AUCD - Welcome Reception and Posters: Poster Hall
<< Back to ProgramMonday, November 1, 2010 7:00 pm - 9:00 pm
Location: Independence Center A/B
Presenters
First Step to Success in Hawai`i PreschoolsPresenter(s)
Jean Johnson, DrPH, Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramNaomi Rombaoa Tanaka, MS, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
Susan Mrazek, MA, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
Ranilo Laygo, PhD, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
First Step to Success is a program designed to help reduce antisocial behaviors and increase school readiness. Program overview and updated information about the implementation of First Step to Success in select Hawai`i preschool classrooms will be shared.
Family-Centered Caregiving at the Kennedy Krieger Institute: A Research Update
Presenter(s)
Melissa Bellin, PhD, LCSW, Assistant Professor, Univ. of Maryland-school of social workJudith Levy, MSW, MA, Kennedy Krieger Institute, Balitmore, MD, MD - Kennedy Krieger Institute, UCEDD/LEND
Mary Vogel, MSW, LCSW-C, Kennedy Krieger Institute, Baltimore, MD, MD - Kennedy Krieger Institute, UCEDD/LEND
Philip Osteen, PhD, MSW, University of Maryland, Baltimore, MD
Caitlin Corcoran, BA, University of Maryland, Balitmore, MD
This session presents findings from research that explored parent and healthcare professional perspectives on the extent to which family-centered care is being provided to children with special healthcare needs at the Kennedy Krieger Institute.
For Hire: Educating Employers about Hiring Young Adults with Intellectual or Developmental Disabilities
Presenter(s)
Lisa Katz, MSW, LEND faculty, Westchester Institute for Human Development, UCEDD/LENDAmy Lieberman, LEND Trainee Graduate, Valhalla, NY, NY - Westchester Institute for Human Development, UCEDD/LEND
Ilene Miller, LEND Trainee Graduate, Valhalla, NY, NY - Westchester Institute for Human Development, UCEDD/LEND
Erin Reedy, LEND Trainee Graduate, Valhalla, NY, NY - Westchester Institute for Human Development, UCEDD/LEND
The purpose of this study is to research best practices in enhancing employers hiring of young adults with intellectual or developmental disabilities. More than 70% of High School gruates with ID/DD are faililng to find gainful employment and therefore depend on public supports. Succes in hiring requires addressing employers' concerns.
Disability, Health, and the Behavioral Risk Factor Surveillance System: Using Health Data to Inform Disability Policy in Delaware
Presenter(s)
Paul Galonsky, MPA, Disability Leadership Policy FellowThis session will report on data taken from the Behavioral Risk Factor Surveillance System for years 06, 07, and 08 to illustrate the extent to which health indicators, health behaviors, and chronic health conditions among adults with disabilities can influence disability and health policy in the State of Delaware. The analysis demonstrates the need for policymakers to consider using the BRFSS to create and implement disability health policy.
Neurodevelopmental Differences in the Classroom
Presenter(s)
Catherine Borelli, M.ED, Autism Inclusion Facilitator, INACTIVE-University of New Hampshire, LENDTeachers are concerned about the prevalence of children with neurodevelopmental differences in their classrooms who are unidentified by the current special education or early intervention systems. Schools lack standardized tools, such as the M-CHAT, for screening children whose neurodevelopmental differences may be on the autism spectrum. Teachers want to know how to support children with neurodevelopmental differences so that they may achieve in school.
Perceived Programming needs of children with ASD and their families
Presenter(s)
Jennifer Doris, M. Ed, Early Childhood Manager, INACTIVE-Institute on Disability, UCEDDLora James, M.ED, NH IOD UCCED, Durham, NH
What information and guidance do families need to make informed decisions regarding intervention choices ? The information gained from this study will be used to identify the perceived programming and resource needs of families with a young child with an Autism Spectrum Diagnosis in the following areas: a) program characteristics, b) education and resources, and c) family support.
LEND program evaluation: The use of retrospective pre-post ratings of LEND competencies
Presenter(s)
Lenore Holte, Ph.D., LEND Director, Center for Disabilities and Development, UCEDD/LENDSuzanne Pearson, M.A., Iowa City, IA, IA - Center for Disabilities and Development, UCEDD/LEND
Marcy Rosenbaum, Ph.D., NOT ATTENDING MEETING, Iowa City, IA, IA - Center for Disabilities and Development, UCEDD/LEND
This poster will highlight a useful strategy for LEND program evaluation. Each academic year, trainees complete a pre and post self-assessment of the MCHB Leadership competencies and uniquely, a retrospective assessment of pre-training knowledge. This strategy provides a more accurate measure of the benefit of training.
CAC Best Practices
Presenter(s)
Dawn Olson, Consumer Liaison , North Dakota Center for Persons with Disabilities, UCEDDDeb Unruh, CAC Chair, Dickinson, ND
This poster session will demonstrate ?Best Practices? and activities of the Consumer Advisory Council (CAC) of the North Dakota Center for Persons with Disabilities (NDCPD).
Writing Our Journey: Poems and Essays by Family Caregivers
Presenter(s)
Kathy Roberson, MSW, Policy & Information Coordinator, The Boggs Center on Developmental Disabilities, UCEDD/LENDThe Boggs Center?s Writers? Group for Family Caregivers provides parents of children with developmental disabilities a unique opportunity to tell their own stories, in their own words. The poster includes poems and essays that create a powerful picture of the often unspoken thoughts and feelings of family caregivers.
A Needs Assessment Survey of Connecticut Pediatricians concerning Screening and Referral of Toddlers for Autism Spectrum Disorders
Presenter(s)
Christine Raymond, BSN, RN, LEND fellow, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LENDThis needs assessment identifies trends in methodology of screening and referral among Connecticut pediatricians for developmental delays and ASDs in toddlers. It presents data describing professional opinions and routine practices of Connecticut pediatricians emphasizing potential barriers to universal screening of all toddlers and consistency of referrals per the AAP recommendations.
An Online Module for Early Detection of ASD for Health Care Providers
Presenter(s)
Patricia Towle Towle, Ph.D., Psychology Training Director, Westchester Institute for Human Development, UCEDD/LENDDescribed is an internet-based module for healthcare practitioners for early detection of ASD. It is intended to teach background knowledge and observational skills to complement use of autism screening instruments. Extensive video illustrates the three DSM symptom domains. In addition to content, the process of module development will be discussed.
How to Improve Quality of Life Questionnaires: a Delphi Study Using a Multidisciplinary Professional Panel
Presenter(s)
Miguel Angel Verdugo, PhD, INICOLaura E. Gómez , Valladolid, AB, Spain, IF - INICO
Benito Arias, Valladolid, AB, Spain, IF - INICO
Patricia Navas, Salamanca, AB, Spain, IF - INICO
Alba Rodríguez, Salamanca, AB, Spain, IF - INICO
A three-round Delphi study was uses to improve the Integral Scale (a comprehensive questionnaire to assess quality of life in adults with intellectual disabilities) taking special care to avoid the ceiling effect and including sensitive quality of life indicators that can be improved by social services.
Taking a Closer Look at Leadership Training: An Analysis of the MCH LEND Program
Presenter(s)
Heather McDermott, M.Ed., Ms., Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramIdentification of successful leadership training programs will better inform training practices in the field. The aim of this study was to describe training outcomes among the similarly funded LEND training programs of University of Utah, University of Oklahoma, University of New Mexico, University of Nebraska, and Virginia Commonwealth University.
Implementing a Medical Home Model of Health Care for People with Disabilities
Presenter(s)
Marco Damiani, M.A., Senior Director of Clinical and Family Services, YAI NetworkPeter DellaBella, M.D., Premier HealthCare, New York, NY
Brigida Hernandez, Ph.D., YAI Network, New York, NY
Health disparities experienced by the disability community are well-documented and underscore the critical need to address service provision to this group. A case study will be presented on efforts to establish a Medical Home practice within a large health care system providing services to individuals with intellectual and developmental disabilities.
Developmental Disabilities Across the Lifespan: An Interdisciplinary Problem-Based Learning Approach
Presenter(s)
Angela Rosenberg, PT, DrPH, Associate Professor and Training Director, Carolina Institute for Developmental Disabilities, UCEDD/LENDEmily Furgang, OT, UNC-CH Division of Occupational Science, Chapel Hill, NC, NC - Center for the Study of Development and Learning, UCEDD/LEND
The focus of this exclusively problem-based course is to prepare interdisciplinary graduate students to acquire advanced knowledge of developmental disabilities and prepare them as evidence-based clinicians, advocates, and change-agents relative to contemporary practice issues in the DD arena. Through a format of case-based inquiry targeting all levels of the MCH Pyramid, participants develop the knowledge and skills necessary to provide a vast array of services for individuals with developmental disabilities.
Understanding the Law on Classroom Placement: A Workbook for Parents
Presenter(s)
Laura Kern, JD, LEND Fellow, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LENDThis Workbook is for parents of children with special needs, focusing on the issues of classroom placement: the IDEA, the Least Restrictive Environment, inclusion, and ways to enhance inclusion. The Workbook is designed for parents to read, reflect, and apply knowledge of classroom placement to the education of their child.
Gross Motor Skills of Individuals with High Functioning Autism
Presenter(s)
Catherine Wilson, DPT, Physical Therapy Trainee, Carolina Institute for Developmental Disabilities, UCEDD/LENDIn addition to hallmark features of deficits in communication and language, social difficulties, and the presence of repetitive/stereotyped behaviors and interests, some children with autism spectrum disorders (ASD) display motor deficits. This poster reveals differences in motor skills between children with high functioning ASD and typically developing children as assessed using the Bruininks-Oseretsky Test of Motor Proficiency.
Achieving Improved Neurodevelopmental Outcomes of Neonatal Intensive Care through the Combination of Developmental Therapy, Single-Family Room Design and Family-Centered Care
Presenter(s)
Dennis Stevens, MS, MD, SD LEND Program Director, Center for Disabilities, UCEDD/LENDSDSDSDSDSDSDSDSD
This session will address a variety of issues at the root of origin of many neurodevelopmental disabilities. Didactic presentation will be enhanced by visual aids including photographs and video clips to illustrate the discussion. Questions will be entertained throughout the discussions with liberal time allowed for discussion and comment by attendees.
International employment preparation curriculum
Presenter(s)
Marilyn Hammond, Ph.D., Associate Training Director, Institute for Disability Research, Policy & Practice, UCEDD/LENDMarilyn Hammond, PH.D., Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Sachin Pavithran, M.S., Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Jefferson Sheen, M.S., Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
This presentation will describe the development and field-testing of an employment readiness curriculum for individuals with disabilities that was developed collaboratively with a faith-based organization with the potential to be used in 103 countries
Development of the Auditory Behavior Questionnaire (ABQ)
Presenter(s)
Kelsey Egelhoff, M.A., Doctoral Candidate/LEND trainee, The Nisonger Center, UCEDD/LENDChildren diagnosed with Autism Spectrum Disorders (ASD) may exhibit abnormal behavioral responses to sound that can be very disruptive in daily interactions and functioning. The Auditory Behavior Questionnaire (ABQ) is an assessment tool being developed to categorize abnormal behavioral responses to sound commonly reported in children diagnosed with ASD.
