Manager - National Coordinating Center for Epilepsy

Posted: Friday, October 2, 2020



Manager, National Coordinating Center for Epilepsy (Grant Funded) 


Senior Manager, Children and Youth with Special Health Care Needs Initiatives


Manage the Maternal and Child Health Bureau (MCHB) funded cooperative agreement Innovations in Access to Care for Children and Youth with Epilepsy (CYE) work plan and guide implementation of all activities associated with its mission. Engage internal and external stakeholders to support state epilepsy grantees in their efforts to enhance access to services for CYE; promote a collaborative team-based model of care for CYE; facilitate the development and dissemination of best practices designed to bridge primary and subspecialty care through telemedicine; build knowledge, skills, and cultural competency in the care and transitions of CYE; and track progress related to program objectives. 


  • Manage the infrastructure to operate as a coordinating center and forge strategic partnerships with multidisciplinary stakeholders including the state epilepsy Project Grantees, Health Resources and Services Administration (HRSA)/Maternal and Child Health Bureau (MCHB), and other groups which support the advancement of patient-centered family care for CYE and access to essential medical, social and community services.
  • Convene and facilitate a National CYE Advisory Committee (AC) and its associated workgroups. Organize meetings/calls, develop agendas, prepare minutes/reports, create a work plan/ performance management tool to guide and measure progress in meeting established metrics for success.
  • Meet regularly with the HRSA/MCHB Project Officer and participate in various national and state epilepsy meetings that serve as a direct communication and knowledge sharing interface between primary care, subspecialty care, policy makers, educators, families, medical home advocates, and community leaders who collectively can serve as change agents in advancing access to services for CYE.
  • Compile materials and information related to the Project Grantees and provide technical assistance related to same. Enhance the repository of resources that serve the needs of Project Grantees, health care providers, and families. Coordinate and participate in the development and review of program materials (eg, resource manual, training tools, sample project protocols) and promotional materials (eg, newsletter and email distribution lists, articles, flyers, and brochures).
  • Manage the cooperative agreement budget, prepare all requisite progress reports, and work with the Public Affairs staff to highlight progress and promote avenues for stakeholder engagement.Collaborate with relevant AAP groups including the Section on Neurology (SONu), the National Resource Center for Patient/
  • Family Centered Medical Home, Council on Children with Disabilities, and others to create a virtual community of learners around CYE, promote opportunities for mentoring and education, dissemination of best practices, and adoption of consensus strategies applicable to workforce and training.
  • Work with the program leadership to host monthly grantee conference calls, including agenda development, minutes preparation and dissemination, and action item follow-up.
  • Work with the QI and Evaluation Manager, HRSA/MCHB, and state programs to plan and implement process and outcome evaluation, and coordinate the analysis and dissemination of results.
  • Respond to inquiries and correspondence from program collaborators, AAP fellows and other physicians, allied health professionals, governmental agencies, higher education institutions, and other organizations regarding program activities.
  • Meet with the program stakeholders on an as needed basis to ensure optimal consistency, efficiency and viability of the program.
  • Supervise assigned staff and oversee the work of subcontractors and consultants.
  • Perform all other duties as assigned for the success of the grant. 


Bachelor's degree in public health, health administration, public administration, health policy, education or related field required. Master's degree preferred. 


Three to four years' related experience in public health program coordination/management ,including fiscal/budget responsibility required, preferably in a medical association, state public health agency, or national advocacy organization. Experience with public health planning and administration, technology and telemedicine, learning collaboratives, grants management, and supervising staff desirable.


Excellent organizational, interpersonal, diplomacy, and verbal/written communication skills required. Strong technical acumen with proficiency in MS Office (Word and Excel) and database management required; knowledge of web maintenance software (eg, SharePoint) and virtual meeting platforms (eg, WebEx) preferred. Must be able to manage multiple projects simultaneously, work both independently and as part of a team, take initiative, and collaborate effectively with various internal and external constituents. Some travel and weekend work required.