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AUCD - Concurrent Sessions

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Monday, November 10, 2014 2:00 PM - 3:15 PM

Location: Meeting Room Level and Congressional Hall


Wanna Take a Selfie? #CHANGE


Rachel Kallem Whitman, M.S.Ed., Duquesne University Doctoral Student, LEND Trainee, LEND Center of Pittsburgh, LEND
^Josie Badger, DHCE and CRC, PEAL Youth Coordinator, LEND Alumni, Pittsburgh, PA, United States, PA - UCLID Center, LEND;
Sarah Heinzl, B.S. Health and Wellness, LEND Trainee, Pittsburgh, PA, United States, PA - UCLID Center, LEND;

Youth with disabilities experience challenges as they transition into adulthood. To optimize self-advocacy, self-determination, self-awareness, and self-acceptance (or the "selfies"), we need to promote youth led and directed programming. LEND of Pittsburgh has assisted in creating a system-wide CHANGE. CHANGE is a youth led initiative that advises consumers, families, and professionals about the transition process and works to ensure successful transition into adulthood.

The Intersection of Faith and Disability: The Role of UCEDDs in Collaborating with Faith-Based Organizations.


Derek Nord, Ph.D., Program Evaluator, Promise TA Center
Joe Timmons, MSW, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
Penny Seay, Ph.D, Austin, TX, United States, TX - Texas Center for Disability Studies, UCEDD;
Courtney Taylor, M. Div., Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Milton Tyree, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;

This panel presentation will provide an overview of the activities of the Collaborative on Faith and Disability (12 UCEDDs are members). The purpose is to provide attendees an understanding of how faith-based organizations can become valuable partners in enriching the lives of individuals with developmental disabilities. These include training/ technical assistance, web-based information and resources, and a new project funded by the Kessler Foundation supporting faith-based employment ministries.

Aligning CMS 1915(c) Employment Services Waivers and State Policies to Achieve Employment First Outcomes: Intentions vs. Outcomes


Phil Wilson, Ph.D., Director UCEDD, Louisiana State University Human Development Center - New Orleans, UCEDD/LEND
David Mank, Ph.D., Bloomington, IN, United States, IN - Indiana Institute on Disability and Community, UCEDD;
Wendy Parent-Johnson, Ph.D., Souix Falls, SD, United States, SD - Center for Disabilities, UCEDD/LEND;
Susan Killam, M.Ed., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;

Panelists will discuss how state interpretation and use of CMS 1915(c) employment services waivers can impact community employment outcomes for job seekers with ID/DD. The panel will discuss how states' policies and strategies may improve community employment outcomes or actually create unintended barriers to community employment.

Read and download presentation materials >

A Fierce Kind of Love: Engaging Communities through Performance, Image, Story and Dialogue


Celia Feinstein, MA, Project Manager, Institute on Disabilities, UCEDD
Lisa Sonneborn, MFA, Institute on Disabilities, Philadelphia, PA, PA - Institute on Disabilities, UCEDD;
David Bradley, People's Light and Theatre, Malvern, PA;

The Institute on Disabilities has embarked on the creative interpretation of an untold civil rights story - Pennsylvania�s Intellectual Disability Rights Movement. Our play, A Fierce Kind of Love, brings disability history to new audiences and creates opportunities for meaningful dialogue. AFKOL participates in a yearlong roster of arts programming featuring a cast of professional and aspiring actors with intellectual disabilities. Cast members will perform a scene from the play!

The Proclamation on the Dignity and Rights of All Human Beings


Emily Rogers, Ms, WA State Allies In Advocacy

The Proclamation on the Dignity and Rights of All Human Beings was written entirely by a group of people interested in making a positive change in the world, not only for themselves, but for all people. The writers included people with disabilities and partners from our UCEDD, DDC, and DRW in Washington State. Our session will introduce you to the Proclamation, and be the backdrop for a lively discussion.

Evaluating the National Center for Prenatal and Postnatal Down Syndrome Resources as a Meaningful Model for Engaging Profoundly Different Stakeholders


Stephanie Meredith, MA, Medical Outreach Director, Interdisciplinary Human Development Institute, UCEDD/LEND
Mitchell Levitz, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Mark Leach, Lexington, KY, KY - Interdisciplinary Human Development Institute, UCEDD;
Harold Kleinert, Lexington, KY, KY - Interdisciplinary Human Development Institute, UCEDD;

This panel presentation will cover how the National Center for Prenatal and Postnatal Down Syndrome Resources actively engages with local Down syndrome organizations, Developmental Disability Councils, public health departments, medical professionals, other UCEDD/LEND programs, testing labs, and expectant parents/new parents to ensure that medical providers and their patients receive information immediately upon receiving a prenatal or postnatal diagnosis to improve life outcomes for people with Down syndrome and their families.

Engaging Individuals, Families, Providers, Advocates and State Agencies in the Implementation of a Department of Justice Consent Decree to Increase Access to Integrated Employment in Rhode Island


Tony Antosh, Ed.D., Director , The Paul V. Sherlock Center on Disabilities, UCEDD

In February, 2014 the Rhode Island and the Department of Justice reached a settlement to increase access to integrated employment for adolescents/adults with IDD. This ten year agreement is the first statewide agreement that guarantees access to state funded employment in integrated settings. This discussion will focus on how adolescents, adults, families, schools, adult service providers and state agencies can be engaged as partners in implementing the agreement.