Improving Student Transition Outcomes for Employment through Self-Determination
Presenter(s)
Elizabeth Fussell, M.S., Director, Center on Disability and Employment, Center on Developmental Disabilities, UCEDD/LENDSusan Palmer, Ph.D., Lawrence , KS, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
Erik Carter, Ph.D., Madison, WI, WI - Waisman Center, UCEDD/LEND
Self-determination can support seamless transition from school-to-work. University Centers of Excellence in Developmental Disabilities can facilitate increased capacity of schools and agencies to meet the multifaceted needs of adolescents. Faculty from three UCEDDs will combine their expertise to present effective and recommended practices for promoting self-determination, fostering early employment experiences, and building social capital. Participant discussion and handouts will build their capacity to foster self-determination in transition and employment.
Children with Early Hearing Loss and Existing Comorbid Health Conditions in New Jersey: State Data and The Experience of Families
Presenter(s)
Carrie Coffield, PhD, Interdisciplinary Training Coordinator, The Boggs Center on Developmental Disabilities, UCEDD/LENDRobyn Carroll, MSW, New Brunswick, NJ, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD
Caroline Coffield, PhD, New Brunswick, NJ, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD
Kathy Roberson, MSW, New Brunswick, NJ, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD
This study examined the experiences and needs of families with a young child with a hearing loss and another health condition/disability. Results speak to families? perceptions about the experience of raising a child with multiple health conditions, and how health care providers can more effectively meet the needs of these children and families.
I Want a Job Now: Teaching Deaf and Hard of Hearing Students to Compete for Employment Opportunities
Presenter(s)
Chris Harper, Sr, BA, MBA, President, Youth Transitions, IncThe Youth Transitions Culinary Arts program prepares Deaf and Hard of Hearing students to compete for jobs in the foodservice industry. We train students in an inclusive environment. Students receive hands on training in all areas of culinary arts, with emphasis on mastering three job skill areas in the foodservice industry.
Specialized Health Needs Interagency Collaboration: A Model for Successful Community Integration of Children with Specialized Health Care Needs
Presenter(s)
Joan Carney, M. Ed., Director Fairmount Rehabilitation ProgramsThis poster will provide attendees with documentation of a successful partnership between a specialized health care facility and a state department of education to provide the training and technical assistance necessary for children with specialized health care needs to be safely and successfully integrated into their community schools and activities.
Investigating the Wellbeing of Parents Raising Children with Disabilities: The Contribution of Individual, Environmental, and Appraisal Variables
Presenter(s)
J. Aaron Resch, M.S., Trainee, Center on Disability and Development, UCEDDMichael Benz, Ph.D., Center on Disability and Development at Texas A&M University, College Station, TX, TX - University Center for Excellence in Developmental Disabilities, UCEDD
Understanding what factors influence the wellbeing of informal caregivers such as parents raising children with disabilities has become increasingly important. This study investigated the determinants of parent wellbeing using a contextual model which simultaneously examines the influence of individual, environmental, and appraisal variables. Results provide further support for family-centered practices.
Corporation for National and Community Service and Disability Inclusion
Presenter(s)
Jewel Bazilio-Bellegarde, Sr.Training Officer for Disability Inclusion, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LENDJason Wheeler, U-MASS Boston , Boston, MA
An overview of the Corporation for National and Community Services' initiatives on including people with disabilities in national service.
Universal Design for Learning, Cultural Diversity & Mentoring: How Lessons Learned at the University of Hawaii can be Applied Anywhere
Presenter(s)
Steven Brown, Ph.D., Associate Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramKelly Roberts, Ph.D., Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
Megan Conway, Ph.D., Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
Staff from the Center on Disability Studies at the University of Hawaii have formally offered trainings on Universal Design for Learning, Cultural Diversity or Multiculturalism, and Mentoring for faculty and students since 2005. Examples from training, products, and, if possible, a website will be demonstrated and shared in this presentation.
ACT Early for Autism Hawaii
Presenter(s)
JoAnn Yuen, EdD, Associate Director, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramJean Johnson, PhD, Center on Disability Studies, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
HIHIHIHIHIHIHI
ACT Early for Autism is a partnership between Hawaii and the CDC to educate parents about the early signs of autism spectrum disorders (ASD) and to advocate for developmental screening (M-CHAT) and intervention.
Diabetes Awareness & Prevention on ND Indian Reservations
Presenter(s)
Kari Schmidt, M.S., Program Director, North Dakota Center for Persons with Disabilities, UCEDDCandace Muggerud, B.S., KAT Communications, Bismarck, ND
ND Disability Health Project, the ND Department of Health, and KAT Communications collaborated to promote diabetes awareness and prevention on ND reservations. The character ?Arnold? originated in a Diabetes education booklet designed specifically for ND tribes, was brought to life through animation, and is featured at Indian Health Services on GoodHealth TV.
Exploring the Choices of Youth with Disabilities in Selecting Preferred Settings for Participation in Leisure Activities
Presenter(s)
Julie Christensen, LMSW, AUCD Director, Center for Disabilities and Development, UCEDD/LENDLittle is known about the factors that influence youth choice regarding participation in leisure. To address this gap, a model is presented to guide future research aimed at exploring what types of social settings are desired for leisure activities, and when and for what purpose different settings are utilized.
LEND?s Family Growth Chart: Findings from the LEND Family Discipline Workgroup 2010 Survey
Presenter(s)
Fran Goldfarb, MA, CHES, Director, Community Education, USC, Childrens Hospital, UCEDD/LENDSheryl Feuer, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND
Mark, Smith, MS, Ohmaha, NE, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Family has been a discipline in LENDs for over 15 years. All LENDs are unique and so is the Family Discipline within each program. We will share findings from the 2010 LEND Family Discipline Survey, reflecting the range, character and diversity of the Family Discipline in LEND Programs.
Project Step Up: A brief intervention to reduce alcohol use in youth with Fetal Alcohol Spectrum Disorders
Presenter(s)
Mary J. O'Connor, PhD, ABPP, Project Step Up: A brief intervention to reduce al, Tarjan Center UCLA, UCEDDProject Step Up proposes to reduce alcohol consumption and alcohol-related negative outcomes in adolescents with Fetal Alcohol Spectrum Disorders (FASDs) by providing a brief intervention to cope effectively with the pressures associated with alcohol misuse. The intervention consists of 6 group sessions, of 60 minutes each, delivered over the course of 6 weeks to youth 16-18 years of age.
Enabling Community Participation for Adults with Spina Bifida in the Bronx: A Partnership for Success.
Presenter(s)
Lillian Kornhaber, PT, MPH, Supervisor of Physical Therapy, Rose F. Kennedy Center, UCEDD/LENDElizabeth Ridgway, OTR, OTD, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
Joanne Siegel, LCSW, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
Luz Cantres , Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
Robert Marion, MD, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
The Lourdes Garcia Adult Spina Bifida Support Group was developed to provide education, support and socialization for adults with spina bifida. The group partnered with clinicians to obtain grant funding from The Christopher & Dana Reeve Foundation for participation in social and leisure activities not previously accessible in our community.
Helping Parents Navigate Systems for Autism and Other Developmental Disabilities: Strategic Resource Utilization for Allied Health Professionals
Presenter(s)
Lily Nalty, M.A., CCC-SLP, Director, TA Specialist, South Carolina Part C, Center for Disability Resources, UCEDD/LENDCheryl Rhodes AUCD Fellow and family member, MS, CDC/NCBDDD (federal partner), Atlanta, GA
Georgina Peacock, MD, MPH, CDC/NCBDDD (federal partner), Atlanta, GA
Martha Alexander, MA, CCP-SLP , CDC/NCBDDD (federal partner), Atlanta, GA
This session will address the role of allied health care professionals in early identification and early intervention for young children with autism and other developmental disabilities, providing resources and referrals as an intervention and family empowerment strategy, current research on practitioner resource needs, and tools and recommendations for resource evaluation.
Experiences of AUCD-CDC Fellows: Epidemiology, Surveillance, and Health Communication Perspectives on Developmental Disability
Presenter(s)
Cheryl Rhodes, MS, AUCD-CDC Fellow, CDC/NCBDDDIsmaila Ramon, AUCD Fellow, MPH, NCBDDDD/CDC, Disability and Health Branch, Atlanta, GA
Vijaya Kancherla, AUCD Fellow, MS, National Center on Birth Defects and Developmental Disabilities, Developmental Disabilities Branch, Atlanta, GA
This sesion will include presentations by each of the current AUCD-CDC fellows who will describe their roles, current activities and research, and reflect on the fellowship experience. In addition, the presenters will discuss the benefits of the fellowship, strengths of working at CDC, and supports provided by AUCD.
The Public Health/ Policy Perspective in MCH Training: LEND/New York State Title V Collaboration through Trainee Evidence-Based Projects
Presenter(s)
Karen Edwards, MD MPH, Director of Training, Center on Disability and Development, UCEDDChristopher Kus, MD MPH, New York State Department of Health, Albany, NY
Susan Slade, RN, MS, CHES, New York State Health Department, Albany, NY
Patricia Towle PhD, WIHD, Westchester, NY
LEND trainees and faculty from Westchester Institute for Human Development meet annually with Title V leadership and staff at New York State Department of Health (DOH) to present LEND ?Evidence-based Projects? and learn about MCH/CSHCN Programs. Resulting collaboration between teams and DOH staff strengthen the public health perspective of projects.
Community Conversations: Increasing Inclusive Opportunities through Parent-led Community Conversations
Presenter(s)
Erik Carter, Associate Professor, Waisman Center, UCEDD/LENDMolly Cooney, BA, Madison, WI, WI - Waisman Center, UCEDD/LEND
WIWIWIWIWIWIWI
Increasing inclusive opportunities for children and youth with significant disabilities in their schools and communities involves the participation of the greater community. This poster presentation will share the results and strategies from a research project that prepared parents across Wisconsin to facilitate structured, community-wide conversations on improving meaningful inclusion.
Advances in Autism Policy
Presenter(s)
Lorri Unumb, J.D., Esq., Autism SpeaksThe presenter will discuss recent advances in autism policy, particularly the 20+ state health insurance mandates that have passed since 2007. This session will help consumers benefit from these new laws by equipping them with coverage details as well as an understanding of the legislative intent behind the enactments.
