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AUCD - Concurrent Sessions

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Tuesday, December 4, 2012 1:30 PM - 2:45 PM

Session Description

  • Room F-Fairchild-West: Employment of people with intellectual and developmental disabilities in an international context
  • Room G-Gunston-West: Minimizing Disaster When Disaster Strikes: Emergency Preparedness and Response Planning for Children with Disability
  • Room Columbia 3: Can we achieve both rigor and relevance in federal accountability reporting? Child outcomes of IDEA-funded early childhood programs
  • Room E-Embassy: Realizing the Full Potential of Your CAC through the Utilization of Best Practices and Other Innovative Supports
  • Room D-Du Pont: Improving Transitions from Pediatric to Adult Health Care Settings - the Experience of the NH Health Care Transition Learning Collaborative
  • Room Columbia 11:  Memory, Media, and Meaning: Interpreting Pennsylvania's Intellectual Disability Movement through Oral History, Public Memory, and Public Performance
  • Room F-Fairchild-East: Real Stories of AmeriCorps: Gain Skills, Make Friends, Earn an Education Award and Attend College
  • Room Columbia 4: Creative Partnerships with the "Learn the Signs. Act Early." Campaign
  • Room Columbia 12: Promoting Independence and Self-determination Through Smart Technologies
  • Room C-Cardozo: Expanding Diversity and Cultural Competence in LEND
  • Room G-Gunston-East: Understanding the New HUD Section 811 Project-Based Rental Assistance Demonstration Program

View session descriptions below.

 




Presenters

Employment of people with intellectual and developmental disabilities in an international context
David Mank, Ph.D., Director, Indiana Institute on Disability and Community
Miguel Angel Verdugo, Ph.D., Institute on Community Integration, University of Salamanca, Salamanca, DC, Spain;
Borja Jordan de Urries, Ph.D., Institute on Community Integration, University of Salamanca, Salamanca, DC, Spain;
Wendy Parent, Ph.D., Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Michaeel Wehmeyer, Ph.D., Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;

Employment for people with intellectual and developmental disabilities is emerging worldwide. While not the prevalent outcome in any country, the focus on employment as the best possible outcome for adults with disabilities has been renewed by people with disabilities as well as by service delivery systems. The vision and developments of supported employment in the USA and in Europe will be the focus of this session.


Minimizing Disaster When Disaster Strikes: Emergency Preparedness and Response Planning for Children with Disability
Georgina Peacock, MD, MPH, Division Director, Centers for Disease Control and Prevention
Daniel Dodgen, PhD, MA, Department of Health and Human Services, Washington, DC, United States;
Michael Bartenfeld, MA, Centers for Disease Control and Prevention, Atlanta, GA, United States;

This session, led by a presentation from the CDC, seeks to bring together experts on children with disability and experts in emergency preparedness to come to an understanding of specific challenges faced by these populations during disaster preparedness planning and response as well as brainstorm potential solutions, resulting in a few possible and concrete directions for action that public health agencies can take to close these gaps and implement solutions.


Can we achieve both rigor and relevance in federal accountability reporting? Session 1: Child outcomes of IDEA-funded early childhood programs
Cordelia Robinson Rosenberg, PhD, Professor, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND
Kathy Hebbeler, PhD, SIR International Center for Education and Human Services, Davis, CA, United States;
Batya E Elbaum, PhD, University of Miami, Coral Gables, FL, United States;
Julia Martin Eile, Office of Special Education Programs , Washington, DC, United States;
Pam Miller , Maryland State Department of Education, Baltimore, MD, United States;

Under the re-authorized Individuals with Disability Education Act (IDEA), states have been required to address an accountability indicator related to outcomes of children who participate in IDEA-funded early intervention and early childhood programs. This panel will explore challenges involved in developing a child outcomes reporting system that will provide valid and useful information to diverse stakeholders including the federal government, states, local programs, service providers, and families.


Realizing the Full Potential of Your CAC through the Utilization of Best Practices and Other Innovative Supports
Dawn Olson, BS, Consumer Liaison, North Dakota Center for Persons with Disabilities, UCEDD
Gordon Richins, BS, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Carl Durocher, Madison, WI, United States, WI - Waisman Center - IDDRC;

The DD Act requires UCEDDs to have Consumer Advisory Councils (CACs). This requirement provides a structure for self-advocates and family members to influence the strategic planning process and provide ongoing input to UCEDDs. AUCD?s COCA builds the capacity of CACs to have greater impact in their roles through technical assistance and dissemination of information about exemplary practices. This session will provide solutions and offer strategies for building an indispensable CAC.


