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AUCD - Concurrent Sessions

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Tuesday, November 11, 2014 3:00 PM - 4:15 PM

Location: Meeting Room Level


Implementing a Multi-tiered System of Behavioral Supports in High School to Include and Graduate all Youth
JoAnne Malloy, Ph.D., , Institute on Disability, UCEDD
Jonathon Drake, MSW, IOD in New Hampshire, Concord, NH, United States;
Justin Tilbe, AA, Youth MOVE New Hampshire, Concord, NH, United States;

Youth with emotional and behavioral challenges have some of the poorest outcomes of any sub-group of students. This session will describe and foster a discussion about implementation of a multi-tiered system of support framework in high schools, in order to provide evidence-supported behavioral practices, with a focus on inclusion of students with emotional and behavioral challenges.

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Community-Based Services: the Critical Role of Competitive Employment for Individuals with Disabilities and Full Community Participation
Mark Smith, M.S., Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Susan Richmond, M.Ed., Tampa, FL, FL - Florida Center for Inclusive Communities, UCEDD;
Brady Sellet, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND;
Brent Askvig, Ph.D., Minot, ND, ND - North Dakota Center for Persons with Disabilities, UCEDD;
Ilka Riddle, Ph.D., Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND;

Unemployment for individuals with disabilities remains stubbornly high. Given the recent changes to the Center for Medicare and Medicaid's Home and Community-Based (HCBS) Waiver rules, they now emphasize competitive employment as the preferred option for individuals receiving HCBS services. This session features four UCEDDs from across the network that have initiated programs which serve to address this challenge.

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Engaging a Community to Strengthen Healthcare Systems
Marisa Brown, MSN, RN, Project Director, Georgetown University Center for Child & Human Development, UCEDD
^Laura Nuss, MS, DC Developmental Disabilities Administration, Washington, DC, United States;
Kim Bullock, MD, Georgetown University, Washington, DC, United States;
Lisa Brace, MS, RN, GUCCHD-UCEDD, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Erica Thomas, MA, GUCCHD-UCEDD, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;

Eight years ago the District of Columbia embarked on a systematic effort to engage people with disabilities, primary care providers, dentists, specialists, hospital systems and community-based service providers to address barriers to health care that contribute to health disparities for people with intellectual disabilities. This panel describes the process and impact when a UCEDD partnered with the District of Columbia Developmental Disabilities Administration to create systems' change.

Implementing Family-Centered Transition Planning: Current Status and Future Plans
Alan Kurtz, M.Ed., Ph.D. Candidate, Area Coordinator, The University of Maine, Center for Community Inclusion, UCEDD
The Family-Centered Transition Planning model has demonstrated significant improvements in transition outcomes. This presentation presents results of efforts to implement the model with community organizations and to examine (a) whether outcomes are better when transition planning takes place earlier, and (b) how participation in planning affects the post-school expectations of students and parents. We will also discuss the implications of plans to expand the model.

Since 1988, Making a Difference in NH - cultivating parent, self advocate, and trainee leaders who drive systemic change
Mary Schuh, Ph.D., Director of Consumer Affairs and Developmnet, Institute on Disability, UCEDD
Ann Dillon, MEd OT, UNH IOD, Durham, NH, United States;

In New Hampshire, substantial positive changes have taken place, and many of these changes are a direct result of work by leaders who graduated from the NH Leadership Series. The series, which began in 1988 and modeled after Minnesota's Partners in Policymaking Series has graduated almost 1,000 participants. The Series continues to evaluate its effectiveness through quantitative and qualitative measures and sustains itself through creative funding and valued partnerships.