Help Me Grow National Replication Project: Building a System that Connects Families to Services and Supports
Presenter(s)
Joanna Bogin, MS, National Program Manager Help Me Grow, Connecticut Children's Medical CenterHelp Me Grow provides a cost effective, efficient, and user-friendly mechanism for indentifying children at risk for developmental and/or behavioral problems and linking the children and their families to community-based programs and services. This session will describe the Help Me Grow system, lessons learned and replication opportunities.
Making Employment Services Accessible to All in Rural Appalachia
Presenter(s)
Jennifer Tenney, Master of Arts, Program Manager, Center for Excellence in Disabilities, UCEDD/LENDEnhancing current employment services in West Virginia by the use of web cameras and internet chat software to provide "instant" access to four Community Work Incentives Coordinators stationed in regional offices.
VA LEND: Collaborating with Rural School Divisions to Train Multidisciplinary Autism Assessment Teams
Presenter(s)
Joann Bodurtha, MD, MPH, LEND Director, Partnership for People with Disabilities, UCEDD/LENDDonald Oswald, PhD, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND
Donna Gilles, EdD, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND
Judy Sorrell, Shenandoah Valley Regional Program, Fisherville, VA, VA - Virginia Department of Health, SDHG
Presenters will discuss collaborative efforts to develop school-based multidisciplinary autism assessment teams in rural areas. Using a strategic planning process over a 2-year period, school personnel received training and mentoring in the administration of ?gold-standard? diagnostic instruments, multi-disciplinary team functioning and family-centered practice.
DirectConnect-Securing the Workforce for NH's Future
Presenter(s)
Susan Fox, Associate Director, INACTIVE-Institute on Disability, UCEDDJennifer Rabalais, Concord, NH, NH - Institute on Disability, UCEDD
Scott Trudo, Concord, NH, NH - Institute on Disability, UCEDD
Presentation will provide a summary of NH?s DirectConnect program, a 3 year project funded by the US Department of Labor. DirectConnect addresses multiple issues within NH?s Direct Support Workforce including issues around current and projected workforce shortages, training, and retention. DirectConnect presents a multi-prong approach to these issues across disability and aging.
Bringing Family-Centered Care Home: A seven year evaluation of pediatric residency training program Project DOCC
Presenter(s)
Jenness Roth, MEd, Family Faculty Coordinator, Center on Developmental Disabilities, UCEDD/LENDFrederick B. Palmer, MD, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
David Kube, MD, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
Elizabeth Bishop, MSSW, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
Pediatric residents at the University of Tennessee are required to complete a one month neurodevelopmental disabilities rotation at the Boling Center UCEDD/LEND. One component of the curriculum is a parent as trainer model called Project DOCC, Delivery of Chronic Care. The impact Project DOCC had on residents' perceptions of life for a family with a child with chronic health care needs was assessed from the past seven years.
Refugee Mothers Study: Raising Children with Special Needs
Presenter(s)
Jean Beatson, RN EdD, Training Director, Vermont Leadership Education in Neurodevelopmental Disabilities, LENDThe purpose of this pilot study was to begin to understand the perceptions of local refugee mothers who have children with special needs regarding the educational and healthcare needs of their children.
Addressing Assistive Technology needs in a rural context
Presenter(s)
Anne Cronin, Ph.D., Professor, Center for Excellence in Disabilities, UCEDD/LENDJacob Anderson, BS, WVUCED, Morgantown, WV
?Camp Gizmo? is an innovative approach to share assistive technology applications with families. The presentation includes a discussion of assistive technology service delivery issues with a rural and underserved population. Include will be vignettes by parents and professionals discussing what works, what doesn't and how to make it better.
Increasing Disability Awareness and Cultural Competency for Students or Professionals Utilizing Disability Simulations and Panel Discussions.
Presenter(s)
Stephen Contompasis, MD, DirectorThe presenter will describe to the participants a disability awareness half day workshop (disability panels and disability simulation activities) for medical students at the University of Vermont College Of Medicine. The presenter will describe the rationale for this type of experience for students/developing professionals including some practical aspects learned while developing, evaluating and refining this workshop over the past five years.
Creating Community and Social Opportunities Through Theatre for Children and Adolescents with Autism Spectrum Disorders
Presenter(s)
Lauriann King, M.F.A., Senior Program Therapist, Center for Development & Disability, UCEDD/LENDEric Avery, B.G.S., VSA Arts of New Mexico, Albuquerque, NM
Theatre is emerging as an innovative means of creating community and social opportunities for children with Autism Spectrum Disorders. The presentation will describe theatre activities that can be used in a variety of settings such as social skill groups or classrooms as team building activities or targeting specific social skills.
Developmental Profile of Infants With Autism
Presenter(s)
Rolanda Maxim, M.D., Associate Professors of Pediatrics, Saint Louis University School of MedicineThis prospective, group study identifies early signs of ASD using the Red Flags for Communication scale and the Ireton Child Development Chart. ASD and non-ASD children (n= 10) were assessed every 6 months. Children with ASD have a specific developmental profile identified as early as 5-7 months of age.
Using Behavioral Imaging Technology (Department of Defense) Pilot Study: Application for Clinical Practice with Adolescents and Young Adults
Presenter(s)
Tyler Whitney, PsyD, Founder / Clinical Director, Intermountain Center For Autism and Child DevelopmentTom Young, MD, Caring Technologies, Inc, Boise, ID
Ron Oberlietner, CEO, Caring Technologies, Inc, Boise, ID
The United States Air Force (USAF-DoD) is using video capture, a telehealth solution to treat service members with various mental health / behavioral conditions. Using telehealth solutions, healthcare professionals can view video of behaviors. Patients and family members can share video that can be used clinically, securely, and remotely.
Pregnant Women with Disabilities: Promising Practices from EHCA?s Doula Program
Presenter(s)
sara lichtenwalter, Ph.D., Associate Professor , CCDRuthanne Hackman, Ph.D., Christopher Newport University , Newport News , VA
US citizens with disabilities have frequently been denied their rights to childbearing and child-rearing. After reviewing the impact of hostile social policies on the sexual and reproductive freedoms of individuals with disabilities, we present the promising outcomes from an innovative new Doula Program serving pregnant woman with disabilities.
Mississippi Home of Your Own: Delta Initiative
Presenter(s)
Nita Martin, Master's of Business Administration, Housing Training & Technical Assistance Specialist, Institute for Disability Studies, UCEDDThe Home of Your Own (HOYO), Delta Initiative, offers assistance to people with disabilities to identify and locate safe, affordable housing and community-based supports needed to empower people with disabilities in their quest for independence and community inclusion in 25 counties in the Mississippi Delta.
Disaster Management Policy & People with Disabilities in Jamaica: A Constructivist Inquiry
Presenter(s)
Jessica Jagger, MSW, PhD Candidate, Partnership for People with Disabilities, UCEDD/LENDThis poster will present preliminary findings from a study of disability and disaster policy in Jamaica. The presenter interviewed people with disabilities about experiences with disasters and disaster planners from the national and parish governments about the policies. Findings about intent, implementation, and experience of disaster policies will be shared.
Promoting Sexual Health through Sexual Self-Advocacy
Presenter(s)
Katie Arnold, MS, Director of Community Education, Institute on Disability & Human Development, UCEDD/LENDTia Nelis, Institute on Disability and Human Development, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND
Linda Sandman, MSW, LCSW, Institute on Disability and Human Development, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND
Bethany Stevens, JD, MA, Center for Leadership in Disability, Atlanta, GA, GA - GSU UCEDD
Adults with developmental disabilities have made it clear: ?We are sexual beings.? This workshop will explore ways to support sexual health through sexual self-advocacy for adults with intellectual and developmental disabilities, including an examination of the holistic sexual health model and ways to provide support, education and opportunities for healthy sexual expression.
Easing the stress of health care routines for professionals and individuals with Autism Spectrum Disorders (ASDs)
Presenter(s)
Joni Bosch, PhD, ARNP/Family Nurse Practitioner, Center for Disabilities and Development, UCEDD/LENDA description of a program undertaken at the University of Iowa Hospitals and Clinics to ease healthcare encounters for individuals with autism and the healthcare providers. The program uses picture schedules, social stories, transition items and staff education.
Disparities in Barriers to Health Care Access Among People with Disabilities from Underserved Racial and Ethnic Groups: A Scoping Review
Presenter(s)
Jana Petersen, , University of Missouri, UCEDD/LENDWilli Horner-Johnson, PhD, Oregon Health & Science University, Portland, OR, OR - Oregon Institute on Disability & Development, UCEDD/LEND
Charles Drum, PhD, Oregon Health & Science University, Portland, OR, OR - Oregon Institute on Disability & Development, UCEDD/LEND
This presentation will describe a systematic scoping review of literature on health care access barriers for people with disabilities from underserved racial and ethnic groups. Results will highlight what is currently known about access barriers specifically impacting minorities with disabilities, as well as gaps where additional research is needed.
Providing Interdisciplinary Technical Assistance through Skype to an Honduran Rehabilitation Center
Presenter(s)
Steve Contompasis, MD, Project Director, Vermont Leadership Education in Neurodevelopmental Disabilities, LENDJean Beatson, Ed.D, R.N., Burlington, VT, VT - Center on Disability & Community Inclusion, UCEDD
Mary Alice Favro, MA, CCC-SLP, Burlington, VT, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND
VTVTVTVTVTVT
This poster will describe the process for providing interdisciplinary technical assistance via Skype technology to a rehabilitation center in Tela, Honduras. A focus on lessons learned regarding cultural competency, working with minimal technical resources as well as service and training outcomes achieved will be featured.
A Model Adult Literacy and Community Inclusion Program for Adults with IDD
Presenter(s)
Tom Fish, Ph.D., Dr., The Nisonger Center, UCEDD/LENDPaula Rabidoux, Ph.D., Columbus, OH, OH - The Nisonger Center, UCEDD/LEND
This presention will provide an overview of the Next Chapter Book Club. This program is operational in 18 states and three countries and offers adults with IDD a chance to read, make friends and hang out in book stores, coffe shops and cafes.
Exploring the Green Thumbs, Healthy Joints Program: Program Characteristics and Engagement
Presenter(s)
Leo Schlosnagle, M.S., Research and Resource Development Manager, Center for Excellence in Disabilities, UCEDD/LENDPoster describes the characteristics of the Green Thumbs, Healthy Joints program, which modifies gardening activities with the goal of increasing accessibility to gardening for older adults with joint pain. This poster includes a study of program characteristics and scope of engagement at 23 different Green Thumbs, Healthy Joints project sites.
The Use of Virtual Reality Games to Enhance Therapy for Children with Cerebral Palsy: A Pilot Study.
