MULTICULTURAL COUNCIL (MCC)

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07/22/2024

AIR-P Research Day at Autism CARES Meeting 2024: Translating Research to Community Impact

The Autism Intervention Research Network on Physical Health (AIR-P) will be hosting its 7th semi-annual Research Day at the Autism CARES Meeting 2024 in July 2024. This event is part of the Autism CARES Meeting and will emphasize "Translating Research to Community Impact", highlighting content related to the physical health and overall well-being of autistic individuals. This virtual event is open to all.
pdf File RD@CARES24 RFP.pdf [download]

03/19/2024

AIR-P Presents: Skillflix: A Community-Engaged Process to Create Short Videos that Enhance Skills Across Populations

In this webinar, the research team will tell the story of a community-engaged, academic-industry partnership to create online video libraries for autistic young adults and parents of autistic youth. Join the conversation about community-engaged research, sexuality, and academic-industry-partnerships for enhancing health among autistic people across the lifespan.

02/21/2024

AIR-P Presents: The Intersection of Race and Autism Spectrum Disorder

This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P) -- will focus on: The intersection of race and ASD. The webinar will include a presentation by Dr. Sophie Molholm on the findings from a multisite study on autism in African Americans focused on increasing diversity in genetics studies and understanding reasons for later age of diagnosis in this group as well as a collaborative discussion led by Dr. Lisa Shulman, a clinical leader of a large, diverse inner-city Developmental Center in concert with a parent of children with ASD and an Autistic Adult on practical strategies for supporting a diverse ASD population and their families in accessing diagnosis, therapeutic and medical services, and encouraging participation in research.

01/16/2024

AIR-P Presents: The Role of "Big Data" in Research on Autism & Physical Health: Challenges, Promising Approaches, and Real-World Implications

This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P)-- will feature a collaborative discussion and brainstorming session hosted by the AIR-P Big Data Working Group, a newly formed interdisciplinary committee focused on using large datasets to improve equity and health for autistic individuals. This discussion will include insights from AIR-P research node leaders regarding the highest priority areas for big data work in autism as well as discussions on key issues in big data (e.g., participatory approaches, real-world implications, and others).

12/12/2023

AIR-P Presents: Health outcomes for sexually-diverse and gender-diverse autistic adults

We know that a substantial number of autistic people are sexually-diverse (e.g., gay, lesbian, bisexual, pansexual, asexual) or gender-diverse (e.g., transgender, gender non-conforming), but what do we know about their mental and physical health? Dr. Graham Holmes will discuss the current state of the literature and present findings from two studies that used innovative methods to learn about health disparities for this population. The first study investigated suicidality disparities among autistic versus non-autistic sexually-diverse and gender-diverse youth using a U.S. national sample recruited via social media. The second study investigated mental and physical health disparities more broadly among autistic sexually-diverse and gender-diverse adults versus cisgender heterosexual adults using electronic health record data. Clinical implications will be discussed.

11/16/2023

CEDC Webinar: Using the Project ECHO Model to Enhance Your Professional Development and Training

Join the Project ECHO Orientation to learn more about the ECHO model and how you can incorporate it into your work as a UCEDD or LEND program (or partner organization). Cari Glantz and Amy Rieser from the Wyoming Institute for Disabilities will share how they have utilized ECHO in their trainings and how you can become an ECHO partner. ECHO is a training and capacity-building model intended to support inter-professional connection and best practice implementation. Hosted by AUCD's Community Education and Dissemination Council.

11/14/2023

AIR-P Presents: The LBGTQ Community and Autism: A Community Study of Queer and Transgender Autistic Adults

This webinar will focus on the methods and preliminary results of a qualitative, community-engaged study with queer and transgender autistic adults. We will chart how we partnered with 19 community organizations working with this population to conduct open-ended, in-depth interviews with 65 adults in the Philadelphia area. Preliminary findings address nonbinary identity, self reported autism, health and wellbeing, community engagement, and social support. We are using these findings to structure autistic-led programming for autistic adults to improve wellbeing.

11/06/2023

AIR-P Research Day at AUCD 2023 Conference

The Autism Intervention Research Network on Physical Health (AIR-P) will be hosting its sixth plenary Research Day at the AUCD 2023 Conference in November 2023. This event is part of the AUCD Conference and will emphasize research led by autistic researchers and collaborators, highlighting content related to the physical health and overall well-being of autistic individuals. This AIR-P Research Day will include a poster presentation symposium and two concurrent sessions. AIR-P will also be present at the AUCD 2023 conference via two exhibit tables. This in-person event is open to all.

10/24/2023

AIR-P Presents: IDD Curricula in the Health Professions: Current State and Future Directions

While most medical students report that they want to learn more about seeing patients with intellectual and developmental disabilities (IDD) and feel underprepared to serve these patients when they graduate from their programs, the actual amount and quality of IDD-focused curricular content in medical and dental school curricula greatly varies between institutions. This webinar will present data from a recent WITH-funded research project examining the development of inclusive IDD curricula at medical and dental schools, and will also introduce an AADMD initiative, NICHE medical, that coordinates and supports medical schools who are working to develop innovative, community-engaged IDD curricula.

08/24/2023

My College Life: Students with Intellectual Disability Share Their Lived Experiences

Hear from a panel of college students about their experiences. Watch the "Think Higher. Think College." Campaign video. Get access to new resources for students, families, and educators, plus campaign tools to spread the word about college access for students with intellectual disability. Hosted by AUCD's Community Education and Dissemination Council.
pdf File Webinar Transcript [download]

08/15/2023

AIR-P Neurology Node Updates: Examining co-occurring neurologic conditions in autism across a lifespan

Dr. Rujuta Bhatt Wilson will share Neurology Node Updates from the AIR-P project. The webinar will include updates on intervention studies, examining neurologic conditions in genetic Neurodevelopmental syndromes, and examination of the prevalence of co-occurring neurologic and neurodegenerative diseases in autism in adulthood.

07/18/2023

AIR-P Presents: Autistic Stakeholder's Perspectives of a Flourishing Survey Measure

Dr. Samantha Ross will share updates on a current AIR-P Scholars Project that has engaged autistic youth and their parents as stakeholders to evaluate the construct validity of flourishing items within the National Survey of Children's Health.

07/11/2023

AIR-P Research Day at Autism CARES 2023

pdf File AIR-P Research Day at CARES 2023 Full Agenda [download]

06/27/2023

AIR-P Presents: Mind the NIH-Funding Gap: Structural Discrimination in Physical Health-Related Research for Cognitively Able Autistic Adults

AIR-P is glad to announce a date for the rescheduled webinar: Mind the NIH-Funding Gap: Structural Discrimination in Physical Health-Related Research for Cognitively Able Autistic Adults. Topics will include: Importance of addressing physical health disparity conditions in autistic adults Structural discrimination in NIH-funded studies on physical health disparity conditions in autistic adults Description of conflicts of interest within an NIH-funded culture of academia that contribute to systemic structural discrimination in funding policies.

06/20/2023

AIR-P Presents: Genomics for the well-being of autistic people: challenges and recommendations

In this webinar Dr. Heini Natri will discuss the topic that equitable and just genetic research requires an examination of the ethical questions pertaining to marginalized communities. Many have expressed concerns over current practices of autism-related genetic research, urging the field to shift towards practices that ensure benefits and protect against harm. As an interdisciplinary working group of autistic and non-autistic individuals, we have developed guidelines for leveraging genetics to enhance the quality of life, health, and autonomy of autistic persons.
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