Access to Care for Children with Autism: Engaging Primary Care Physicians through the Autism Treatment Network
Alicia Curran, BS, MA Cert, LEND Family Faculty, Act Early Ambassador, University of Missouri, UCEDD/LEND
Kristin Sohl, MD, Columbia, MO, United States, MO - University of Missouri, UCEDD/LEND;
Amy Hess, BA, MA Cert, Columbus, OH, United States;
Karen Ratliff-Schaub, MD, MBOE, Columbus, OH, United States;

Comprehensive, high-quality, family-centered care is imperative for individuals with autism spectrum disorder and their families. However, there is a widening gap between the demand for this level of care and the capacity of expertly trained physicians. This session will address how engaging the Primary Care Physician community can bridge the gap by building capacity to ensure high-quality ongoing care for individuals with autism within their existing community medical settings.

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Building high quality, cross-discipline early childhood intervention workforce in an integrated, comprehensive statewide system of personnel development
Mary Beth Bruder, , A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Jane Squires, University of Oregon, Eugene, OR, OR - Center on Human Development, UCEDD;
David Lindeman, University of Kansas, Parsons, KS, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;

An integrated, comprehensive statewide system of personnel development (CSPD) is essential in building a high quality early childhood workforce. In this discussion session, results of two non-experimental studies will be presented to portray the current status of CSPD across disciplines and states, followed by case studies of four states that partner with a national technical assistance center in early childhood personnel development to systematically develop a sustainable and effective CSPD.

Unleashing Creative Potential: The Role of UCEDDs in Statewide Forums on Arts Employment and Other Arts Initiatives
Katharine Hayward, PhD, Director of Research and Evaluation, Tarjan Center UCLA, UCEDD
Beth Bienvenu, PhD, National Endowment for the Arts, Washington, DC, United States;
Jane Harlan-Simmons, MA, Bloomington, IN, United States, IN - Indiana Institute on Disability and Community, UCEDD;
Karen Heath, MS, Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;
Danielle Reed, MS, MBA, Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;

The Statewide Forums on Careers in the Arts for People with Disabilities program exemplifies a unique partnership between the Tarjan Center at UCLA, UCEDD and the National Endowment for the Arts. This presentation will highlight ways UCEDDs have engaged disability and arts agencies through Forum projects. The Indiana and Alaska UCEDDs will describe arts activities undertaken and partnerships formed to advance employment of artists with developmental and other disabilities.

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Engagement Unleashed: Developing and Implementing a Collaborative Research Agenda for the Convention on the Rights of Persons with Disabilities (CRPD).
Charmaine Crockett, (Moderator), Special Projects Coordinator, Center on Disability Studies, UCEDD/LEND
Robert Stodden, PhD, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Andy Imparato, AUCD, Washington, DC;
Sam Crane, Public Policy Director, Autistic Self Advocacy Network (Invited), Washington, DC, United States;
Sue Swenson, DOE, Washington, DC, United States;

Research endeavors are a critical component towards sustainable and effective implementation and operationalization of the CRPD. How can UCEDDs support the global quest for the full realization of human rights? In this session, we will facilitate critical reflection on how research can inform practice and protection of human rights as well as offer insights into potential broad strategies for capacity building in this area of inquiry.

Parents with Disabilities: Bridging Barriers and Ensuring Rights
Susan Yuan, Ph.D., Emerita, Center on Disability & Community Inclusion, UCEDD
Bernadette Irwin, Baltimore, MD, MD - Kennedy Krieger Institute, UCEDD/LEND;
Kara Ayers, PhD, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND;

This session features two presentations on "Bridging Barriers for Parents with Disabilities through Creative Collaborations" and "Rocking the Cradle: Progress on recommendations to ensure the rights of parents with disabilities and their children."

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National Core Indicators in the Brave New World: Selected Recent Research, Applications, and Expansion to Other Populations
Julie Bershadsky, PhD, Research Associate, Human Services Research Institute
Alexandra Bonardi, MHA, Human Services Research Institute, Cambridge, MA;

The presentation will describe some of the newest and innovative developments in the National Core Indicators (NCI) project. 1) Quality-of-Life Outcomes and Circumstances of Adults with ID/DD Who Need Behavioral Supports 2) Improving Access to and the Use of Data for Individuals with I/DD and their Families 3) Power of Data: How NCI and the new NCI for Aging and Disabilities are helping change the system.