Presenter(s)
Lillian Kornhaber, PT, MPH, Supervisor of Physical Therapy, Rose F. Kennedy Center, UCEDD/LENDMaria Valicenti-McDermont, MD, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
Valerie White, MS, PT, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
Carolyn Nbokoli, MS, PT, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
Carol Terilli, PT, DPT, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
Shlomo Shinnar , MD, PHD, Bronx, NY, NY - Albert Einstein College of Medicine/CHAM, DBP
A pilot program to determine feasibility and effect size for a future randomized controlled study, to evaluate the effectiveness of a therapy program, which incorporates a virtual reality computer game (Nintendo Wii) into a physical therapy program.
A Collaborative Approach to Building Mississippi?s Integrated Community Systems for Children and Youth with Special Health Care Needs (CYSHCN)
Presenter(s)
Charles Hughes, MD, PhD, Exec. Assistant for Dissemination, Data and Planni, Institute for Disability Studies, UCEDDAlma Ellis, Jackson, MS, MS - Institute for Disability Studies, UCEDD
Virginia Green, MD (To be confirmed), Mississippi State Department of Health, Jackson, MS
The system of services for CYSHCN should be family-centered, community-based, and culturally competent. To create this seamless system, the Institute for Disability Studies (IDS) at The University of Southern Mississippi, Mississippi?s UCEDD, has facilitated a collaborative multi-disciplinary partnership initiative. Positive impact is being made through implementation of the model.
Virtual Modality: Preparing primary care providers recognize, evaluate, diagnose and manage Autism Spectrum Disorders (ASD's)
Presenter(s)
Ryan Servant, M.S, Instructional Designer, Kennedy Krieger Institute, UCEDD/LENDMDMDMDMDMDMDMDMD
The Center for Autism and Related Disorders (CARD) at Kennedy Krieger Institute (KKI) presents training modules designed to prepare practitioners in the areas of early identification of Autism Spectrum Disorders (ASD?s) and the transition to adulthood for individuals with ASD?s.
Leadership and Interdisciplinary Management of NDD-ASD
Presenter(s)
Eileen McGrath, PhD, Assistant Professor; AZLEND Training Director, University of ArizonaSydney A. Rice, MD, MS, University of Arizona, Tucson, AZ, AZ - Institute for Human Development, UCEDD
This poster presents an introductory course in the leadership management of neurodevelopmental disabilities with a special focus on autism spectrum disorders. Topics addressed include disease progression from birth to adulthood, interdisciplinary management of care, team development, leadership roles, current Maternal Child Health Bureau legislation and programs affecting those with NDD-ASD.
Families, Disability, and Culture: A New Web-Based Guide to Developing Training Curriculum on Family-Centered, Culturally Competent Practices for MCH Professionals
Presenter(s)
Barbara Levitz, MSEd, Director LEND Family Partnerships Training, Westchester Institute for Human Development, UCEDD/LENDKaren Edwards, MD MPH, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND
Instructors and curriculum developers will explore our new web-based guide to developing and implementing curriculum for distance or on-site training to strengthen trainees? knowledge and skills in family-centered practices and cultural competency. We will highlight the site?s strategies for active learning guided by adult learning principles and MCH Leadership Competencies.
Read and download presentation materials >
National Gateway to Self-Determination Website: A Clearinghouse of Resources, Training, and Information
Presenter(s)
George S. Gotto, Ph.D., Director, University of Missouri, UCEDD/LENDLaura Jackson, M.P.A., Kansas City, MO, MO - University of Missouri, UCEDD/LEND
Susan Palmer, Ph.D., Lawrence, KS, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
Presenters will display the Gateway to Self-Determination Web Portal, developed for self advocates, professionals, and policy-makers on current best and evidence-based practices for enhancing self-determination in the lives of people with developmental and intellectual disabilities. Special attention will be given to the Resource Guide of approaches, strategies, resources, and curricula.
Building An Alliance for Postsecondary Education
Presenter(s)
Donna Carlson Yerby, M.Ed, Assistant Director/Education Section HeadDeborah Zuver, MA, Program Director CIDD, Chapel Hill, NC
An effective state-wide alliance can collaborate to expand postsecondary education opportunities for individuals with intellectual and developmental disabilities. This presentation is a visual depiction of how to facilitate a process to create systemic change. A timeline, photos, and other materials present goals and a strategic plan for one state?s model.
Cross-Networking: Playing in the Same Sandbox
Presenter(s)
Regina Mayolo, C.A.P.S., Technical Assistance Specialist, Center for Excellence in Disabilities, UCEDD/LENDCross-networking key organizations can be a critical part of a successful program. Addressing a single issue, using the strengths of individual organizations to support a single cause, and giving everyone a sense of ownership can produce results and lay the foundation for future collaborative initiatives.
Disclosure of an Autism Diagnosis: Current Practices, Parents' Perspectives, and the SUPPORT Protocol
Presenter(s)
Jacalyn Yingling, MS, Family faculty discipline coordinator, Strong Center for Developmental Disabilities, UCEDD/LENDDaniel W Mruzek, PhD, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Elizabeth Baltus Hebert, MS OTR, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
This presentation will focus upon autism diagnosis, disclosure and next-step planning, including: 1) review of clinician's current practice; 2) parents' insights and preferences; and 3) the SUPPORT protocol, a decision guide for clinicians presenting an autism diagnosis. Data from parent focus groups and national survey of clinicians will inform discussion.
Wrapping Support Services Around Housing: a Key to Maintaining Housing for Individuals with Disabilities Who Are Homeless
Presenter(s)
Chandar Turner, LMSW, Social Worker, Institute for Disability Studies, UCEDDNita Martin, MBA, Jackson, MS
Housing placements for homeless individuals with disabilities and their families?transitional or permanent?are more effective when support services are used as an element of the continuum of care. The Institute for Disability Studies has successfully used support services to place homeless individuals with disabilities in appropriate housing, including homeownership.
Teaching Inclusive Health Principles: A Framework for Advancing the Public Health Approach to Disability
Presenter(s)
Jessica Howell, MPH, Assistant Director, Center for Leadership in Disability at Georgia State University, UCEDD/LENDBethany Stevens, JD, MA, Atlanta, GA, GA - GSU UCEDD
Robert Wild, MS, MPH, CPH, Atlanta, GA, GA - GSU UCEDD
The field of public health continues to broaden its approach toward disability by focusing on supporting people with disabilities to live healthy, productive lives. The Center for Leadership in Disability (CLD) furthers the objective of shifting the paradigm by offering four graduate courses in disability and public health.
Informing Practice to Support Self-Advocacy in Health Transitions for Adolescents with Physical Disabilities:
Presenter(s)
susan hetherington, MS, Executive Director, Strong Center for Developmental Disabilities, UCEDD/LENDThis poster describes research completed by LEND faculty and fellows on the lived experiences of youth and young adults negotiating the maze of the transition from pediatric to adult health care.
Collaboration in the Service of Improved Transition Programs
Presenter(s)
Julie Christensen, LMSW, AUCD Director, Center for Disabilities and Development, UCEDD/LENDSusan Hetherington, MS, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Collaboration is essential to positive transition, employment, and quality of life outcomes for individuals with disabilities. The purpose of this presentation is to explore potential pitfalls and share strategies for building effective partnerships and collaborations that will maximize efficiencies and enhance the quality and types of services that are available.
Interdisciplinary Disability and Diversity Studies Certificate Program
Presenter(s)
Norma Jean Stodden, Ph.D., Associate Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramSteve Brown, Ph.D., Center on Disability Studies/UCE, Honolulu, HI
Kelly Roberts, Ph.D., Center on Disabilitye Studies/UCE, Honolulu, HI
The Center on Disability Studies at the University of Hawaii offers a fifteen-credit graduate level Certificate in Disability and Diversity Studies through distance education beginning. This poster will describe the Disability Studies courses, recruitment of local, national, and international students, and highlight the benefits and challenges of
The USC UCEDD LEND & CHLA Pediatric Residency Program Joint Noontime Conferences: A Model for Leveraging Partnerships
Presenter(s)
Patrice Yasuda, PhD, CA-LEND Training Director, USC, Childrens Hospital, UCEDD/LENDSheela Rao, MD, Childrens Hospital Los Angeles, Los Angeles, CA
Joyce Jaiver , MD, Childrens Hospital Los Angeles, Los Angeles, CA
Eyal Ben-Isaac, MD, Childrens Hospital Los Angeles, Los Angeles, CA
Larry Yin, MD, Childrens Hospital Los Angeles, Los Angeles, CA, CA - USC, Childrens Hospital, UCEDD/LEND
Resulting from positive feedback from its former LEND physician trainees, the CHLA Pediatric Residency Program requested that LEND create a curriculum that incorporated information on children with special needs, service systems and advocacy into their existing training structure. Lectures have been well received and fill a void in their training.
More Than Words: Parent Training to Support Communication in Young Children with Autism Spectrum Disorders (ASD)
Presenter(s)
Patricia Prelock, Ph.D., Professor & Dean, Vermont Leadership Education in Neurodevelopmental Disabilities, LENDHope Morris, M.S., UVM, Department of Communication Sciences & Disorders, Burlington, VT, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND
VT-ILEHP implemented More Words Training for families of children with autism. This presentation explains components of parent training that led to performance change in communication and play. This presentation explains the training, provides videotaped examples of change in social communication, and suggests a training plan for SLPs in rural communities.
Read and download presentation materials >
Addressing the needs of Culturally and Linguistically Diverse (CLD) students transitioning from High School
Presenter(s)
Kelly Roberts, PhD, Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramKaren Applequist, PhD, Northern Arizona University, Flagstaff, AZ, AZ - Institute for Human Development, UCEDD
In this session you will learn about the unique strengths, resources, and needs of CLD students who are transitioning from high school to postsecondary education or work settings. Characteristics of effective transition practices for CLD youth will be presented. Participants will be encouraged to discuss and share their own experiences.
Joint Attention Training for Parents of Young Children with Autism Spectrum Disorders
Presenter(s)
Patricia Prelock, Ph.D., Professor & Dean, Vermont Leadership Education in Neurodevelopmental Disabilities, LENDJames Calhoun, Ph.D., University of Vermont, Burlington, VT, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND
Judith Masson, M.Ed., University of Vermont, Burlington, VT, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND
VT-ILEHP trained community providers to support families of children with ASD to implement joint attention training in the home. This presentation explains the training, provides examples of joint attention strategies, and shares a ?train the trainers? model to increase early interventionists? competence in providing this evidence-based intervention.