Highlights from the National Community of Practice on Supporting Families and Individuals with Intellectual and Developmental Disabilities throughout the LifeCourse


Sheli Reynolds, Ph.D. / Sibling, Director of Individual Advocacy and Family Support, University of Missouri, UCEDD/LEND
Mary Lee Fay, National Association of State Directors of Developmental Disabilities Servies, Alexandria, VA, United States;
Wanda Felty, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
Katie Arnold, Sibling, Sibling Leadership Network, Chicago, IL, United States;
Liz Hect, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Kim Musheno, AUCD, Silver Spring, MD, United States;

Come share in the learning of the National Community of Practice on Supporting Families. Using the LifeCourse framework, this session will highlight policies, practices and structural changes needed to ensure individuals and their families the right to live, love, work, and play in their communities. Lessons learned from state and national partners as well as opportunities to get involved at the state and national level will be provided.

Improving Quality of Life, Healthcare Access and Satisfaction through Parent to Parent Mentorship


Eric Moody, Ph.D, Asst Prof, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND
Philippa Campbell, Ph.D, Thomas Jefferson University, Philadelphia, PA, United States;
Kristen Kaiser, MA, JFK Partners, Aurora , CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;

Improving quality of life and access to care for families of children with disabilities is often difficult, especially in underserved groups. Parent-to-parent mentorship is one strategy to do this. This discussion will address 1) the effect of parent mentorship on low-income, underserved families in early intervention, 2) the effect of mentorship in families of children newly diagnosed with autism and 3) the effect of being a mentor

Increasing Successful Employment of People with Developmental and Intellectual Disabilities: Examples from the Job Accommodation Network (JAN)


Louis Orslene, MSW, MPIA, Co-Director , Job Accommodation Network (JAN)

The Job Accommodation Network (JAN) has been providing workplace accommodation consultation to employers, individuals with disabilities, and others for more than 30 years. These consultations have led to successful employment outcomes for people with developmental and intellectual disabilities. In this session, participants will learn how to use JAN services and accommodation processes as a strategy for workplace inclusion. A number of accommodation cases also will be discussed.

Read and download presentation materials >

Social Media Strategy, Focused Initiatives, and the Disability Community


Day Al-Mohamed, Juris Doctor, CEO, Lead On Network
Patrick Cokley, B.A., Vice President - Lead On Network, Manager - Lead On Update, Washington, DC, United States;
Maria Town, B.A., CEO CP Shoes, Washington, DC, United States;

This discussion focuses on the unique experience of not only using social media to address the disability community, but key elements of successful strategies and the planning of focused initiatives rather than general social media use. This includes successful and unsuccessful models, challenges, and best practices relating to: accessibility, community engagement, and the development of a comprehensive engagement and action plan across a variety of platforms.

Engaging bi-national communities to support a social business manufacturing medical devices: training, employment, and leadership opportunities for individuals with disabilities


Burris Duncan, MD, Professor of Pediatrics & Public Health, Sonoran UCEDD
Heidi Pottinger, MA, MPH, DrPH candidate, UA Mel & Enid Zuckerman College of Public Health, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Francisco Kiko Trujillo, ARSOBO, Nogales, AZ, Mexico;

Learn about the creation and sustainability of a cross-border innovative social business in Northern Mexico, ARSOBO. ARSOBO trains/employs individuals with disabilities to manufacture medical devices they use: all-terrain wheelchairs constructed by wheelchair riders, prostheses fabricated by amputees, and high quality hearing aids with solar-powered hearing aid battery re-chargers assembled by the hard-of-hearing. Each is sold for what families can afford to ensure pride of ownership and maintain dignity.

Engaging diverse students and faculty to create effective mentoring to increase racial and ethnic diversity in academic training programs


Tawara Gooode, MA, Director , Georgetown University Center for Child & Human Development, UCEDD/LEND
Suzanne Bronheim, PhD, National Center for Cultural Competence, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;

This session provides participants with an opportunity to learn about effective models of mentoring diverse students and faculty and provides a framework for engaging diverse students and faculty in implementing or improving mentoring efforts in academic programs to increase racial and ethnic diversity. Input via videos from diverse students and professionals about assuring quality mentoring will provide a basis for a facilitated discussion about applying these concepts.

Inclusive Social Collaborative Learning in a Higher-Education Setting: The Next Frontier


William E. Kiernan, PhD, Director, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Peter Fay, Human Ability and Accessibility Center at IBM, Denver, CO;

This session describes how the University of Massachusetts, Boston School for Global Inclusion and Social Development and IBM Research's Human Ability and Accessibility Center are exploring innovative inclusive technology solutions to improve collaboration among students, faculty, and staff. This pilot project hopes to demonstrate how effective online collaboration outside the classroom contributes to student success in the classroom.

Social Skills Approaches for Adolescents with Autism and Related Disabilities: 3 Approaches


Erik Carter, Professor, Vanderbilt University, UCEDD/LEND
Elizabeth Laugeson, Psy.D., Associate Professor, Tarjan Center UCLA, UCEDD
Jessica Oeth Schuttler, PhD, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
T. Rene Jamison[1],PhD[2],Lawrence[4],KS[5],KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND[7]
Three presentations on: "Finding Alternatives to Adults: Efficacy of Peer Support and Peer Network Interventions for Promoting Inclusion and Peer Relationships," "Evidence-Based, Caregiver-Assisted, Social Skills Training for Young Adults with Autism Spectrum Disorder: The UCLA PEERS Program," and "Girls Night Out: Empowering and Engaging Women and Girls in Our Community."