Improving Transitions from Pediatric to Adult Health Care Settings - the Experience of the NH Health Care Transition Learning Collaborative
W. Carl Cooley, MD, Co-Director, GotTransition - National Health Care Transition Center
Jeanne W. McAllister, BSN, MS, MHA, National Health Care Transition Center, Concord, NH, United States;
Rae Sonnenmeier, PhD, CCC-SLP, Durham, NH, United States, NH - New Hampshire LEND Program;
Beth HIllsgrove, BS, Durham, NH, United States, NH - New Hampshire LEND Program;
Mallory Cyr, BFA, National Health Care Transition Center, Concord, NH, United States;

While best practices for health care transition have been clear for a decade, their implementation has been limited. Using new clinical guidelines from primary care professional associations in a quality improvement model, the National Health Care Transition Center has supported successful regional learning collabortives with primary care practices. In NH, LEND trainess participated actively in the process. Panel members will describe the results from various perspectives.

Read and download presentation materials >


Memory, Media, and Meaning: Interpreting Pennsylvania's Intellectual Disability Movement through Oral History, Public Memory, and Public Performance
Celia Feinstein, Executive Director, Institute on Disabilities, UCEDD
Lisa Sonneborn, MFA, Institute on Disabilities at Temple University, Philadelphia, PA, United States;
Kelly George, ABD, Mass Media and Communications, Temple University, Philadelphia, PA, United States;

Filmmaker Lisa Sonneborn will discuss Visionary Voices, an online oral history project which tells the story of Pennsylvania?s Intellectual Disability Movement. Kelly George, Temple University Doctoral Candidate in Mass Media and Communications, will present her compelling research on the "haunted history" of the Pennhurst State School and Hospital


Real Stories of AmeriCorps: Gain Skills, Make Friends, Earn an Education Award and Attend College
Paula Sotnik, B.S., Senior Research Associate , Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Jewel Bazilio-Bellegarde, MS, CNCS, Washington, DC, United States;
Waisman Center, TBA, Madison, WI, United States;
Erin Gannon, MS, Institute for Community Inclusion, Boston, MA, United States;

National service is a proven avenue through which individuals can gain skills, explore educational and career paths, develop networks and make a difference in their communities. This session will identify strategies and share related tools for using AmeriCorps to advance post secondary opportunities, pay for college, student loans or fund accommodations utilizing the Segal Education Award. Stories of young adults who served in AmeriCorps and used their education award for college will be highlighted.


Creative Partnerships with ?Learn the Signs. Act Early.? Campaign
Tory Christensen, Sr Project Specialist, Virginia Department of Health, SDHG
Catherine Rice, PhD, CDC/NCBDDD, Atlanta, GA;
Janet Farmer, Ph.D., ABPP , University of Missouri, LEND/UCEDD, Columbia, MO;
Rae Sonnenmeier, PhD, CCC-SLP, NH Act Early Ambassador; New Hampshire LEND Program, Durham, NH;
Tracy Golden, PhD, MSW, UT Act Early Ambassador, Center for Persons with Disabilities, LEND/UCEDD, Salt Lake City, UT;
Barbara Leavitt , Utah Help Me Grow, Provo, UT;

One key outcome from CDC?s ?Learn the Signs. Act Early.? program has been the development of partnerships and collaborations with early childhood programs to improve early identification of autism and other developmental disabilities. This panel will highlight activities and early outcomes resulting from creative partnerships with the Act Early campaign.

Read and download presentation materials >


Promoting Independence and Self-determination Through Smart Technologies
David O'Hara, Ph.D., COO, Westchester Institute for Human Development, UCEDD/LEND
^|Jennifer Cullen, MEd, Columbus, OH, OH - The Nisonger Center, UCEDD/LEND;
Dan Davies, MSc, AbleLink Technologies, Colorado Springs, CO
This session will include brief demonstrations followed by discussion on how accessible smart technologies and new software applications support increased independence in daily living as well as greater self-determination in their health care by people with I/DD. Results and recommendations for practice will be given.


Expanding Diversity and Cultural Competence in LEND Programs
Stephen Gilson, PhD, Coordinator, Interdisciplinary Disability Studies, The University of Maine, Center for Community Inclusion, UCEDD
^|Sheryl Mathis, MSW, MPH, Altarum, Inc, Washington, DC
This session will describe two approaches to expanding diversity and cultural competence. First, an innovative approach to cultural competence within one LEND program in a rural area, and second, the Diversity in MCH Training Peer Learning Collaborative.


Understanding the New HUD Section 811 Project-Based Rental Assistance Demonstration Program
Andrew Sperling, Dreictor of Legislative Advocacy, National Alliance on Mental Illness
Ann O'Hara, Technical Assistance Collaborative, Boston, MA;
Andrew Sperling, National Alliance on Mental Illness, Arlington, VA;

This workshop will provide background information on HUD's 811 PRA Demonstration and the Frank Melville Supportive Housing Investment Act of 2010 that authorizes this new program. Participants will gain an understanding of how the program reforms the 811 capital advance/PRAC program to promote investment in more integrated housing opportunities for people with disabilities.