Read and download presentation materials >
SafeCare®: Scaling up and expanding reach of an evidence-based parenting program
Presenter(s)
Julie Jabaley, MPH, Assistant Director of Tech., Research & Curriculum, Center for Leadership in Disability at Georgia State University, UCEDD/LENDJohn Lutzker, PhD, Atlanta, GA, GA - GSU UCEDD
Kathy Lee, MS, Minot, ND, ND - North Dakota Center for Persons with Disabilities, UCEDD
SafeCare® is an evidence-based parent training program that serves at-risk families. This presentation traces scaling up from a veritable "mom-and-pop" organization to a center supporting training and research across nine states. We discuss hallmarks of sound implementation, strategies for remaining viable and dynamic, and service to different populations.
Autism Screening in Community Childcare Settings
Presenter(s)
Jessica Foster, MD, MPH, Clinical Assistant Professor of Pediatrics, The Nisonger Center, UCEDD/LENDPatricia I. Wright, PhD, MPH, Easter Seals, Chicago, IL
Georgina Peacock, MD, MPH, Centers for Disease Control, Atlanta, GA
Bob Siegel, M.Ed, Easter Seals, Chicago, IL
This session will share a pilot study that was completed utilizing community childcare settings for autism screening. Implementation of the screening process, rate of return and social validity information from the childcare workers who implemented the screening will be shared in this session.
Effects of Interdisciplinary Training on MCH Professionals, Organizations and Systems
Presenter(s)
Angela Rosenberg, DrPH, PT, Assoc. Director, Training & Technical AssistanceInterdisciplinary practice is a collaborative approach applied in the organization and delivery of health and human services, training, policy, and research. This presentation examines the effects of interdisciplinary training on the attitudes and practices of 550 students, fellows, and dental residents who have participated in training programs at UNC-Chapel Hill from 2001 through 2006.
Read and download presentation materials >
Family Support, Culture and Disability--TASH/ADD Family Support Training
Presenter(s)
Susan Yuan, Ph.D., Emerita, Center on Disability & Community Inclusion, UCEDDShelley Dumas, Ph.D., Austin, TX, TX - Texas Center for Disability Studies, UCEDD
Stacey Ramirez, Atlanta, GA, GA - GSU UCEDD
Karen Irick, Columbia, SC, SC - Center for Disability Resources, UCEDD
Phil Smith, Ed.D., Eastern Michigan University, Ypsilanti, MI
Annie Alonso, PsyD, San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD
Haley Kimmet, TASH, Washington, DC
Mat McCollough, Communications Manager at the Washington, DC Office of Disability Rights.
Participants and trainers from fourteen states and territories will share experiences of the TASH/ADD Family Support, Culture and Disability Training. This training reached out to families and self-advocates from diverse backgrounds to strengthen skills in advocacy and connections to other families and self-advocates. Materials available in Spanish and Chinese.
Life Course Model: A Framework for Services and Research
Presenter(s)
Mark Swanson, MD, MPH, Senior Medical Adviser, CDC, HHSPreparation for adult living requires intentional efforts by families of children with disabilities and chronic conditions and their service providers. A framework for organizing services and supports, as well as identifying gaps in knowledge about interventions and outcomes, was developed for spina bifida and has applications to other conditions.
Does working reduce healthcare costs; an analysis of Medicaid claims costs for working and non-working Medicaid members with disabilities.
Presenter(s)
Tammie Amsbaugh, Policy Analyst, Center for Disabilities and Development, UCEDD/LENDAn analysis of Medicaid claims for working age adults with disabilities, comparing claims expenditures for Medicaid buy-in members to: working age adult Medicaid members with a disability, buy-in members based on earnings level, and before and after enrollment in the buy-in.
A Participatory Action Project to Act on Barriers & Supports to Home, Community & Work Participation with People with I/DD
Presenter(s)
Joy Hammel, PhD, OTR/L, Professor, University of Illinois at ChicagoRobin Jones, MPA, COTA/, UIC, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND
Tamar Heller, PhD, UIC, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND
Gloria Curtin, MS, El Valor , Chicago, IL
Amada Bello, El Valor, Chicago, IL
Sandy Bello, El Valor, Chicago, IL
This participatory action research project examined the environmental barriers and supports to home, community and work participation, focusing on strategies and promising practices to improve participation opportunities for people with intellectual disabilities and their social supports and communities as they age in place.
Going to Scale with Disability Studies
Presenter(s)
Stephen Gilson, PhD, Coordinator, Interdisciplinary Disability Studies, The University of Maine, Center for Community Inclusion, UCEDDElizabeth DePoy, PhD., CCIDS, UMaine, Orono, ME
Natasha Lowden, BA, CCIDS, UMaine, Orono, ME
This poster presents, analyzes and evaluates a distance education curriculum in disability studies that ?goes to scale? through innovation. Two major areas are emphasized: curriculum content that creates the interdisciplinary home for diverse fields, and curriculum structure and techniques that extend classes beyond local, state and even national boundaries.
Increasing Inclusive Campus-based Opportunities for Students with Intellectual Disabilities: A statewide planning process
Presenter(s)
Martha Mock, Ph.D., Professor, University of RochesterWendy Harbour, Ed.D, Syracuse University, Taishoff Center for Inclusive Postsecondary Education, Syracuse, NY
Kristen Love, M.Ed, Institute for Innovative Transition, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
The presentation will focus on a recent initiative in New York State, funded by the Think College at the Institute for Community Inclusion at the University of Massachusetts-Boston with funds from the Administration on Developmental Disabilities, to engage students with intellectual disabilities, families, schools and agencies in improving access to inclusive postsecondary education options for students with intellectual disabilities.
RELATE:Scaling Up to Create Maine's Statewide Model of Early Childhood Mental Health Consultation
Presenter(s)
Lucille Zeph, Ed.D., Director, UMaine Center for Community Inclusion & Disability StudiesJackie Wilson, MSW (Trainee), University of Maine, Orono, ME, ME - The University of Maine, Center for Community Inclusion, UCEDD
Jill Downs, M.Ed., University of Maine, Orono, ME, ME - The University of Maine, Center for Community Inclusion, UCEDD
Jennifer Maeverde, M.S. , University of Maine, Orono, ME, ME - The University of Maine, Center for Community Inclusion, UCEDD
This session will provide an overview of RELATE a model of professional development, competency validation, mentoring and statewide scale-up for early childhood mental health consultation. Focus will include an overview of both the model components and scaling-up process.
Show Me Your Data: Free Tools You Can Use Now
Presenter(s)
W. Alan Coulter, Dr., Louisiana State University Human Development Center - New Orleans, UCEDD/LENDThe IDEA Analytic Tool can provide useful information to professionals who want to focus on critical areas to assist students with disabilities in achieving school success. By attending the session, participants should gain competence in accessing the web based tool and gain facility with developing data reports customized to match their specific questions.
Higher education's level of preparedness in serving student veterans with disabilities.
Presenter(s)
Wayne Miller, MPA, Mr., A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LENDMary Beth Bruder, PhD, Farmington, CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Approximately, 40% of individuals who have served in Iraq or Afghanistan having a disability is reasonable (Vance, Miller, & Grossman, in press). These disabilities will alter how postsecondary institutions provide educational opportunities to their students. Learn from current research how of institutional preparedness to receive veterans transitioning to students.
Therapeutic Foster Care
Presenter(s)
Robert Basler, MSW, Director of Therapeutic Foster Care, Kennedy Krieger Institute, UCEDD/LENDTherapeutic Foster Care (TFC) is a unique model of care that provides youth in foster care with individualized care that is more likely to result in permanent homes than institutional care. Parent training is an integral part of the model.
Inclusive Child Care Training Program: Training for Child Care and Early Education Providers
Presenter(s)
Mary Coster, Master's Social Work, Program Director, Children's Services and TrainingThe Inclusive Child Care Training Program has developed over 40 trainings modules and trained over 4,000 early care and education providers in Maryland in ways to promote the inclusion of children with disabilities. This presentation will provide suggestions so that other states can adopt this model.
A Multi-disciplinary Approach to Improving Outcomes for Low-income Children with Disabilities
Presenter(s)
MAUREEN VAN STONE, J.D., M.S., Director , Kennedy Krieger InstituteProject HEAL (Health, Education, Advocacy, and Law) at the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute (KKI) is a unique collaboration between attorneys and health care professionals, providing free advocacy and legal services for children with disabilities, and training for health care professionals to enhance their ability to identify a patient?s need for legal services.
From Roots to Blooms: Gardening Proving to be an Effective Venue in Public Education
Presenter(s)
Mary Slabinski, MSW, LGSW, Rural Health Program Specialist, Center for Excellence in Disabilities, UCEDD/LENDNational health campaigns are a great way to increase public awareness but can pose challenges for rural and insulated communities. Green Thumbs, Healthy Joints offers a community based alternative that ensures accurate approaches to addressing community health needs and inherent challenges of rural communities through cost effective delivery.
Read and download presentation materials >
Diagnostic utility: A comparison of the CBCL-PDD scale with RCDC-LEND interdisciplinary team diagnosis
Presenter(s)
Steven Koch, PhD, Research Director, Indiana University School of Medicine, LENDChristine Raches, PsyD, University of Indianapolis, Indianapolis, IN
This poster presents the findings from a retrospective study of youth seen for an interdisciplinary evaluation at the RCDC-LEND for developmental delays. Preliminary results suggest that the PDD scale on the CBCL was yielded a high false positive rate. Implications of these findings for clinical practice will be discussed.
Preliminary evaluation findings from the Wee Ones Nursery at the Indiana Women?s Prison
Presenter(s)
Steven Koch, PhD, Research Director, Indiana University School of Medicine, LENDAngela Tomlin, PhD, Indianapolis, IN, IN - Riley Child Development Center - Indiana University, LEND
In 2008, the Indiana Women?s Prison implemented the Wee Ones Nursery (WON), a voluntary program for pregnant offenders, providing parenting education and time to strengthen the infant-mother bond during the initial months after the infant?s birth. This poster provides results from the evaluation of the program?s first 19 months.
The Riley Adult Autism Spectrum Profile: Preliminary Instrument Development
Presenter(s)
Susan Pieples, Family Leadership Trainee, Indiana University School of Medicine, LENDSteven Koch, PhD, Indianapolis, IN, IN - Riley Child Development Center - Indiana University, LEND
Angela Tomlin, PhD, Indianapolis, IN, IN - Riley Child Development Center - Indiana University, LEND
The proposed poster presentation will highlight the preliminary steps taken in the development of the Riley Adult Autism Spectrum Profile (RAASP), a screening questionnaire for suspected undiagnosed Autism Spectrum Disorders in adults.
Autism screening practices and training needs among medical home providers and early intervention providers in Indiana
Presenter(s)
Angela Tomlin, PhD, Associate Director, Indiana University School of Medicine, LENDSteven Koch, PhD, Indianapolis, IN, IN - Riley Child Development Center - Indiana University, LEND
Maria Eichhold, MSW, Indianapolis, IN, IN - Riley Child Development Center - Indiana University, LEND
Jessica Jester, BSW, IUPUI, Indianapolis, IN
Emphasis on early intervention for young children with ASD has resulted in increased interest high quality screening practices that may lead to earlier identification. This poster will present the results of two recent surveys of providers in Indiana: 1) medical homes and 2) early intervention providers.
