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AUCD - Concurrent Sessions #33-40

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Tuesday, November 8, 2011 03:00PM - 04:15PM

Location: Third Floor Meetings Rooms & Potomac Rooms I&II


Presenters

Developing LEND Advocates: Law Student Fellows and Self-Advocate Fellows
Sheryl Dicker, J.D., Asst. Prof. Pediatrics, Rose F. Kennedy Center, UCEDD/LEND
Robert Marion, M.D, Executive Director, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Tia Nelis, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;

This session will tell the story of the creation and implementation of a LEND fellowship for law students as well as self-advocates. Training law students to be advocates for children with disabilities not only advances a growing discipline but also enhances the advocacy skills of all trainees. Including self-advocates on a LEND team enhances the advocacy skills of the individuals and provides an important viewpoint for all members of the team.


Updates on Research and Practice in Aging and ID
Matthew Janicki, PhD, Director-Technical Assistance, Institute on Disability & Human Development, UCEDD/LEND
Seth M. Keller, MD, AADMD, Louisville, KY, United States;
Sarah Taub, MMHS, Human Services Research Institute, Boston, MA, United States;
Charles Moseley, EdD, National Association of State Directors of Developmental Disabilities Services, Washington, DC, United States;
Tamar Heller, PhD, Chicago, IL, United States, IL - Illinois Department of Public Health, SDHG;
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Findings and recommendations from the National Task Group on ID and Dementia Practices will be shared, followed by current research on the characteristics and outcomes of older adults with ID from the National Core Indicators Consumer Survey and age-related trends and outcomes based on a study of the experiences of families using consumer-directed services in Illinois.?


Successful Systems Change: Expanding Our Tool Set
Stephan Viehweg, MSW, Associate Director, Riley Child Development Center - IN LEND
Rylin Rodgers, BS, Family Leadership Coordinator, Indianapolis, IN, United States, IN - Riley Child Development Center - Indiana University, LEND;
Parthenia Dinora, PhD, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND;
Tera Yoder, EdD, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND;
Mary Lou Bourne, Support Development Associates, LLC, Annapolis, MD;
Rie Kennedy, MBA, NASDDDS, Alexandria, VA;

Successful systems change efforts require time, thoughtful planning, patience, and evaluation. Two success stories share lessons learned. In Indiana, the Early Childhood Comprehensive System project Sunny Start maximized resources to implement an infant mental health endorsement system. In Virginia, the Partnership for People with Disabilities participated in a multistate, multiagency team implementing a person-centered planning systems change initiative in six states called Becoming a Person-Centered Organization (BPCO). These successful efforts offer insights into how research, policy, and practice contribute to systems change.


Changing training practices of adult support providers: Findings show that training, mentoring, and technical assistance matter.
Derek Nord, Ph.D., Program Evaluator, Promise TA Center
Amy Hewitt, Ph.D., Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
Matthew, Bogenschutz, School of Social Work, Adelphi University, Garden City, NY, United States;
Alberto Migliore, PhD, Boston, MA, United States, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND;

The presentation will discuss findings from two intervention studies assessing competency-based training programs for direct support professionals. One study targeted professionals in residential, employment, and non-work day settings, whereas the other study targeted professionals in employment settings. Both studies showed that the interventions resulted in better outcomes.

Read and download presentation materials >


Improving Outcomes for College Students with Disabilities Through Collaboration Between UCEDDs
Ann Keefer, PhD, Project Coordinator, Institute on Disabilities, UCEDD
Diane Nelson Bryen, EdD, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Lucille Zeph, EdD, Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;
Tina Passman, PhD, Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;

This panel describes a collaborative effort between two UCEDDs to improve post secondary education for students with disabilities through curriculum transformation and universal design for learning. Our fully-accessible Guide to Embedding Disability Studies in the Humanities will be made available to audience members to enable capacity building and replication.


Inclusive Post Secondary Education: Multi State Responses to Capacity Building through Collaboration and Strategic Planning
Wendy Parent-Johnson, Ph.D, Research Professor and Assistant Director, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
Richard Johnson, Ph.D, Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Kathy Olson, Ph.D., Parsons, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Deborah Circo, Ph.D., Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Sandy Root-Elledge, MA, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
William MacLean JR, Ph.D, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
Rebekah Moras, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Daniel Bier, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Jeff Sheen, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;

This session will present the activities and results of the 2011 Think College mini grant recipients. States will share lessons learned, challenges and issues, strategies and accomplishments, and recommendations for other interested states to assist with their efforts to promote inclsivevpost secondary opportunities for individuals with intellectual and developmental disabilities.


Distance Learning: Lessons Learned
Rachel Brady, PT, DPT, MS, Research Assistant Professor, Georgetown University Center for Child & Human Development, UCEDD
Gaetano Lotrecchiano, EdDc, PhD, Washington, DC, United States, DC - Children's National Medical Center, LEND;
Toby Long, PHD, PT, FAPTA, Washington, DC, United States, DC - Children's National Medical Center, LEND;
Laurie Lyons, MA, George Washington University, Washington, DC;
John Richards, MA, AITP, Washington, DC, DC - Georgetown University Center for Child & Human Development, UCEDD;
Michaela Zajicek-Farber, PhD, MSW, Cathlic University of America, Washington, DC, DC - Children's National Medical Center, LEND;

A panel will discuss how new technologies, practices, and collaborations are being incorporated into the AUCD network. Creative design, implementation strategies, accomplishments, challenges, and lessons learned will be shared.


What is the 'DD Network'?
George Jesien, PhD, Executive Director, AUCD
Curtis Decker, JD, National Disability Rights Network (NDRN) Executive Director, Washington, DC, United States;
Michael Brogioli, MPP, National Association of Councils on Developmental Disabilities (NACDD) Chief Executive Officer, Washington, DC, United States;

ADD's Developmental Disability Network aka the 'DD Network' is an essential resource to the disability community both within states and at the national level. The executive directors from each of the DD Network's national organizations (AUCD, NDRN and NACDD) will give a brief overview of the their organization and discuss past, present and future cross-network collaborations.