development of person-centered, community-based plans and assisted States with transition. This presentation will highlight how AUCD and UCEDDs were involved in the assessment and transition activities as States prepare for transition to rule compliance.

Facilitating Change through International Cooperation


Stephanie Meredith, MA, Medical Outreach Director, Interdisciplinary Human Development Institute, UCEDD/LEND
Stephanie Meredith, Lexington, KY, United States;
Siddarth Nagaraj, AUCD, Washington DC, DC, United States;
William E. Kiernan, PhD, Boston, MA, United States, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND;
Brent Askvig, PhD, Minot, ND, United States, ND - North Dakota Center for Persons with Disabilities, UCEDD;
Robert Fifer, PhD, Miami, FL, United States, FL - Mailman Center for Child Development, UCEDD/LEND;

This panel presentation will share examples of different international efforts to improve outcomes for people with disabilities across the lifespan and also summarize best practices for engaging in international collaboration. Panelists will include UCEDD/LEND leaders who have engaged in worldwide collaborations in the areas of education, healthcare, information resources, and employment.

The Value of UCEDD Involvement with National Core Indicators: Opportunities for State Agency Collaboration, Research and More!


Brian Freedman, PhD, Senior Associate Director, Center for Disabilities Studies, UCEDD/LEND
Celia Feinstein, MA, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Rhonda Eppelsheimer, MSW, CSWA, Portland, OR, United States, OR - Oregon Institute on Development & Disability, UCEDD/LEND;
Audrey Rossi, MS, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;
Alexandra Bonardi, OTR/L, MHA, Human Services Research Institute, Cambridge, MA;

The National Core Indicators (NCI) measure outcomes of services provided to individuals with I/DD and their families. UCEDDs are becoming increasingly involved with NCI and their role varies significantly state-by-state. In this panel, three UCEDDs will describe their unique processes and challenges with NCI in their state. Audience members will discuss how NCI involvement can foster collaborative opportunities between UCEDDs and state DD agencies, self-advocates, families and trainees.

UCEDD, Vocational Rehabilitation, and Centers for Independent Living: A Case Study of the Intersectionality of Disability, Policy, & Practice


Meagan Orsag, Co Director, Center on Disability and Development, UCEDD
Erin Wilder, M.Ed., Department of Assistive and Rehabilitative Services (VR) , Austin, TX, United States;
Jackie Pacha, Ph.D., Bravos Valley Center on Independent Living , Bryan, TX, United States;

Because of the collaborative efforts among the Texas A&M University Center on Disability and Development (CDD), the Department of Rehabilitative Services (DARS), and the local Center on Independent Living (CIL), UCEDD programs that support individuals with disabilities have been developed, funded, and are now self-sustaining. Representatives from each entity will discuss the process in which relationships were established, policies were navigated, and systems were changed.

Finding Common Ground: Efforts to Promote Training and Advance Justice Between Law Enforcement and the Disability Community


Diane Jacobstein, PhD, Clinical Psychologist, Georgetown University Center for Child & Human Development, UCEDD/LEND
Josh Lapin, Senior Clinical Social Worker, Waisman Center, UCEDD/LEND
Joni Beasley[1],PhD[2],Center for START Services[3],Durham[4],NH[5],United States[6],NH - Institute on Disability, UCEDD[7]
Officer Laurie Reyes[1],Montgomery County Police Department[3],Rockville[4],MD[5],United States[6]
Patti Saylor[1],RN, MS[2],Commission for the Effective Community Inclusion of People with Intellectual Disabilities[3],Frederick[4],MD[5],United States[6]
Three UCEDDs will present findings on incarcerations, arrests, risks, and disparities, and describe one model of proactive social engagement between police and the disability community. A police officer will introduce her extensive training and consultation initiative. The mother of a young adult with IDD who died in police restraint will detail her successful state campaign to pass police training and disability court legislation in her son's memory.

Navigating a Successful Healthcare Transition


Teresa Nguyen, MPH, Diversity Fellow, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND
Caren Steinway, MSW MPH, Clinical Research Coordinator
Linda Starnes, BS-Special Education, Parent/Family Advocate, Mailman Center for Child Development, UCEDD/LEND
Mallory Cyr[1],MPH[2],Denver[4],CO[5],United States[6],MA - Eunice Kennedy Shriver Center, UCEDD/LEND[7]
Owen Erquiaga[1],Denver FLTI[3],Denver[4],CO[5],United States[6]
Much can be done early and often to create an effective healthcare transition at school, home, and within the medical home. Research review, evidence-based practices, practical resources, and lived experience inform this presentation, highlighting the Six Core Elements promoted by Got Transition and the Multidisciplinary Intervention Navigation Team (MINT).

Creating Change: Classroom Conversations


Elizabeth Ridgway, OTD, OTR, Asst. Professor/ OT Asst. Chief, Rose F. Kennedy Center, UCEDD/LEND
Sara Bitter, Juris Doctor, National Field Director, University of Cincinnati UCE, UCEDD/LEND
Gwen Mitchell, PhD, Interdisciplinary Training Director, Center on Disabilities and Human Development, UCEDD
Carol Terilli[1],PT, DPT[2],Bronx[4],NY[5],United States[6],NY - Rose F. Kennedy Center, UCEDD/LEND[7]
Jordan Stumph[1],MS3[2],Bronx[4],NY[5],United States[6],NY - Rose F. Kennedy Center, UCEDD/LEND[7]
Rachel Zolno[1],MS3[2],Bronx[4],NY[5],United States[6],NY - Rose F. Kennedy Center, UCEDD/LEND[7]
Masrur Khan[1],MS3[2],Bronx[4],NY[5],United States[6],NY - Rose F. Kennedy Center, UCEDD/LEND[7]
Gwen Mitchell &Sara Bitter &ReelAbilities[1],ID, UCEDD[3],Washington[4],DC[5],United States[6]
This presentation explores how film and art can act as powerful tools to help create positive change in schools for students with disabilities, an Idaho UCEDD program that recruits students across colleges to spend their undergraduate careers at our center to work with people with disabilities, and an experiential learning program was created to join together medical students individuals with developmental disabilities and their families to develop collaborative relationships.

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LEND Works: The Influence of LEND Training on Professional Attitudes and Career Trajectories


Lauren Bishop-Fitzpatrick, PhD, MSW, Postdoctoral Trainee, Waisman Center, UCEDD/LEND
Jen Smith, PsyD, LEND Director, University of Cincinnati UCE, UCEDD/LEND
Little data is available on the influence of LEND training on the leadership and career trajectories of former trainees in the field. This session describes efforts at the Waisman Center and Cincinnati LEND to evaluate the effects of LEND curriculum on trainees' perspectives, interdisciplinary skills, and career trajectories. Results will be discussed with emphasis placed on how the program will use results to enhance its intentional interdisciplinary leadership training.