Housing Needs of People with Disabilities in Puerto Rico
Presenter(s)
Annie Alonso, PsyD., Institute on Developmental Disabilities, UCEDDLuz León, PhD, San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD
Aimar Cajigas, BA, San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD
To present the perception of the people with disabilities of their Housing Needs in different areas in Puerto Rico.
Think, Hear, See, Believe College: Students Using Participatory Action Research to Document the College Experience
Presenter(s)
Maria Paiewonsky, Ed.D, Senior Research AssociateCate Weir, MEd., Boston, MA, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Student TBA, Boston, MA, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Staff from Think College are facilitating participatory action research with Massachusetts college students to document their college experience. Using multimedia tools for their data collection, students discuss what makes college successful, what needs to improve, and what recommendations they have for younger students who are thinking about college.
Effective approaches to working with Hispanic/Latino families that have children with disabilities/special health care needs.
Presenter(s)
Juan Carlos Vazquez, M.A., Project Director, Institute for Disability Research, Policy & Practice, UCEDD/LENDJuan Carlos Vazquez, M.A., Utah State University, Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
This session describes successful partnership between the URLEND program and a community clinic that mainly serves low-income and under represented populations in the Salt Lake city, Utah area.
Homeownership Via the NSP: Stabilizing Neighborhoods Through the Development of Affordable, Accessible, & Assistive Homes
Presenter(s)
Ronn Jemison Hill, Project Coordinator , Institute for Disability Studies, UCEDDThe Neighborhood Stabilization Program was established to stabilize communities suffering from foreclosures and abandonment through the purchase and redevelopment of houses. The Institute for Disability Studies is using this opportunity to meet the affordable, accessible housing and assistive technology needs of people with disabilities in targeted Jackson, Mississippi neighborhoods.
Parents as Detailers to Increase Primary Care Provider Referrals for Early Intervention
Presenter(s)
Rob Wild, Research Associate, GSU Center for Leadership in DisabilityDaniel Crimmins, PhD, Center for Leadership in Disability/GSU, Atlanta, GA, GA - GSU UCEDD
Stacey Ramirez, Center for Leadership in Disability/GSU, Atlanta, GA, GA - GSU UCEDD
Donnie Winokur, Center for Leadership in Disability/GSU, Atlanta, GA, GA - GSU UCEDD
Through the use of the Learn the Signs/Act Early campaign and the Bright Futures initiative, this project aims to prove that parents of children with disabilities can effectively serve as ?academic detailers? to primary care providers to increase developmental surveillance, screening, and referral for children who have suspected developmental delays.
Unique Tactics for Expanding the Scope and Reach of a Grant-funded Training Project
Presenter(s)
Sarah Ott, M.S., Program Development and Evaluation Manager, Center for Excellence in Disabilities, UCEDD/LENDAshley Watts, M.S., Morgantown, WV, WV - Center for Excellence in Disabilities, UCEDD/LEND
In a time of reduced funding, sustainability and reach are important. Higher Education Access staff will share lessons and tactics to extend project services well past the end of project funding. The presentation will: ? Provide tips on using existing university supports ? Provide staff experiences ? Illustrate models to sustain training projects
Hawaii?s Visions for Persons with Developmental Disabilities
Presenter(s)
Robert Johnson`, PhD, Professor (Retired), Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramJean L. Johnson, DrPH, University Of Hawaii, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
Josie Woll, RN, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
Cassilly Woll, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
The Hawaii Department of Health has developed materials for training caregivers for persons with developmental disabilities. Student manuals and trainer guides emphasize developing independence and self-esteem for persons with developmental disabilities and how to find a place and respect for these persons in their communities.
Empowering Families/Clients in Program Development
Presenter(s)
Elizabeth Ridgway, OTR, OTD, Asst. Professor/ OT Asst. Chief, Rose F. Kennedy Center, UCEDD/LENDCarol Terilli, PT, DPT, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND
This poster presentation shares the process of planning, conducting and sharing the outcomes of two family focus groups to ensure program development at an inner city UCEDD meets the needs of clients and families through empowered self representation grounded in family centered care.
Training Innovative Leaders of Change in the Field of Disabilities
Presenter(s)
Amanda Sisselman, PhD, Assistant Professor, Wurzweiler School of Social Work, Yeshiva UniversityLynn Levy, MSW, Yeshiva University, WSSW, New York, NY
Using an interactive and dynamic presentation style, presenters will elicit feedback and encourage participation in order to provide first hand knowledge regarding the opportunities and challenges associated with training leaders in the field of disabilities. Innovative techniques and methods will be shared.
Interdisciplinary Comparison of Autism Spectrum Disorder (ASD) Screening with Established Pediatric Screening Practices
Presenter(s)
Terisa Gabrielsen, MS, LEND Trainee, Doctoral Student, Institute for Disability Research, Policy & Practice, UCEDD/LENDSusan Nelson, BS, LPN, Moscow, ID, UT - Center for Persons with Disabilities, UCEDD/LEND
Michele Villalobos, MS, New Haven, CT, UT - Center for Persons with Disabilities, UCEDD/LEND
Paul Carbone, MD, Salt Lake City, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Judith Miller, PhD, Philadelphia, PA, UT - Center for Persons with Disabilities, UCEDD/LEND
Tom Higbee, PhD, Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Leslie Hansen, Parent Partner, South Jordan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Interdisciplinary comparison of established pediatric screening practices (hearing, metabolic disorders, cystic fibrosis, lead) with ASD screening research and a recent study screening for ASD in toddlers. The comparison highlights appropriateness of including ASD with established pediatric screens and steps yet to be taken for accomplishment of universal screening for ASD
Early Autism Screening and Identification Clinic (EASI): Parent Perceptions and Satisfaction
Presenter(s)
Megan Ott, MSN, RN, CPNP, Pediatric Nurse Practitioner, Children's Seashore House/ Children's Hospital of Philadelphia, LENDEASI Clinic was established to streamline early identification of children with Autism, utilizing Nurse Practitioners and Developmental Pediatricians, to thereby decrease waiting lists and improve parental satisfaction with the diagnostic process. This project describes a uniquely modeled clinic, demographics of patients seen, as well as results of a parental survey.
Ask The Questions
Presenter(s)
Sue Olsen, MEd. , Division Director, Institute for Disability Research, Policy & Practice, UCEDD/LENDJanel Preston, BS, Center for Persons with Disabilities, Logan, UT
This presentation will discuss the ?questions to ask? at referral for pinpointing ASD referral concerns at the time of intake to ensure appropriate and timely assessment and information gathering to inform the early intervention eligibility determination and IFSP development process.
Down Syndrome and Alzheimer?s Disease: A Retrospective Medical Records Review
Presenter(s)
Erin Klonoski, BA, LEND trainee, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LENDMary Beth Bruder, PhD, Farmington, CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Jessica Sims, MEd, Farmington, CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
The demand on caregivers of persons with Down syndrome and Alzheimer?s disease can be high, especially without proper training and support. This presentation will present the results of a retrospective medical records review; specifically, areas of training for caregivers of individuals with Down syndrome and Alzheimer?s will be discussed.
Adults with Autism Spectrum Disorders: Who Provides Medical Care?
Presenter(s)
Gerard Kerins, MD, Associate Clinical Professor, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LENDNeil Stein, MD, Farmington, CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Mary Beth Bruder, PhD, Farmington, CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Jessica Sims, MEd, Farmington, CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
The population of adults with autism spectrum disorders is growing in our state and the nation, yet little is known about this population or the health care services they are receiving. This presentation will look at the results of a survey of primary care physicians in one state that assessed physician involvement in the care of adults with ASDs and their need for training and support to serve this population.
Read and download presentation materials >
MOST? (Meaningful Opportunities for Successful Transitions): An Innovative Approach to Transition for Adults with Disabilities
Presenter(s)
Deborah Fisher, Psy.D., Deputy Director, Jewish Foundation for Group HomesGila Shusterman, Ph.D., Jewish Foundation for Group Homes, Rockville, MD
MOST? is a one year day program for individuals with disabilities who have completed school but need additional training to achieve a successful transition. MOST? introduces participants to social, recreational, therapeutic, educational and employment resources within the adult community to facilitate outcomes in three domains: self-sufficiency, community, and vocation.
Improving secondary transition through the IDEA required Summary of Performance document.
Presenter(s)
Wayne Miller, MPA, Mr., A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LENDMary Beth Bruder, PhD, Farmington, CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Development of a brochure based on ease-of-reading provides prompts for students and parents reading an SOP to know when to ask for help in understanding. While developed specifically for Connecticut the brochure is easily adoptable by other states to increase parents and student involvement in the SOP process.
Adult Learning Principles & Web 2.0: Just for Fun or Really Effective?
Presenter(s)
Lee Wallace, MS, RD, LDN, FADA, Chief of Nutrition, Center on Developmental Disabilities, UCEDD/LENDElizabeth Bishop, MSSW, TN - Boling Center for Developmental Disabilities, Memphis, TN
This session looks at principles of adult learning and how online learning and Web 2.0 tools can be useful in education, and not just entertaining. Examples will be given from continuing education and MCH trainee programs. Examples from the audience will be solicited for collaborative problem-solving.
Early Intervention Service Coordination for Infants and Toddlers and Their Families in the Latino and Orthodox Jewish Communities.
Presenter(s)
Chelsea Tighe, M.Ed., Program Director, Kennedy Krieger Institute, UCEDD/LENDThe Kennedy Krieger Institute provides outreach, training, and early intervention service coordination in Baltimore City?s Latino and Orthodox Jewish Communities for infants and toddlers who are eligible for early intervention services.
A Statewide Interdisciplinary Journal Club to Promote Evidence-based Practice in Pediatrics Using Interactive Television
Presenter(s)
Deborah O'Rourke, Ph.D., P.T., Clinical Associate Professor, Vermont Leadership Education in Neurodevelopmental Disabilities, LENDPeggy Owen Sands, M.S. , Burlington, VT, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND
Marie-Christine Potvin, Ph.D. Candidate , Burlington, VT, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND
Marie MacLeod, M.S., Burlington , VT, VT - Center on Disability & Community Inclusion, UCEDD
The Journal Club was developed by physical and occupational therapy faculty from the University of Vermont Center on Disability and Community Inclusion (UCEDD) and VT-Interdisciplinary Leadership Education (LEND) programs to promote evidence-based services for children with disabilities and their families and occurs via Interactive Television.
The Growing Together Parenting Program: Supporting parents who have intellectual disabilities.
