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Health Care Reform: A Research to Policy Brief

Written by: Christine Marcella Grosso, Kim Musheno, John Tschida, Denise Rozell, Adriane Griffen, AUCD

The Affordable Care Act (ACA) was signed into law on March 23, 2010. The main goals of this landmark health reform law are to: expand access to coverage, improve the quality of care, and make coverage more affordable. Since its passage, the ACA has extended health insurance coverage to approximately 20 million people and contributed toward slower growth of health care costs. The ACA contains many provisions intended to ensure accessible, comprehensive, affordable, non-discriminatory coverage for consumers, especially people with disabilities.



Interdisciplinary Genetics Competencies for LEND Trainees

As recommended by the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Genetics Workgroup

The purpose of this document is to serve as resource for LEND programs for those programs desiring to strengthen their genetics content. It is not intended to serve as a mandate or requirement, but rather to provide specific guidance in achieving basic and advanced competencies in genetics.



Obesity and Individuals with Intellectual and Developmental Disabilities

A Research to Policy Brief

Obesity is an increasingly common condition that is characterized by an increase in the number and size of fat cells in the body. Obesity rates are a concern for the general population, but research findings consistently report even higher rates of obesity among individuals with intellectual and developmental disabilities (IDD). The Centers for Disease Control and Prevention report approximately 35% of the general population is obese, while the rate of obesity among adults with IDD is as high as 58.5% in the United States. The consequences of obesity predispose adults with IDD to a greater risk of secondary health conditions that can impair their health status and quality of life.



HealthMatters for People with Intellectual and Developmental Disabilities: Building Communities of Practice for Health

A Research to Policy Brief from AUCD and UIC's RRTCDD

The emergence of accessible health promotion initiatives for people with intellectual and developmental disabilities (IDD) over the past 20 years demonstrates great promise for improving their health status. However, people with IDD continue to experience numerous age-related health issues and often lack control over environments and practices that impact their health. Determining successful scale-up processes of "what works" is critical in being able to achieve the goal of improved lives for the greatest number of people.



UCEDD Tip Sheet

UCEDD Grants Management: Needs Assessment for the UCEDD Core Grant

The state/Territory needs assessment is a critical first step in preparing the UCEDD 5-year core grant application (also referred to as the strategic plan). This Tip Sheet provides information specific to planning and conducting the needs assessment, and using the resulting data to inform the core grant application.



Policy to Practice: Falls in Adults with Intellectual Disabilities

One out of every three adults aged 65 years or older in the general population falls at least once each year. For adults with intellectual disability (ID), the prevalence of falls is even higher with studies estimating a fall rate ranging from between 29% to 70%. Falls are a major cause of serious injury and hospitalization, and an important public health concern. Using baseline data from the Longitudinal Health and Intellectual Disability Study, we examined the prevalence of falls and potential risk factors for falls in adults with ID.



Including People with Disabilities: Public Health Workforce Competencies

The Association of University Centers on Disabilities (AUCD) is pleased to announce the release of the Including People with Disabilities: Public Health Workforce Competencies. These Competencies outline recent advances in knowledge and practice skills that public health professionals need to include people with disabilities in the core public health functions - Assessment, Policy Development and Assurance. The Competencies have been developed by a national committee comprised of disability and public health experts.



The Purposeful Inclusion and Support of People with Disabilities in LEND Training

Challenges, Strategies, and Guidance

This document briefly describes the major challenges associated with the inclusion and support of people with disabilities in the interdisciplinary training context, offers strategies that programs are currently implementing to address the identified challenges, and identifies some of the themes that emerged from successful LEND programs' experiences across four topic areas.



Racial and Ethnic Disparities among Adults with Intellectual and Developmental Disabilities

This study investigated the extent of racial and ethnic disparities in the health of adults with intellectual and developmental disabilities. Findings suggest that Black and Latino adults with intellectual and developmental disabilities have markedly worse health status than both their white counterparts with intellectual and developmental disabilities, and nondisabled adults within their racial and ethnic groups.



2015 AUCD Annual Report

AUCD is a network of people, with and without disabilities, who are passionate about growing the next generation of leaders and driving positive change for people with disabilities and their families. In this 2015 annual report, we highlight six people who exemplify what it means to be an AUCD member. Their stories of leadership, scholarship, teaching, research, family, and personal achievement are but a small sampling of the activities that happen at AUCD member centers and programs across the country every day. We know you will be as inspired as we are with their stories, and we invite you to join us as we collaborate to advance the well-being of all people with disabilities and their families.



Call to Action on Community Living from AUCD & AAIDD

As we approach the 25th anniversary of the Americans with Disabilities Act, one of the continued areas of discussion about services and supports for people with intellectual and developmental disabilities has been around residential supports. In this joint paper, AUCD and AAIDD provide an accessible summary of the research from the past 30 years and recommendations for residential services.



Quick Start Guide to Educating Policy Makers

Members of the AUCD Network have a Congressional mandate to educate policy makers. This guide describes the processes involved in legislation and provides suggestions for maximizing the effectiveness of your interactions with policymakers.



2014 AUCD Network Report

AUCD's fiscal year 2014 report demonstrates the strength of our network and its ability to positively impact the lives of people with disabilities and their families across the nation and territories. Through our research, education, model programs, and advocacy, we are working to create meaningful opportunities for everyone.



UCEDD Promising Practice Briefs

Promising Practice Briefs are intended to highlight projects of excellence with a goal of offering a program model from which University Centers for Excellence in Developmental Disabilities (UCEDDs) can glean inspiration for new activities and promising practices to augment their own work. A promising UCEDD practice may be a research or evaluation project, policy analysis, data assessment, outreach initiative, or awareness effort. It may provide a direct service or a supported opportunity to people with a developmental disability, indirect support to family and community caregivers, or interdisciplinary training for students, fellows, professionals, and policymakers. It may involve leadership development, community work, or clinical practice.



Grant Writing and Grant Management Toolkit For Self-Advocates

AUCD created this toolkit based on feedback from self-advocates who participated in these Self-Advocacy Organizational Development Grants, who expressed interest in writing grant applications. This toolkit is designed to help more self-advocacy organizations apply for grant in the future.

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