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4/28/2021

AIR-B Network Continues Outreach in Diverse Communities

Although much of the research activity has moved virtual, the Autism Intervention Research Network on Behavioral Health (AIR-B Network; PI: Kasari) continues its research-community partnership in the COVID-19 era. The AIR-B is a network of researchers at UCLA, UC Davis, University of Pennsylvania, University of Rochester, Drexel University, University of Kansas, University of Washington and each site's local community partners working to increase equity in access to ASD information and interventions for families of children with ASD.

 
 

4/28/2021

AIR-P (UCLA): Progress to Date

The Autism Intervention Research Network on Physical Health (AIR-P) is a multi-disciplinary, multi-site network that supports innovative life course intervention research and promotes optimal health and well-being of autistic individuals across the lifespan. In September 2020, the University of California, Los Angeles (UCLA) was awarded funding by the Maternal and Child Health Bureau in the Health Resources and Services Administration to lead and develop the network with the primary goal of increasing the life expectancy and quality of life for autistic individuals.

 
 

4/28/2021

Autism Friendly Initiative

Patients on the autism spectrum have various sensory and communication needs which can make the fast-paced and often over-stimulating hospital environment particularly challenging. In response, Boston Medical Center (BMC) launched the Autism Friendly Initiative in order to improve the healthcare experience for patients with autism spectrum disorder (ASD) and their families.

 
 

4/28/2021

Increasing Access to Diagnostic Evaluations and Ongoing Care for Autism Across Washington State

University of Washington LEND is excited to report initial outcomes of ECHO Autism Washington: our new ECHO program supporting primary care providers (PCPs) in Washington State in diagnosing and managing autism spectrum disorder (ASD). ECHO Autism Washington is supported by UW LEND in collaboration with the Washington State legislature and Washington State Health Care Authority. We launched our first cohort of 28 PCPs from 15 counties in Washington in December 2019 (see Map).

 
 

4/28/2021

Nisonger LEND Leadership Project: Pilot ECHO with AMSEN School in Tanzania

Nisonger LEND Leadership Project: Pilot ECHO with AMSEN School in Tanzania This year a team of LEND trainees and faculty developed an Extensions for Community Healthcare Outcomes (ECHO) pilot project with an AUCD Professional Fellow and other teachers from the Al Muntazir Special Needs School (AMSEN) in Tanzania. According to the 2012 Tanzania Disability Monograph only one major university in Tanzania produces teachers for students with ASD/DD.

 
 

11/23/2020

Former Trainee- Making A Difference in the Latinx Community

Recent Va-LEND graduate Fiorella Carrillo-Kimbrough volunteers with Caminos, a Richmond-based support group that works with Spanish-speaking families with children who have autism or other neurodevelopmental disabilities. The group incorporates the use of cultural brokers and provides culturally appropriate education and support.

 
 

4/27/2018

A Pilot Randomized Controlled Trial of the ACCESS Program: A Group Intervention to Improve Social, Adaptive Functioning, Stress Coping, and Self-Determination Outcomes in Young Adults with Autism Spectrum Disorder

The purpose of this pilot randomized controlled trial was to investigate the acceptability and efficacy of the Acquiring Career, Coping, Executive control, Social Skills (ACCESS) Program, a group intervention tailored for young adults with autism spectrum disorder (ASD) to enhance critical skills and beliefs that promote adult functioning, including social and adaptive skills, self-determination skills, and coping self-efficacy. Forty-four adults with ASD (ages 18�38; 13 females) and their caregivers were randomly assigned to treatment or waitlist control. Compared to controls, adults in treatment significantly improved in adaptive and self-determination skills, per caregiver report, and self-reported greater belief in their ability to access social support to cope with stressors. Results provide evidence for the acceptability and efficacy of the ACCESS Program.

 
 

4/26/2018

Deconstructing Autism: from unitary syndrome to contributory developmental endophenotypes

A recent generation of family studies has revealed that autism can be predicted from an array of neurobehavioral susceptibilities that are appreciable before the syndrome is diagnosed, and that each may be traceable to partially-independent sets of genetic variation. Some of these liabilities are not necessarily specific to ASD-those that are non-specific could account for a significant share of the �missing heritability' of autism, would (by definition) contribute to pleiotropy, and relate to so-called �co-morbidities', which are inappropriately named if they actually contribute to (or exacerbate) the severity of autism itself.

 
 

4/25/2018

Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families

This study comparee barriers to autism spectrum disorder (ASD) diagnosis and current ASD-related service use among non-Latino white (NLW) families and Latino families with English proficiency (L-EP) or limited English proficiency (L-LEP).

 
 

4/23/2018

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders.

 
 

4/19/2018

AIR-B Network Activities

The Autism Intervention Research Network for Behavioral Health (AIR-B) provides a free annual community conference to increase awareness of autism services, current research, and evidence-based interventions in the local regions of each of its network partners: University of Pennsylvania, UC Davis MIND Institute, University of Rochester, and University of California, Los Angeles. Experts in the network share their expertise and invite other prominent autism advocates to discuss topics ranging from non-clinical based autism interventions, to parent advocacy, to school-based transition supports for students with autism.

 
 

4/19/2018

AIR-P Network Activities

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on reaching underserved communities.

 
 

4/19/2018

Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences

The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .

 
 

4/19/2018

Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences

The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .

 
 

4/19/2018

Better Together: Developmental Screening and Monitoring Best Identify Children who Need Early Intervention

Children at risk of developmental disabilities or delays who receive both monitoring and screening are more likely to receive the early interventions they need than their peers who receive either monitoring or screening, according to a study led by Dr. Brian Barger-a researcher at the Georgia State University and Policy Fellow with the "Learn the Signs. Act Early." team at NCBDD.

 
 

4/19/2018

IACC Summary of Advances in Autism Spectrum Disorder Research 2017

The 2017 Summary of Advances provides short, plain language summaries of the top 20 research articles selected by the Interagency Autism Coordinating Committee (IACC). The studies selected for 2017 have provided new insight into potential biomarkers to predict risk of autism spectrum disorder (ASD), developmental trajectories of children with ASD, and the impact of the various prenatal exposures on ASD risk. The advances also include studies that investigated treatments and interventions for both ASD and co-occurring conditions, the impact of policy changes on ASD health care spending, patterns of injury mortality, and prevalence differences across demographic groups.

 
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