Presenter(s)
Chelsea Tighe, M.Ed., Program Director, Kennedy Krieger Institute, UCEDD/LENDBridget McCusker, M.S., M.A., Baltimore, MD, MD - Kennedy Krieger Institute, UCEDD/LEND
The Growing Together Parenting Program at PACT is Maryland?s only program that supports parents with an intellectual disability who have children younger than three years of age. Growing Together offers center-based parent-child activities, along with home-based services that focus on parenting skills, health and safety, and case management.
Hearing Issues That Go Beyond the Audiogram
Presenter(s)
Robert Fifer, Ph.D., Director of Audiology/Speech Pathology, Mailman Center for Child Development, UCEDD/LENDThe audiogram is the primary predictor of hearing handicap because it is the best tool we have. But auditory problems exist for which the audiogram is inadequate to predict hearing handicap. This presentation will discuss these issues with emphasis on neurodevelopmental etiologies including HIV, chemotherapy, and factors of premature birth.
What Can We Learn from Early Interventionists and Parents Who Participated in Using Technology for Emergent Literacy and Language (UTELL)?
Presenter(s)
Cora Price, B.S., Research Associate, Institute for Disability Research, Policy & Practice, UCEDD/LENDBoyce, L. K., Ph.D., Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Cook, G. A., Ph.D., Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Innocenti, M. S., Ph.D., Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
UTELL is a strengths-based approach focused on working with parents of young children with disabilities in their natural environments (location and relationships), helping them promote their children's language skills. Implementation patterns, links with consumer evaluations, and Early Interventionists' and parents' comments about their experiences with UTELL visits will be presented.
All Days are Happy Days: Going to Scale with Summer Camp Curriculum for Children with ADHD.
Presenter(s)
Elizabeth Bishop, MSSW, Community Education Director, Center on Developmental Disabilities, UCEDD/LENDDavid Kube, MD, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
Jennifer Washburn, MSSW, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
The presenters will review the goals and objectives of the All Days are Happy Days Summer Camp. The session will include information on the following: ? Needs assessment ? Development of the community outreach project ? Interdisciplinary teaming ? Attention Deficit Hyperactivity Disorder Research Project ? Outreach and training components A model of how to replicate such a camp will be shared as well as lessons learned and the necessary components that make this a successful model project.
Developmental Screening: A Model for Improvement
Presenter(s)
Fauzia Malik, MPAS, QI Training Consultation & Outreach, Envision New MexicoShannon Brown, MD, PhD, NM - Center for Development & Disability, Albuquerque, NM, NM - Center for Development & Disability, UCEDD/LEND
Jane McGrath, MD, University of New Mexico Health Sciences Center, Albuquerque, NM
Catherine McClain, MD, NM, Center for Development & Disability, Albuquerque, NM, NM - Center for Development & Disability, UCEDD/LEND
New Mexico's Developmental Screening Initiative (DSI NM) is a joint collaboration with the UNM HSC Center for Development and Disability and Envision NM. Ten primary care practices in New Mexico participated in the year-long DSI quality improvement project aimed at increasing the use of standardized developmental screening tools.
Combating Health Disparities for People with DD: A Special Olympics Healthy Athletes Community Partnership
Presenter(s)
Stephen Sulkes, MD, , Strong Center for Developmental Disabilities, UCEDD/LENDSusan Hetherington, MS, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Ann Costello, MSW, B. Thomas Golisano Foundation, Rochester, NY
Laurie Kennedy, MS, Special Olympics New York--Genesee Region, Rochester, NY
Katie Anderson, MPA, B. Thomas Golisano Foundation, Rochester, NY
To address health disparities through increased health screenings of individuals with DD, Rochester UCEDD/LEND teamed with Special Olympics NY and the Golisano Foundation to train Clinical Directors in three upstate New York communities in seven Healthy Athletes disciplines. This session describes this collaborative training activity, and outcomes to date.
Read and download presentation materials >
Impact of the School Nurses as Professional Partners (SNAPP) Program
Presenter(s)
Harriet Marie Chapini, MS, RN, CPNP, Assistant Professor, Partnership for People with Disabilities, UCEDD/LENDBernice B. Allen, PhD, RN, Partnership for People with Disabilities, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND
Vickie H. Southall, MSN, RN, University of Virginia School of Nursing, Charlottesville, VA
Diane Allen, RN, BSN, NCSN, Fairfax County Public Schools, Fairfax, VA
Mary Wendy Harper, MEd, BSN, RN, NCSN, Alexandria City Public Schools, Alexandria, VA
This presentation will describe the impact of The School Nurses as Professional Partners (SNAPP) Program. Successful implementation included education of nurses, developing collaborative practice and networking to promote the health and academic success of students with disabilities. Strategies for implementation of these program components will be discussed.
STEM Degrees and Careers for Ohioans with Disabilities
Presenter(s)
Margaretha Izzo, Ph.D., Associate Director, The Nisonger Center, UCEDD/LENDOhio?s leaders recently invested $200 million in Science, Technology, Engineering and Mathematics (STEM) education and workforce development. The Ohio STEM Ability Alliance, funded by the National Science Foundation, is leveraging these efforts to recruit, retain and graduate STEM students with disabilities, and most importantly, assist them enter STEM careers.
Seeking Excellence in Clinical Operations: Improving Insurance Reimbursement for Interdisciplinary Team Autism Diagnostic Evaluation Services
Presenter(s)
Lisa Hull, Director of Operations, Schiefelbusch Institute for Life Span Studies, UCEDD/LENDThis presentation informs the audience what conditions in the state of Kansas enabled the Center for Child Health and Development to increase reimbursement from insurance companies for interdisciplinary team autism diagnostic evaluations. With similar conditions occurring in many states, this presentation aims to generate ideas and action plans for attendees.
The Environment Matters: Engineering Independence for People with Autism Spectrum Disorders and Other Developmental Disabilities.
Presenter(s)
George Braddock, President, Creative Housing Solutions, LLCThe environment is not passive; we enter into a relationship with it for better or worse. Dysfunctional behavior, increased disability and loss of control are consequences of the wrong environment. This session will provide examples of environments that are healthy and safe, that eliminate obstacles, increase control, independence and choice.
Seeking Excellence in Data Collection, Data Management and Data Analysis: Maximizing Efficiency Utilizing a Web-Based Clinical Database Application
Presenter(s)
Lisa Hull, Director of Operations, Schiefelbusch Institute for Life Span Studies, UCEDD/LENDThis poster describes the structure and benefits of the secure web-based Comprehensive Research Information System (CRIS) Clinical Database application developed at the University of Kansas, Center for Child Health and Development. This system is a comprehensive, electronic approach to data management that has streamlined our processes, maximizing efficiency.
A Comprehensive Statewide Approach to Professional Development that Promotes the Inclusion of Young Children in Natural/Least Restrictive Environments
Presenter(s)
Linda Tuchman-Ginsberg, PhD, Program Director for EC Prof. Development, Waisman Center, UCEDD/LENDJill Haglund, MS, WI Dept. of Public Instrution, Madison, WI
Ann Ramminger, MS, Madison, WI, WI - Waisman Center, UCEDD/LEND
This session will highlight the goals and common guidelines used to support the activities of a cross-sector early childhood training and technical assistance network that is forming in Wisconsin. A priority of the network is the inclusion of young children with disabilities and their families in natural/least restrictive environments.
Web 2.0 in MCH training: an overview for using social and collaborative learning, network formation, and e-learning platforms
Presenter(s)
Karen Edwards, MD MPH, Director of Training, Center on Disability and Development, UCEDDLee Shelly Wallace, MS, RD, LDN, FADA, Boling Center for Developmental Disabilities, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
John Richards, MA, Georgetown University, Washington, DC
Anita M. Farel, DrPH, Univeristy of North Carolina, Chapel Hill, NC
Training program faculty use Web 2.0 tools to facilitate social and collaborative learning to balance competency-oriented learning required in MCH training and continuing education with formation of networks that facilitate learning. E-Learning platforms help organize learning and provide direction to beneficial networks. Attendees will explore use of Web 2.0 tools.
Making Behavioral Treatment for Autism Accessible Through Telehealth
Presenter(s)
Scott Lindgren, PhD, Professor of Pediatrics, Center for Disabilities and Development, UCEDD/LENDProviding evidence-based behavioral services for children with autism can be challenging in rural areas where there is a shortage of trained professionals. This presentation describes a program to improve access to appropriate behavioral services for young children with autism spectrum disorders by using telehealth ?coaching? for parents.
Interdisciplinary Disability Awareness and Service Learning Program increases awareness, knowledge and understanding of people with disabilities and their families
Presenter(s)
Jeanie Peck, Masters in Social Work , LCSW, Institute for Disability Research, Policy & Practice, UCEDD/LENDAlma Burgess , BS , Logan , UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Gordon Richins , BS , Logan , UT, UT - Center for Persons with Disabilities, UCEDD/LEND
This Program offers opportunities for students, from various disciplines and individuals with disabilities and family members to increase their awareness, knowledge and understanding of people with disabilities and their families across the life span. A Pre-post survey is administered at the beginning and end of the two semester course.
The Role of Personality in Adaptive Functioning of Adults with Intellectual Disabilities
Presenter(s)
Sara Boyd, M.S., Ms., Interdisciplinary Human Development Institute, UCEDD/LENDThis presentation will discuss a study of the role of general and pathological personality functioning in a sample of community-dwelling adults with ID. The study results will be provided and discussed along with the implications for mental health treatment and support service planning.
Expanding Connections: Interagency Synergy Increases Access in Wisconsin
Presenter(s)
Gail Chodron, , Waisman Center, UCEDD/LENDAnne B. Harris, PhD, Madison, WI, WI - Waisman Center, UCEDD/LEND
Daniel Bier, MPA, MSW, Madison, WI, WI - Waisman Center, UCEDD/LEND
Tim Markle, Madison, WI, WI - Waisman Center, UCEDD/LEND
In this panel and video presentation, Wisconsin Title V, MCH LEND, and UCEDD collaborators highlight their unique roles and resulting synergy of sharing common work. Examples illustrate increased access to information on services and supports for providers and families through interagency connections, shared employees, strategic community partnerships and combined training.
Analysis of National Core Indicators Data: Does Healthcare Vary According to Type of Funding?
Presenter(s)
Debra Reinhartsen, Ph.D., Principal Investigator, Carolina Institute for Developmental Disabilities, UCEDD/LENDRebecca E. Pretzel, Ph.D., Carolina Institute for Developmental Disabilities, Chapel Hill, NC
This study provides the state with critical information about services being provided by the two waiver programs and the individuals who are benefitting from this new funding. In turn, data aid the Division in ensuring that people transitioning into community settings are being as well cared for as those in residential facilities.
