Project Archive


A Research Topic of Interest (RTOI) is a specific research topic that is of interest to the CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD). RTOIs indicate that NCBDDD has a high degree of interest in funding projects addressing this subject matter, but not all approved projects are necessarily funded.

RTOI projects funded by NCBDDD since 2003 are listed below.


2008 RTOI Projects


Developmental Outcome Feasibility Study: Deaf/Hard of Hearing

Christine Yoshinaga-Itano, PhD, University of Colorado RTOI # 2008-999-01


Fragile X Clinical and Research Consortium Cooperative Agreement

Ted Brown, MDPhD, NY Institute for Basic Research in Developmental Disabilities RTOI # 2008-999-03


Helping Family Practitioners Improve Developmental Services in Primary Care

Laura McGuinn, MD, University of Oklahoma Health Sciences Center RTOI # 2008-02-18


Prevalence of Developmental Disabilities Among Children with Epilepsy in Rural Populations

David Lindeman, PhD, University of Kansas RTOI # 2008-01-01


Project 3D: Developmental Delays and Disabilities Screening and Referral Project

William Schwab, MD, Waisman Center, University of Wisconsin, Madison RTOI # 2008-02-05


2007 RTOI Projects


Brighter Tomorrows: Transforming Existing Down Syndrome Professional Educational Tools for Broader Dissemination and Use

Harold Kleinert, EdD, University of Kentucky, RTOI #: 2007-03-01


Children with Early Hearing Loss and Existing Comorbidity Conditions in New Jersey

Deborah Spitalnik, PhD, The Elizabeth M. Boggs Center on Developmental Disabilities, UMDNJ-Robert Wood Johnson Medical School, RTOI #: 2007-01-06


Impact of Hearing Loss and Comorbidity on Virginia's Children and Families

Kathleen Bodisch Lynch, PhD, Partnership for People with Disabilities, Virginia Commonwealth University, RTOI #: 2007-01-10


Lessons from Hurricane Katrina and Rita

Laura Stough, PhD, Texas A&M University, RTOI #:2007-02-05


The Health of Children of Russia: Providing Education on FAS/FASD

Tatiana Balachova, PhD, University of Oklahoma Health Sciences Center, RTOI #: 2007-999-02


2006 RTOI Projects


Language and Behavioral Outcomes of Children with Congenital Hearing Loss

Betty Vohr, MD, Paul V. Sherlock Center on Disabilities, Rhode Island College and Women and Infants Hospital, RTOI #: 2006-07-1


2005 RTOI Projects


Behavioral and Medical Disorders in Children with Down Syndrome in New York

Susan Hyman, MD, Strong Center for Developmental Disabilities, RTOI #: 2005-1/2-08


Birth Certificate Orders and Hearing Screening Follow-Up

Judith M. Holt, PhD, Utah State University, RTOI #: 2005-04-01


Bowel and Bladder Continence Among Children with Spina Bifida

Eric B. Levey, MD, The Kennedy Krieger Research Institute, RTOI #: 2005-5/6-01


Bowel/Bladder Management Techniques for Children with Spina Bifida

Robert A. Jacobs, MD, MPH, Children's Hospital Los Angeles, RTOI #: 2005-5/6-03


Development of Education Materials for Prevention of Fetal Alcohol Syndrome in Russia

Barbara L. Bonner, PhD, University of Oklahoma Health Sciences Center, RTOI #: 2005-999-01


Prevalence of Autism Spectrum Disorder in Children with Down Syndrome

Cordelia Robinson, PhD, University of Colorado, JFK Partners, RTOI #: 2005-1/2-07


Unilateral and Mild Hearing Loss in Infants and Young Children

Judith Gravel, PhD, Children's Hospital of Philadelphia, RTOI #: 2005-03-03


2004 RTOI Projects


Descriptive Study of Tourette Syndrome-Quality of Life

Samuel Zinner, MD, University of Washington, RTOI #: 2004-04-01


Georgia Babies Can't Wait Tracking System

Zolinda Stoneman, PhD, University of Georgia, RTOI #: 2004-02-07


Palliative Care for Duchenne Muscular Dystrophy

F. John Meaney, PhD, University of Arizona, RTOI #: 2004-03-03


Risk Factors for Late-Onset Hearing Loss in Children

Richard C. Folsom, PhD, University of Washington, RTOI #: 2004-01-05


Secondary Conditions in Arkansas Children with Spina Bifida

Andrea Hart, PhD, University of Arkansas, RTOI #: 2003-02-04


2003 RTOI Projects


Brighter Tomorrows: Supporting Families with Accurate Information About Down Syndrome

Harold Kleinert, EdD, University of Kentucky, RTOI #: 2003-01-13


Educating Providers About Down Syndrome Via an Integrated Marketing Module

Principle Investigator: Robert Jacobs, MD, Children's Hospital Los Angeles in collaboration with University of Massachusetts, Boston and University of Iowa; Project Directors: Cary Kreutzer, MPH, RD (Los Angeles), David Helm, PhD (Massachusetts), Dianne McBrien, MD (Iowa), RTOI #: 2003-01-17


Secondary Conditions and Adaptation in Spina Bifida

Timothy Brei, MD, Indiana University School of Medicine, RTOI #: 2003-02-01


Spina Bifida: Costs and Outcomes Associated with Different Models of Health Care for Adolescents and Young Adults

Tari Topolski, PhD, University of Washington, RTOI #: 2003-03-02


The Role of Assistive Devices in Promoting Health and Reducing Secondary Conditions for Persons with Spina Bifida

Kurt Johnson, PhD, University of Washington, RTOI #: 2003-04-02