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5/20/2022

Health Care Transition Publication Supported by Autism Cares Act Funding

The Health Resources and Service Administration, and Maternal and Child Health Bureau have measured HCT service provision since 2001 but the longitudinal use of this measure has never been examined. This manuscript highlights the consistent and inconsistent uses of HCT constructs in two prominent national surveys (the National Survey of Children with Special Health Care Needs (NS-CSHCN) and the National Survey of Children's Health (NSCH)) between 2001 and 2019.

 
 

4/1/2022

2022 Autism Acceptance Month Webinar Series

AUCD's Autism Special Interest Group (SIG) is sponsoring a series of three webinars for Autism Acceptance Month.

 
 

12/20/2021

AIR-P Scholars & Pilot and Feasibility Funding

The Autism Intervention Research Network on Physical Health (AIR-P) is currently in its second year of funding under the direction of UCLA and Project Investigator Dr. Alice Kuo! AIR-P establishes and maintains an interdisciplinary, multicenter research network for scientific collaboration and infrastructure to increase the life expectancy and quality of life for autistic individuals. The mission of the AIR-P is to develop a robust research infrastructure that will foster measurable improvements in optimal physical health and well-being of autistic individuals and their families across the lifespan

 
 

12/20/2021

COVID-19 Vaccines & Children with Developmental Disabilities: Let's Talk

By: Rachel C. Passmore, MPH; Lisa H. Shulman, MD

Dr. Lisa Shulman is a developmental pediatrician who specializes in the care of children with autism and is the Interim Director of the Rose F. Kennedy Children's Evaluation & Rehabilitation Center (RFK CERC) at Children's Hospital at Montefiore (CHAM) in the Bronx, New York. For the past 10 years, she has given a lecture entitled "Shattering the Myths around Vaccination" for families in the Bronx as well as worked with pediatricians on communicating with vaccine hesitant families.

 
 

12/20/2021

HRSA Awardees Study Impact of COVID-19 on Receipt of Services and Parent Mental Health in Children with ASD

University of Delaware�s Dr. Anjana Bhat, associate professor in physical therapy, and JP Laurenceau, professor in psychological and brain sciences, have been awarded a grant from the Health Resources and Services Administration (HRSA) at the Department of Health and Human Services (DHHS) for a new study to analyze the impacts of COVID-19 on receipt of behavioral, speech, occupational and physical therapy services and parent mental health in 9,000 children with autism from the SPARK cohort and to determine value derived from these services in an online capacity.

 
 

12/20/2021

Kennedy Krieger Faculty Receive Grant to Build Capacity to Deliver Evidence Bsed Mental Health Intervention

Dr. Deepa Menon, of the Kennedy Krieger LEND Program and co-PIs Kathryn Van Eck, PhD and Nikeea Copeland Linder, PhD, MPH were recently awarded a Jesse DuPont Bell grant to address mental health and COVID-induced trauma in patients with autism and other special health care needs. By utilizing Cognitive Behavioral Intervention for Trauma in Schools (CBITS) training, Social Work trainees from collaborating HBCU�s will receive mentoring and training to deliver an evidence-based validated program through telemedicine to address student stress and anxiety, and to build coping skills and resilience.

 
 

12/13/2021

AIR-P/OAR Funding Opportunity: Community Grant Competition

Description: Applications for the AIR-P and the Organization for Autism Research (OAR) Community Grant Competition opened on Friday, October 8, and will close on April 30, 2022. Find details about the grant, application requirements, an FAQ, and a link to start your application!

 
 

12/13/2021

Oral Health Complications Higher in Adolescents with Autism Spectrum Disorders and Other Developmental Disabilities (ODDs) with Obesity Compared to Healthy Adolescents

For this study, the authors used an analytical sample of adolescents of ages 10 to 17 years (n=68,942) using data from 2016 through the 2019 National Survey of Children's Health (NSCH). We categorized the analytical sample into 4 groups for comparisons: adolescents with ASD/ODDs and obesity (Group A), adolescents without ASD/ODDs but with obesity (Group B), adolescents with ASD/ODDs but no obesity (Group C), and adolescents without ASD/ODDs or obesity (Group D). Almost 7% of the sample were ASD/ODD adolescents with obesity representing approximately 2.31 million high-risk U.S. adolescents. Parents completing the survey, answered questions on their child's demographics, health status, health care utilization, and other relevant health-related information.