Project Conectar: Natural Helpers, Families, and Providers Perspectives on Developmental Delays and Service Access in a Hispanic Community
Presenter(s)
Bobbie Vaughn, Ph.D., Associate Professor, Florida Center for Inclusive Communities, UCEDDLinda Callejas, M.A., University of South Florida, Tampa, FL, FL - Florida Center for Inclusive Communities, UCEDD
This presentation will provide participants with an overview of Project Conectar and the innovative use of natural helpers in providing support to Hispanic families. Further, presenters will describe preliminary Year 1 findings from Hispanic families, natural helpers, and providers on developmental delays and service access for young children in Little Havana-Miami.
On-line technology: Tools to promote learning and outcomes
Presenter(s)
Wendy Parent-Johnson, Ph.D., Research Professor and Assistant Director, Schiefelbusch Institute for Life Span Studies, UCEDD/LENDRachel Freeman, Ph.D., KUCDD, Lawrence, KS, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
This session will describe the use of on-line systems to support learning, teaching and technical assistance in applied settings targeting youth with disabilities and adults as learners. Multiple curricula taught using on-line technologies will be shared including advantages of the approach, strategies for implementation, data-based outcomes, and recommendations and implications.
Success Defined: A Student-Centered Transition Project
Presenter(s)
Sharon Fallis, BS in Organizational Behavior & Leadership, Community Health Programs SupervisorRobin Hansen, M.D., UC Davis UCEDD at the MIND Institute, Sacramento, CA, CA - UC Davis UCEDD at the MIND Institute, UCEDD
Success Defined is a project for high school juniors and seniors with developmental disabilities wanting to explore options for post-secondary education, employment, volunteer service, and community living. Student-Parent partners attend training designed to advance their understanding of disability history, effective transition planning, community resource development, and advocacy skills.
Web Accessibility in the Network: How are we doing and what should we do now?
Presenter(s)
Cyndi Rowland, Ph.D., Associate Director, Institute for Disability Research, Policy & Practice, UCEDD/LENDWebAIM evaluated the network?s web accessibility through a sample of 64 centers. Participants will be given an overview of web accessibility and summary data from this study. They will leave the session with key resources and tools that can assist their own, and other?s pursuit of web accessibility improvements.
Design and Evaluation of Model Training Programs for Medical Students, Residents, and Health Care Professionals
Presenter(s)
Lynne Tomasa, PhD, Assistant Professor, Sonoran UCEDDLeslie Cohen, JD, Tucson, AZ, AZ - Sonoran UCEDD
Lynne Tomasa, PhD, Tucson, AZ, AZ - Sonoran UCEDD
Zachary Warren, PhD, Treatment and Research Institute for Autism Spectrum Disorder, Nashville, TN, TN - Vanderbilt University, UCEDD/LEND
Tyler Reimschisel, MD, Nashville, TN, TN - Vanderbilt University, UCEDD/LEND
Mary Theresa Urbano, PhD, MPH, RN, Nashville, TN, TN - Vanderbilt University, UCEDD/LEND
Paula Rabidoux, PhD, Columbus, OH, OH - The Nisonger Center, UCEDD/LEND
This presentation will focus on the design, implementation, and evaluation of training models and curriculum for medical students, residents, and health care professionals. Panel members from three institutions will discuss effective teaching strategies, potential challenges for implementation of training models, and positive outcomes based on research findings.
Infusing Behavior Analytic Training in Social and Human Service Systems.
Presenter(s)
Amanda Keating, PsyD, Assistant Professor, Center for Disabilities, UCEDD/LENDThe Cross-System Behavior Training Collaborative is a project designed to increase behavior analytic expertise in South Dakota?s social and human service systems. The infusion of applied behavior analysis within multiple programs increases the capacity of diverse systems to serve individuals with developmental disabilities and increases the continuity of care.
A Safety Awareness Group Program for Women with Diverse Disabilities: Findings from a Randomized Controlled Trial
Presenter(s)
Rosemary Hughes, Ph.D., Senior Research Scientist, University of Montana Rural Institute, UCEDDSusan Robinson-Whelen, Ph.D., Baylor College of Medicine, Houston, TX
Joy Gabrielli, M.A., Missoula, MT, MT - University of Montana Rural Institute, UCEDD
Emily Lund, Missoula, MT, MT - University of Montana Rural Institute, UCEDD
This presentation reports preliminary results of an evaluation of ASAP for Women, a safety awareness program for women with developmental and other disabilities. Women randomized to the 8-week structured group program, implemented at ten CILs across the US, reported improvements on a wide range of safety-related measures, including safety self-efficacy.
Addressing Interpersonal Violence Against Men With Disabilities: Considering the Intersectionality of Violence, Disability, and Gender
Presenter(s)
Rosemary Hughes, PhD, Senior Research Scientist, University of Montana Rural Institute, UCEDDEmily M. Lund, BA, University of Montana-Rural Institute on Disabilities, Missoula, MT
Mary M. Oschwald, PhD, Portland State University, Regional Research Institute, Portland, OR
Bob Liston, MA, University of Montana, Rural Institute, Missoula, MT
Michael C. Flaherty, MS Ed, University of Montana, Rural Institute, Missoula, MT
Rollin Shelton, BS, Portland State University, Regional Research Institute, Portland, OR
Erin M. Porcher, University of Montana, Rural Institute, Missoula, MT
Laurie E. Powers, PhD, Portland State University, Regional Research Institute, Portland, OR
Individual interviews and nominal discussion groups regarding interpersonal violence (IPV) were conducted with 40 men with disabilities. The participants highlighted the interactions between gender, disability, and sociocultural expectations as sources of barriers to addressing IPV against men with disabilities. Implications for policy, interventions, and research are discussed.
Building a Research Agenda for the Inclusion of People with I/DD in End-of-Life Decisions: The Literature Identifies Key Issues
Presenter(s)
Lynne Tomasa, PhD, Assistant Professor, Sonoran UCEDDLynne Tomasa, PhD, Tucson, AZ, AZ - Sonoran UCEDD
Carol Howe, MD, MLS, Tucson, AZ, AZ - Sonoran UCEDD
Jessica Post, Tucson, AZ, AZ - Sonoran UCEDD
Alberto Guzman, PhD, Tucson, AZ, AZ - Sonoran UCEDD
This review of the literature focuses on providing valuable and helpful strategies to help people with I/DD and essential stakeholders engage in practices that facilitate communication and promote the inclusion of all parties involved in end of life decision-making. Gaps in training and implications for further research are identified.
Open to Interpretation: Effective Communication in Healthcare Facilities Still Presents Challenges to Patients who are Deaf or Hard-of-Hearing
Presenter(s)
Linda Gottfredson, Ed.M., Professor, Center for Disabilities Studies, UCEDD/LENDSharon Romelczyk, B.A. , University of Delaware, Newark , DE, DE - Center for Disabilities Studies, UCEDD
Ilka K. Riddle, Ph.D., University of Delaware, Newark, DE, DE - Center for Disabilities Studies, UCEDD
The concepts of ?effective communication,? qualified interpreter,? and ?undue burden? found in the ADA leave open to interpretation the extent of a provider?s responsibility to provide accommodations to individuals with hearing impairments. Healthy Delawareans with Disabilities is educating medical providers about their responsibility and offering strategies and tools for compliance.
Emergency Preparedness & Non-Typical Functional Needs: Issues for Effective Mass Prophylaxis Planning
Presenter(s)
Alfred Piombino, MPA, Project Coordinator, Emergency Preparedness, Center for Disabilities Studies, UCEDD/LENDChad Thomas, MPH, Philadelphia Dept of Public Health, Philadelphia, PA
The Strategic National Stockpile contains pharmaceuticals managed by the government. These pharmaceuticals are dispensed through government during a public health emergency. Persons with developmental disabilities might have challenges in obtaining these pharmaceuticals because of non-typical functional needs. This presentation will describe methods of SNS dispensing and provide recommendations on how individuals, along with disabilities agencies and emergency planners can collaborate to ensure access to emergency pharmaceuticals.
Exploring Assistive Technology on Limited Budget to Meet Needs of Youth and Young Adults with Disabilities
Presenter(s)
Jerry Alliston, Ph.D, Associate Director, Institute for Disability Studies, UCEDDThis presentation will focus on technology with emphasis on innovative assistive technology success stories and open source (free) assistive technology. A discussion will be given on the lack of understanding of assistive technology and lack of knowledge regarding assistive technology resources.
Training for School Resource Officers on Disability Awareness
Presenter(s)
Jennifer Ulbricht, Ph.D., Postdoctoral Fellow, LEND Trainee, Kennedy Krieger Institute, UCEDD/LENDMaureen van Stone, J.D., M.S., Maryland Center for Developmental Disabilities, Baltimore, MD, MD - Kennedy Krieger Institute, UCEDD/LEND
Christopher Smith, Ph.D., Maryland Center for Developmental Disabilities, Baltimore, MD
This poster describes the need for training of school resource officers to increase knowledge and awareness of the impact of disability on behavior, laws, and policies pertaining to students with disabilities, and the role officers can play in reducing school arrests, suspensions, and expulsions, while maintaining and improving school safety.
CDC/AUCD Act Early something or another
Presenter(s)
Adriane Griffen, Senior Director of Public Health and LeadershipTBA
Read and download presentation materials >
RTOI information and reunion
Presenter(s)
Adriane Griffen, Senior Director of Public Health and LeadershipTBA
Facilitating Employment Using the HOPE (Helping Other People Envision) Team Planning Process
Presenter(s)
Judy Barclay, Executive Director, Civitan International Research Center, UCEDD/LENDWendy Dean, self-advocate, Birmingham, AL
Our program offers a unique process for unleashing the resources and expertise to build a "full life" for those who experience a disAbility. This interactive session will share success stories and ways around the challenges. We will explore creative ideas a person can use to find community support and put it into an action plan.
The Fragile X Research Registry: Opportunities for Collaboration Within and Between Networks
Presenter(s)
Leonard Abbeduto, PhD, Professor, WI - Waisman Center - UCEDD/LENDRenee Clark, MSW, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States;
The Intellectual and Developmental Disabilities Research Centers at the University of Wisconsin-Madison and University of North Carolina at Chapel Hill are developing the Fragile X Research Registry. This poster will focus on the goals of the registry and provide a context for discussions with AUCD members interested in becoming partners
The Cost of Serving Infants and Toddlers under Part C of IDEA
Presenter(s)
Jean Johnson, DrPH, Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramSusan Brown, MEd, Hawaii Department of Healh, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Chuan Chang, PhD, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Dawna Nelson, MSW, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Susajn Mrazek, MA, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Presents the results of an extensive study of expenditures over a one-year period for Part C early intervention services in Hawaii. This is the largest, most comprehensive cost study of early intervention services ever completed. Includes the costs of providing services in natural environments.