 
 

4/28/2021

AIR-B Network Continues Outreach in Diverse Communities

Although much of the research activity has moved virtual, the Autism Intervention Research Network on Behavioral Health (AIR-B Network; PI: Kasari) continues its research-community partnership in the COVID-19 era. The AIR-B is a network of researchers at UCLA, UC Davis, University of Pennsylvania, University of Rochester, Drexel University, University of Kansas, University of Washington and each site's local community partners working to increase equity in access to ASD information and interventions for families of children with ASD.

 
 

4/28/2021

AIR-P (UCLA): Progress to Date

The Autism Intervention Research Network on Physical Health (AIR-P) is a multi-disciplinary, multi-site network that supports innovative life course intervention research and promotes optimal health and well-being of autistic individuals across the lifespan. In September 2020, the University of California, Los Angeles (UCLA) was awarded funding by the Maternal and Child Health Bureau in the Health Resources and Services Administration to lead and develop the network with the primary goal of increasing the life expectancy and quality of life for autistic individuals.

 
 

4/28/2021

Autism Friendly Initiative

Patients on the autism spectrum have various sensory and communication needs which can make the fast-paced and often over-stimulating hospital environment particularly challenging. In response, Boston Medical Center (BMC) launched the Autism Friendly Initiative in order to improve the healthcare experience for patients with autism spectrum disorder (ASD) and their families.

 
 

4/28/2021

Increasing Access to Diagnostic Evaluations and Ongoing Care for Autism Across Washington State

University of Washington LEND is excited to report initial outcomes of ECHO Autism Washington: our new ECHO program supporting primary care providers (PCPs) in Washington State in diagnosing and managing autism spectrum disorder (ASD). ECHO Autism Washington is supported by UW LEND in collaboration with the Washington State legislature and Washington State Health Care Authority. We launched our first cohort of 28 PCPs from 15 counties in Washington in December 2019 (see Map).

 
 

4/28/2021

Nisonger LEND Leadership Project: Pilot ECHO with AMSEN School in Tanzania

Nisonger LEND Leadership Project: Pilot ECHO with AMSEN School in Tanzania This year a team of LEND trainees and faculty developed an Extensions for Community Healthcare Outcomes (ECHO) pilot project with an AUCD Professional Fellow and other teachers from the Al Muntazir Special Needs School (AMSEN) in Tanzania. According to the 2012 Tanzania Disability Monograph only one major university in Tanzania produces teachers for students with ASD/DD.

 
 

4/1/2021

2021 Autism Acceptance Month Webinar Series

AUCD's Autism Special Interest Group (SIG) is sponsoring a series of three webinars for Autism Acceptance Month. Topics will range from telehealth to cognitive behavioral therapy to caregiver coaching strategies. We will also host an open house for AUCD network members to learn more about activities of the Autism SIG.

 
 

11/23/2020

Former Trainee- Making A Difference in the Latinx Community

Recent Va-LEND graduate Fiorella Carrillo-Kimbrough volunteers with Caminos, a Richmond-based support group that works with Spanish-speaking families with children who have autism or other neurodevelopmental disabilities. The group incorporates the use of cultural brokers and provides culturally appropriate education and support.

 
 

4/27/2018

A Pilot Randomized Controlled Trial of the ACCESS Program: A Group Intervention to Improve Social, Adaptive Functioning, Stress Coping, and Self-Determination Outcomes in Young Adults with Autism Spectrum Disorder

The purpose of this pilot randomized controlled trial was to investigate the acceptability and efficacy of the Acquiring Career, Coping, Executive control, Social Skills (ACCESS) Program, a group intervention tailored for young adults with autism spectrum disorder (ASD) to enhance critical skills and beliefs that promote adult functioning, including social and adaptive skills, self-determination skills, and coping self-efficacy. Forty-four adults with ASD (ages 18�38; 13 females) and their caregivers were randomly assigned to treatment or waitlist control. Compared to controls, adults in treatment significantly improved in adaptive and self-determination skills, per caregiver report, and self-reported greater belief in their ability to access social support to cope with stressors. Results provide evidence for the acceptability and efficacy of the ACCESS Program.

 
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